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Thread: Fibromyalgia and Fat - Tomi's story page 11

  1. #101
    tomi's Avatar
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    Judg - I understand you're lack of coping. I have had fibromyalgia for 10 years, but was also diagnosed with CFS about 5 years ago. I had to quit my job in 2007 and I got worse until I spent the better part of 2 -3 years just barely functioning. I could sorta keep the housework up - but not much more than that. Seems like life is going by in super speed when you're just barely make it to slow motion! It sucks! It was a long hard climb to where I am today. I started by adding in supplements, and yes, if I don't take them everyday I can feel the difference so I try really hard to remember to take them daily. Then when I couldn't figure out what else I needed from supplements I started searching for diet information. Thats when I found paleo/primal. It took a while for me to decide to dive into this way of eating, but I knew I had to give it a try. I'm sure glad I did! For the first time in 10 years I'm pain free (unless I eat grains or have a bit too much sugar). I'm still not sleeping through the night - but I have more days when I wake up feeling rested-ish ---- rather than dragging myself out of bed just because I have to. 2 years ago, on a bad day I would get out of bed, put on some sweats, find something really easy to make for breakfast, sit on the couch and either watch tv or sit at the computer all day long. I may or may not have showered before my husband got home from work, and usually he would make dinner, and clean up. Then I'd go to bed and lay awake until 3 in the morning cuz sleep just wouldn't come. NOW, on a bad day, I get up by 8:30, I do some housework, get showered and go to work for 3 or 4 hours (I have a flexible job!) come home and make a simple dinner, then crash on the couch with my husband for the evening. On a GOOD day - I am just as functional and productive as anyone else! And the really great part is.......... My good days are probably 85% of the time now. But, if I stop taking my supplements, and I don't eat healthy --- then my bad days start to take over again. Its what keeps me on the straight and narrow! I SOOOO hope you are finding improvement in your health and will stay the course as well.
    Read post #2626
    my motivation

    Weight goals:
    Highest weight: 216
    Current weight: 189 (7-16-14)
    Goal weight: 140

  2. #102
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    Well you guys are certainly an encouragement! And I very much appreciate it. I kind of crashed in mid-afternoon today, but at least the day started well. I would love to have 85% good days. And get my garden back in shape. And the house properly cleaned. And, and, and...

    I find supplements help me too, although I can't see a difference on a day-to-day basis. But over the long term, I do. I still haven't found much rhyme or reason to when I have good days and bad, although sleep is a major factor. Which is a cue for me to hustle off to bed. Propping my eyes open with toothpicks here. Figuratively speaking...
    5'2", 55 years, Primal since April. Pre-Primal weight loss, from 216.6 to 157.8
    Primal low: 140.2 (Dec. 3) Goal weight: 135?
    Main Primal goal: beating back my CFS enough to function more normally and start writing again

    More and more, our life has been governed by specialists, who know too little of what lies outside their province to be able to know enough about what takes place within it.
    - Lewis Mumford

  3. #103
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    Tomi, your old bad days sound like my MIL's good days... I really wish she'd give this a try... I would think that if I felt that badly, I'd be willing to try anything to make the pain go away. I am certainly glad your days are going so well and I hope Judg is able to accomplish the same success!
    Primal since March 5, 2012
    SW: 221 | CW: 182 | LPW: 166 | UGW: 140 (80 lbs loss)




  4. #104
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    @jenn --- I hope your MIL will try this also. Its just such a waste of life to let pain and fatigue dominate your days and do nothing to try to fight it. My sister wants "someone to find a cure" ---- but she doesn't do anything herself to try to fix it. She's thinking someone needs to invent a PILL to make it all go away. I don't know why she can't wrap her brain around the possibility that what shes putting in her mouth could be what is making her feel so bad. I want to scream "I HAVE THE CURE!!!!!!" but I know it wouldn't help. So she continues to eat her breads, cereals, pastas, cakes, cookies, beans and artificial sweeteners. And she is clueless to the fact that she is doing this to herself. She's told other people in the family, "well, thats great for Tomi, but I don't want anything shoved down my throat". Fine then......... When she is ready (IF ever) she will come to me and I will tell her all about it. But until then, I will just enjoy the new life I have.

    Judg - - Keep you're eyes on the goal! And keep searching for the answers. With auto-immune disorders I believe we have to be our own advacates because western medicine doesn't have a clue what causes them or how to treat them. All doctors know about anything is what pill is supposed to fix what ailment - and they rely on the pharmaceutical industry to provide them with the magic cure. They know how to diagnose stuff --- but if there isn't a pill to fix it, then they don't what to do to....... they pass you off to some other "specialist". I work for an endocrinologist - I see it every day. Thats why I starting searching for my own answers - cuz I got tired of doctors, even the one I work for, telling me "we really don't know what to do about it - lets try 'this' pill" -- And even now when I tell my boss, who is also my best friends brother, that I have the answer to fixing the fibro pain -- he looks at me and his eyes glaze over............. why is it so hard for people to see that our food supply is making us sick?

    Oh boy - thats my rant for the day! I'm going to go eat a grass fed beef patty for breakfast now!
    Read post #2626
    my motivation

    Weight goals:
    Highest weight: 216
    Current weight: 189 (7-16-14)
    Goal weight: 140

  5. #105
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    A totally justified rant. Fortunately my own family doctor is not a pill-pusher, plus she has CFS so she has never given me the "it's all in your head" junk. When the "specialist" she sent me to decided I was depressed, not fatigued, and prescribed anti-depressants, we both shook our heads in disgust and ignored him. Not that she has the answer, but at least she doesn't pretend that she does.

    Your poor foolish sister. The best thing you can do, in my insufficiently humble opinion, is live so joyfully in front of her that she just can't stand it anymore. Seriously, she probably thinks you're on some fad thing, that it eventually won't work for you, so why should she upset her lifestyle to eventually get nowhere? God knows I've often thought similar things myself. And frequently been right, for that matter. I've realized slowly over the years that we often have to earn the right to be listened to. It doesn't matter how right we are, how much we care, people hate being preached at until, and this is key, until they ask for it. People naturally resist change, especially after a certain age, until the status quo is unbearable or at least unsatisfactory.

    My first reaction to the suggestion to cutting grains was "no way, no how, not going to happen. Are you kidding me? How could I live without all these wonderful foods?" And even now, if I think of this lifestyle in terms of no bread, no pasta, I get pretty unhappy about it. When I think of it in terms of choosing health and energy and joy, well, then it's a different kettle of fish. Your sister can only see it in negatives right now. The more you illustrate the positives, the more likely she is to shift her mentality. But it's still up to her.
    5'2", 55 years, Primal since April. Pre-Primal weight loss, from 216.6 to 157.8
    Primal low: 140.2 (Dec. 3) Goal weight: 135?
    Main Primal goal: beating back my CFS enough to function more normally and start writing again

    More and more, our life has been governed by specialists, who know too little of what lies outside their province to be able to know enough about what takes place within it.
    - Lewis Mumford

  6. #106
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    Quote Originally Posted by tomi View Post
    why is it so hard for people to see that our food supply is making us sick?
    Oh my... I am with you on this one! Why is it so hard for people to see that? Why is it so hard for them to see that food is created from a plant and not in a lab? (And by from a plant, I mean that we eat the plants and the animals that also eat the plants). I don't get it.


    Quote Originally Posted by tomi View Post
    When she is ready (IF ever) she will come to me and I will tell her all about it. But until then, I will just enjoy the new life I have.
    And Tomi, as much as I am thankful that I don't suffer from any autoimmune diseases, I almost wish that I did so that I could SHOW her first hand how wonderfully effective diet is at curing pain. I love your comment about enjoying your new life until she finally comes around. That is almost what I wish I could have with my MIL. Me with a disease that I have cured with food, and her still suffering until she opens her eyes and sees that the cure is not in another pill.

    I HATE that our doctors aren't doctors anymore. They don't CURE... they pedal drugs.
    Primal since March 5, 2012
    SW: 221 | CW: 182 | LPW: 166 | UGW: 140 (80 lbs loss)




  7. #107
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    "We often have to earn the right to be listened to..."
    Oh, Judg, so true!
    I am trying very hard to keep my mouth shut about what I am doing. When I have more visible results, if someone asks me, I'll speak up. But I'm really hoping to avoid that until I am a model of health, to offer myself as proof.
    As for the people who say "oh, I could NEVER give up (insert food here)!" I was one of those people, too. And look at me now. But it was not from what anyone said, it was from me getting to a place where I was desperate enough to try anything.
    So even if we are offering the best advice in the world, it may not help. We need to get over it. We cannot save everyone, or maybe even, anyone. Except ourselves.

