I'm sorry PM - my response must have been frustrating for you. I had no idea that you've already spent so much time and money trying to figure things out... that really sounds crazy that nothing showed up in your blood tests with previous endos...
Okay. I'm going to suggest something really out there. Have you ever tried Reiki, or something to that effect? I'm not saying it will "heal" you, but if you go to someone who is good, they'll be able to tell you how the energy in your body is flowing, and where they believe the major problems are. I've had loads of energy healing over the years, and they always told me that my problem areas were my throat (thyroid) and my reproductive system. One woman even told me I had a problem with my ovaries!
Even if you get no info out of it, it's a lovely, destressing experience. (Applogies in advance if you're religious and not into those things).
Regarding my own diagnosis: I got a scan of my womb, and it confirmed that I'm not ovulating, and my blood showed low prog, high est. So it all tied in. It fits in with everything I've experienced in life too... I do believe that all illnesses have emotional roots (disease = Dis- ease).
"I think the basic anti-aging diet is also the best diet for prevention and treatment of diabetes, scleroderma, and the various "connective tissue diseases." This would emphasize high protein, low unsaturated fats, low iron, and high antioxidant consumption, with a moderate or low starch consumption.
In practice, this means that a major part of the diet should be milk, cheese, eggs, shellfish, fruits and coconut oil, with vitamin E and salt as the safest supplements."
- Ray Peat