My son is fourteen, has spastic quadriplegic cerebral palsy, and is completely g-tube fed. Since he was sixteen months, and first got his g-tube, we have been using Pediasure Enterral Formula for his complete nutrition. A large portion of the calories in this formula come from sugars, and since he's not even tasting the stuff I'd like to get him off of both the milk (it's a milk-based formula, as opposed to soy) and also remove a lot of the sugar from his daily diet.
Last year my husband and I began eating a primarily primal/paleo diet, and I've recently been feeling guilty that our diets are so clean and healthy, but my son is still being fed the crap prescribed by his dietician. I've really gone rounds in my head about how to change things because in raising a special-needs child with so much medical intervention, I have to be careful to follow medical recommendations. At this point I have sought no advice on switching him over to a primal diet, as I know that I would not be supported by the medical community, probably not for ANY child, but especially one with special needs. My husband and I have both had phenomenal gains in health and energy, and feel that we would love to see our son have the same opportunity to feel his best and be as healthy as he can.Your doctor/dietitian is your worst enemy. He's there to make money, follow the incorrect protocols he was taught and avoid lawsuits, not make your child healthy. He is your child, not your dietitian's child. If your dietitian is great and gives you good advice than you're luckier than 99.9% of people who seek help from a dietitian. More likely, he's just passing on the BS he learned in school.
I would like to start him on a homemade formula based on primal micro-nutrient ratios, but am unsure how to proceed for a fourteen-year-old child. I keep thinking about how I would feed a typically-developing child his age, but I'm not sure with most kids a primal diet would even be possible, so I'm not sure the issue would even come up.
Remember, primal is not about micro or macro-nutrient ratios. It's about eating a certain set of foods which are least offensive to your body. There is no such thing as primal micro-nutrient ratios.
Does anyone have experience feeding teenaged kids a primal diet, and if so, what micro-nutrient ratios are you sticking with?
My husband and I are lower-carb by default, since we don't eat beans or grains, however we do eat an almost obscene amount of vegetables. Fruits are very moderate, and mostly berries.
It sounds like you are confusing micro-nutrient ratios with macro-nutrient ratios. Micro-nutrients are nutrients like potassium, vitamin A, magnesium, etc. Macro-nutrients are carbs, protein, fats and alcohol. Forget about ratios. I don't know the specifics about your medical situation and how he's fed, but you can toss some beef, sweet potato and broccoli with coconut milk and that would cover most things. Swap out a few things (chicken, fish, eggs, skinless white potato, carrots, liver, white rice, kale, tomatoes, seaweeds, etc.) and toss in a few extras (fruit, berries, spices, nuts, etc.) and you're good to go. If you're going to be feeding him so much coconut milk, you may want to consider making it yourself, (fairly easy) because the store bought varieties contain gums.
Is this a truly healthy diet for a growing child?
What do you mean? Is eating food which is harmful for one's body a truly healthy diet for a growing child?
Where can I find good information on calorie needs for children on paleo-primal type diets?
[I]Why would you need to change his caloric needs presuming he is currently eating the correct amount? [/I]
Is coconut milk an adequate source of fat for a child? I need to use a liquid for blending the food, and thought full-fat coconut milk might be good for this.
May be better off with animal fats. Buy a bucket of tallow from US Wellness and toss some of that in.
Since taste is not an issue, I was planning to rotate beef, chicken, fish, and eggs. Are these varied enough protein sources for a balanced diet?
[I]As long as he's eating some sort of red meat, he'll be fine. The only reason to vary it would be financial reasons and maybe some added benefits of reasonably sized amounts of organs and fish.[/I]
Do I need to supplement amino acids if I'm using meats and fish as the protein source?
No supplements are necessary provided he's eating real food.
I'm not expecting to find "medical advice" here, but if anyone would be willing to share any experience they have feeding teenagers a primal diet I'd sure appreciate it!Are you saying that the "medical advice" to feed your child crap for 14 years is better than the advice you get here?