  8. #108
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    Quote Originally Posted by Judg View Post
    A totally justified rant. Fortunately my own family doctor is not a pill-pusher, plus she has CFS so she has never given me the "it's all in your head" junk. When the "specialist" she sent me to decided I was depressed, not fatigued, and prescribed anti-depressants, we both shook our heads in disgust and ignored him. Not that she has the answer, but at least she doesn't pretend that she does.

    Your poor foolish sister. The best thing you can do, in my insufficiently humble opinion, is live so joyfully in front of her that she just can't stand it anymore. Seriously, she probably thinks you're on some fad thing, that it eventually won't work for you, so why should she upset her lifestyle to eventually get nowhere? God knows I've often thought similar things myself. And frequently been right, for that matter. I've realized slowly over the years that we often have to earn the right to be listened to. It doesn't matter how right we are, how much we care, people hate being preached at until, and this is key, until they ask for it. People naturally resist change, especially after a certain age, until the status quo is unbearable or at least unsatisfactory.

    My first reaction to the suggestion to cutting grains was "no way, no how, not going to happen. Are you kidding me? How could I live without all these wonderful foods?" And even now, if I think of this lifestyle in terms of no bread, no pasta, I get pretty unhappy about it. When I think of it in terms of choosing health and energy and joy, well, then it's a different kettle of fish. Your sister can only see it in negatives right now. The more you illustrate the positives, the more likely she is to shift her mentality. But it's still up to her.
    *like*
    Primal since March 5, 2012
    SW: 221 | CW: 182 | LPW: 166 | UGW: 140 (80 lbs loss)




  9. #109
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    Quote Originally Posted by Sabine View Post
    "We often have to earn the right to be listened to..."
    Oh, Judg, so true!
    I am trying very hard to keep my mouth shut about what I am doing. When I have more visible results, if someone asks me, I'll speak up. But I'm really hoping to avoid that until I am a model of health, to offer myself as proof.
    As for the people who say "oh, I could NEVER give up (insert food here)!" I was one of those people, too. And look at me now. But it was not from what anyone said, it was from me getting to a place where I was desperate enough to try anything.
    So even if we are offering the best advice in the world, it may not help. We need to get over it. We cannot save everyone, or maybe even, anyone. Except ourselves.
    I love this too. I'm with you. I'll just prove it. I never dreamed that I'd be happy giving up pasta and bread. But I am in love with it! I love this lifestyle and can't see myself going back. But, you're right... we can't help anyone but ourselves.
    Primal since March 5, 2012
    SW: 221 | CW: 182 | LPW: 166 | UGW: 140 (80 lbs loss)




  10. #110
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    All great thoughts, ladies! I'm so happy about where my life is right now I want to tell EVERYONE! But, I've learned over the years that a lot of people who have lived with chronic pain and/or fatigue for many years have it in their heads that there is no help for them. I was almost there 3 years ago - when I was applying for state disability. I felt totally lost in the downward spiral. I'm so thankful they denied my claim and I as forced to keep searching for an answer. My sister "says" she going to try this - I'll believe it when I see it. She's the type who won't say anything about what she's doing, so just in case she wants to quit she won't have anyone to anyone about it. She's VERY independent!

    Today was a great day! I got up this morning, put away a couple loads of laundry that have been sitting on the couch in my bedroom for a couple days........ ooops. Then I vacuumed the entire house, cleaned up the kitchen, and got ready for work. I worked from 12:30-4:30, then came home and went for a 5 mile bike ride! That felt good! I'd rather ride with my husband, but he was still at work and I didn't want to risk getting caught in a rain shower.

    I'm so ready for spring I can hardly stand it! I have 10 azalea's on the porch that need to be planted and a bunch of flowers that need to go on the waterful hill........... maybe friday when I don't have to work. Hopefully the weather will be kind.
    Read post #2626
    my motivation

    Weight goals:
    Highest weight: 216
    Current weight: 189 (7-16-14)
    Goal weight: 140

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