It sounds like immune system problems along with some endocrine problems to me. Also, do you have hypermobile joints? They can cause excess fatigue as your muscles have to work harder at a given movement so they need more glycogen than average.
I understand what you're going through. Conventional medicine has failed me miserably, and a friend of mine too who has had CFS for over a decade now.
My immune system was weakened by amalgam fillings, vaccinations and various food intolerances. So I've eliminated those with good results, as well as eating a low histamine diet. I've had various body clock issues during my life including chronic insomnia as a child and seasonal affective disorder in which I believe histamine is a factor.
Causes of fatigue are clearly often very multifactorial, hence the difficulty of nailing down the causes.
Yoga, hot/cold pulsating showers and body brushing help a sluggish lymphatic system get moving, and that can be a factor in a weak immune system. Also an ioniser might be something to try to raise your energy levels.
Anyway there's a few more suggestions for you to investigate.
Last edited by paleo-bunny; 06-26-2012 at 10:56 AM.
F 5 ft 3. HW: 196 lbs. Primal SW (May 2011): 182 lbs (42% BF)... W June '12: 160 lbs (29% BF) (UK size 12, US size 8). GW: ~24% BF - have ditched the scales til I fit into a pair of UK size 10 bootcut jeans. Currently aligning towards 'The Perfect Health Diet' having swapped some fat for potatoes.