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Thread: Gettin' All-Primal in the Applachians page 34

  1. #331
    Mud Flinger's Avatar
    Mud Flinger is offline Senior Member
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    Primal Fuel
    Sending good vibes and patience your way!

  2. #332
    NZ primal Gwamma's Avatar
    NZ primal Gwamma is offline Senior Member
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    Oh CC hang in there. I hope that things get sorted soon.
    take very good care
    G x
    "never let the truth get in the way of a good story "

    ...small steps....

  3. #333
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    badgergirl is online now Senior Member
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    sending love to the family Crabcakes.
    My journal: http://www.marksdailyapple.com/forum/thread60211.html Into RPG table top games? Check out FateStorm!

  4. #334
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    Crabbcakes is offline Senior Member
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    So. Third is dozing, with the tv parked on the Disney channel (her choice). Docs are chasing stuff down, but nothing obvious yet - the story of Third's life. She got bumpers on her bed and a "fall risk" bracelet, which means that she may not get up or walk around without an aide (both are protocol for seizure kids). I, myself, have been admitted to the hospital (delivered four kids and had my tonsils out as an adult), but none of my kids has ever been admitted anywhere overnight - just the usual emergency room runs and the odd day surgery - so this is all new. I am starting to understand why Forager started a thread just to stay sane last time her son was in.

    Peds floor is nice, tho. Large Ronald McDonald-sponsored Family Room with showers for parents, full laundry, TV/play areas, mini kitchen, work desks, and tables and chairs. Hubby drove up to deliver toiletry bags for the both of us, and then went home. Room itself has a rocker and a cute pull-out couch for parents to sleep on, and the nurses give you sheets for it, too - unexpected nice surprise. Seeing crowds of docs and nurses, as the Clinic is a teaching hospital, and we came in just before shift change, and are just now having another shift change.

    With all this excitement, we will have covered our 2013 insurance deductible already.
    I have a mantra that I have spouted for years... "If I eat right, I feel right. If I feel right, I exercise right. If I exercise right, I think right. If I think right, I eat right..." Phil-SC

  5. #335
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    canio6 is offline Senior Member
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    I hope Third comes out of this all in the clear.
    somehow I manage to leave my intelligence and decorum at the door wherever I go. I doubt your journal will be an exception to that - not on the rug

    What the F&#* is a decorum? - Mr. Anthony

  6. #336
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    Oh Crabbcakes, I just found out about Third's hospitalization, I'm sending you lots of love. I understand what you are going through, the first time was especially scary for me but I would think even more so when the doctors don't know what is going on. I myself have never been admitted so I don't what the adult section of the hospital is like but I've found the ped wards to be very supportive of families.

    How is Third feeling? I've found with my son that there are some things he takes in stride, in ways I never would have thought possible and then there are other things that really disturb him. DS has a had a port every time in the hospital and it made blood work and meds so much easier.

    I hope the hospital is able to accommodate Thirds nutritional needs.

  7. #337
    NZ primal Gwamma's Avatar
    NZ primal Gwamma is offline Senior Member
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    CC lots of warm fuzzies coming to you from NZ.
    "never let the truth get in the way of a good story "

    ...small steps....

  8. #338
    Crabbcakes's Avatar
    Crabbcakes is offline Senior Member
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    Quote Originally Posted by Mud Flinger View Post
    Sending good vibes and patience your way!
    Quote Originally Posted by NZ primal Gwamma View Post
    Oh CC hang in there. I hope that things get sorted soon.
    take very good care
    G x
    Quote Originally Posted by badgergirl View Post
    sending love to the family Crabcakes.
    Quote Originally Posted by canio6 View Post
    I hope Third comes out of this all in the clear.
    Quote Originally Posted by Urban Forager View Post
    Oh Crabbcakes, I just found out about Third's hospitalization, I'm sending you lots of love.
    Quote Originally Posted by NZ primal Gwamma View Post
    CC lots of warm fuzzies coming to you from NZ.
    Hey, ladies and gent, many thanks for the wishes - they must have worked, because we were released, and got home from the long drive at midnight last night. Long story short, she checks out all clear of many, many truly awful things, so that is a relief, but we have two things to watch for - the peds neurologist said her EEG shows she is disposed to seizures, so we will have to be watchful. Of course, he can't predict if she will have any others. The seizure she did have was on the mild end of what is possible in that department, so I am being grateful.

    And then the peds cardiologists said that her EKGs show two different wave anomalies, and combined with her habit of fainting, sends up red flags for them, but she juuuuust squeaked out of any diagnosis. So, we are again to remain watchful, and if she starts fainting due to nothing, we are to call them and head up to the Clinic.

    Sigh. More for me to worry about, but again, nothing really awful managed to stick. Now I just get to tell her horseback facility that she had a seizure. Shit. Because they have very special guidelines for kids with seizures, and if they somehow determine that she should stay off her pony for any length of time, I am telling you, all the life will go out of this kid. Whoo.
    I have a mantra that I have spouted for years... "If I eat right, I feel right. If I feel right, I exercise right. If I exercise right, I think right. If I think right, I eat right..." Phil-SC

  9. #339
    canio6's Avatar
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    Quote Originally Posted by Crabbcakes View Post
    if they somehow determine that she should stay off her pony for any length of time, I am telling you, all the life will go out of this kid. Whoo.


    That would suck. Is there anything else she could do at the stables to be around her pony without actually being on it? Not perfect perhaps but it would be something.

    *crossing my fingers* that this was a one time thing.
    somehow I manage to leave my intelligence and decorum at the door wherever I go. I doubt your journal will be an exception to that - not on the rug

    What the F&#* is a decorum? - Mr. Anthony

  10. #340
    Crabbcakes's Avatar
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    Quote Originally Posted by Urban Forager View Post
    Oh Crabbcakes, I just found out about Third's hospitalization, I'm sending you lots of love. I understand what you are going through, the first time was especially scary for me but I would think even more so when the doctors don't know what is going on. I myself have never been admitted so I don't what the adult section of the hospital is like but I've found the ped wards to be very supportive of families.

    How is Third feeling? I've found with my son that there are some things he takes in stride, in ways I never would have thought possible and then there are other things that really disturb him. DS has a had a port every time in the hospital and it made blood work and meds so much easier.

    I hope the hospital is able to accommodate Thirds nutritional needs.
    Outside of forgetting her breakfast, they did a good job food-wise. I sustained visits from the peds nutrition section and numerous visits from various folks from dietary (read - the kitchen), but we got it figured out. I cook better, though, but it wasn't "bad" food. Third caught her sisters' colds, so she wasn't really eating much anyway, unless I literally fed her, so it worked out.

    You are right about stuff that kids take in stride. It all worked out except for the IV port. For two days I watched her act like a zombie, and 30 minutes after that thing was pulled in preparation for going home, she was up and about and quickly returning to ornery. That thing depressed her entire sensory system to a huge degree, and she was nearly terrified of it.

    The only complaint I have is that the sheer numbers of specialists and their entourages, floor doctors, floor nurses, fellows, and students, that changed shift wise, was overwhelming. They all, to a wo/man, were professional and nice and all that, but I could have used someone who was kind of the railway yard overseer in all this to let me know who was ordering what for which reason. I got it figured out, but I pity anybody kinda slow, because they wouldn't get it. The nursing supervisor said it best - the Cleveland Clinic is very, very good but it is most definitely an institution.

    The first time you went in, is that when Son was diagnosed?
    I have a mantra that I have spouted for years... "If I eat right, I feel right. If I feel right, I exercise right. If I exercise right, I think right. If I think right, I eat right..." Phil-SC

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