Page 2 of 2 FirstFirst 12
Results 11 to 20 of 20

Thread: Parkinson's, Stage 1 page 2

  1. #11
    abexman's Avatar
    abexman is offline Member
    Join Date
    Dec 2010
    Posts
    69
    Primal Fuel
    Quote Originally Posted by Pamsc View Post
    Is he on any medication? Protein can interfere with the effectiveness of Sinemet if they are taken too close together. The closest thing to a disease modifying treatment for Parkinson's is exercise. There is some suggestion that plentiful ketones, as from coconut oil, helps. I don't think it is necessary to radically lower glucose as with the ketogenic diet.

    My husband has had Parkinson's for 4 years. I noticed cognitive changes right away. The most common cognitive changes are emotional flatness, selfcenteredness, and difficulty with executive function. It is a nasty disease. My husband is focused on enjoying his food while he still can so he takes coconut oil but I have not pushed him to try eating primal (though I don't serve grain). He has terrible problems with constipation and diarrhea which have led to occasional bowel incontinence even now in the middle stages.

    Forgive me for being blunt, expressing my frustration with my own situation. My advice would be to get out of the relationship while you still can, or at least do not legally marry. What can easily be 15-20 years of caregiving for someone who increasingly cannot understand what I am sacrificing is no way to live. I inherited some money, and when we married we signed a prenuptial agreement. That prenuptial agreement does not protect me from having to spend my money on my husband's care before he would be eligible for any government help. In some states a spouse has to spend their own retirement savings before their spouse is eligible for government help.
    I echo Pam - see the other threads here re: PD. Be careful because certain PD medications can be complicated by high fat/protein diets. I moved my mother with PD to a paleo diet and there have been many complications since, though she is off the diet, problems continue. Still trying to figure out cause & effect.

  2. #12
    palebluedots's Avatar
    palebluedots is offline Senior Member
    Join Date
    May 2012
    Posts
    340
    I know this won't be popular to say, but we found evidence that a very clean organic vegan diet may be the best option for Parkinsons.

    My husband and I did a lot of research into this because his mother was diagnosed with a very rare form of it. We read a bunch about protein interfering... I don't remember a lot of it now, but if you look it up, you'll find the info. Unfortunately, my mother-in-law never tried (and her caregivers have never tried) feeding her different things to see what helps. Now she is in a nursing home near death.

    So, as I said, it may not be a popular thing to say on here, and generally speaking I no longer endorse a vegan diet, but I really think there might be something to it in this case.

  3. #13
    abexman's Avatar
    abexman is offline Member
    Join Date
    Dec 2010
    Posts
    69
    Palebluedots, any resources you recommend?

  4. #14
    palebluedots's Avatar
    palebluedots is offline Senior Member
    Join Date
    May 2012
    Posts
    340
    I'm sorry, I don't recall any sources. His mom has had this disease for about 10 years now, and the last time we looked deeply into it was probably at least 8 years ago. But it could be worth doing a bit of research on your own and seeing if the evidence may still support that conclusion.

  5. #15
    sbhikes's Avatar
    sbhikes is online now Senior Member
    Join Date
    Nov 2011
    Location
    Santa Barbara
    Posts
    9,354
    The only person I know with Parkinson's is a vegan.
    Female, 5'3", 49, Starting weight: 163lbs. Current weight: 135 (more or less).
    Starting squat: 45lbs. Current squat: 170 x 3. Current Deadlift: 220 x 3

  6. #16
    palebluedots's Avatar
    palebluedots is offline Senior Member
    Join Date
    May 2012
    Posts
    340
    But maybe they are vegan because they have Parkinson's and find it helpful? I think Michael J Fox also became a vegan to try to stall his parkinson's. I'm not saying it's foolproof, just something to look into.

  7. #17
    Hilary's Avatar
    Hilary is offline Senior Member
    Join Date
    Jul 2010
    Posts
    1,278
    About exercise, not diet - have you heard of Neil Sligar? He has several things online about the benefits of serious resistance/ weight training for Parkinsons. Here's an article with links to others: Shaky Man in the Gym 3: Trembling, but no fear :: stumptuous.com.

  8. #18
    abexman's Avatar
    abexman is offline Member
    Join Date
    Dec 2010
    Posts
    69
    Is Sinemet a danger to some patients? See my post here parkinson's disease - Page 3 | Mark's Daily Apple Health and Fitness Forum page 3 and read this book I am starting to get through about reducing PD meds safely: Download Once Upon A Pill Interested to hear other's thoughts.

  9. #19
    Dirlot's Avatar
    Dirlot is offline Senior Member
    Join Date
    Oct 2011
    Location
    Edmonton Canada
    Posts
    2,425
    There are a number of books and articles that show that fat is very important in delaying and stabilizing brain issues like Parkinson....I will see if I can pull some titles but the info is out there.
    Eating primal is not a diet, it is a way of life.
    PS
    Don't forget to play!

  10. #20
    abexman's Avatar
    abexman is offline Member
    Join Date
    Dec 2010
    Posts
    69
    I don't disagree that fat and diet may be extremely important. What has been eye opening is how powerful the PD meds can be. These are dopamine-inducing drugs, just like cocaine, ecstacy, etc. The free ebook I pointed to seems to suggest the drugs are the cause of what many PDers are suffering from and mask the actual PD which can be treated in others ways.

Page 2 of 2 FirstFirst 12

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •