Primal PCOS'ers? page 3

[Primalvore]

I was dx with endometriosis also, back in 1996. I, like primalvore was in unbelievable pain. It was suspected because of my heavy, painful periods, but only confirmed through a laporoscopy. I also had a bout with hyperplasia. I've always felt the best when pregnant. So now I am getting closer to my ideal weight, eating great and just weaned my son. I am waiting to see how things go now that I am primal.

Whoooops. Laporoscopy is what I meant .

I also had unbelievably heavy bleeding, but only for two or three days.

My dang OBGYN won't listen to me about that stuff. Just put me on the pill (of courseeeee). I was too tired and fed up to fight it. And now I have....like...no periods. But no pain. So as of now, I'm not complaining.

[geostump]

Nope - I went through years of crippling, excruciating pain where I would black out in high school or college classes. The kind that Oxycodone couldn't help - seriously. Usually my random periods came when I woke up and got in the shower, and then I would be suddenly hit and end up vomiting and feeling like someone disemboweled me all morning long. FUN!

I think Endo can take form with a variety of symptoms, though. From what I've heard it's pretty much impossible to diagnose with endoscopic surgery - not even ultrasounds can see the tissue.

This is totally me except it hit me early 30's. I have passed out from the pain. Nothing ever shows up with ultrasounds so I am looking to have an scope done later this year.

[Momto3]

I am sorry Georgette. I hope they are able to properly diagnose and treat soon.

[geostump]

I am sorry Georgette. I hope they are able to properly diagnose and treat soon.

Thanks I hope so too. I turn 35 Sunday so I took myself off the pill. With the history of hear disease and stroke in my family, I thought that was best. I had one painful bout of that at 15 and then nothing until 16 yrs later. Plus the pill was starting to not help with the pain over the last year. I would have lapses where it would get bad, not horrible but it would cause me to pass out.

[Momto3]

Birth control didn't help much for me. I had to go on a drug that put me into pseudo-menopause. This was back in 1996. I only had level 1, thankfully, but the pain was tremendous. Unfortunately with the weight gain from the treatment I think it started me on the vicious cycle of pcos. Thankfully living primal I am seeing real change. I won't know completely until AF shows.

[denise]

Nope - I went through years of crippling, excruciating pain where I would black out in high school or college classes. The kind that Oxycodone couldn't help - seriously. Usually my random periods came when I woke up and got in the shower, and then I would be suddenly hit and end up vomiting and feeling like someone disemboweled me all morning long. FUN!

I think Endo can take form with a variety of symptoms, though. From what I've heard it's pretty much impossible to diagnose with endoscopic surgery - not even ultrasounds can see the tissue.

OMG. Theres nothing like hearing someone else's story to put your own in perspective!! I have some nasty PCOS "by products" - but this is way outside my exeprience!

[nutmegri]

Hey Britters,

Are you still doing PB?I have been doing it for a few weeks and had some results at first but have stalled already. Though, my acne is still much better controlled than ever before. Another thing I have noticed is I am constantly hungry. For instance, I had steak, ribs (no sauce) and veggies tonight. I am hungry again after 2 hours. Any tips? I noticed you posted this in November. How are you doing now?

Thanks,

nutmegri

[Dr. Bork Bork]

I have PCOS and T2 diabetes. I just got off of insulin and glucophage, thanks to PB, but my doc said going off glucophage will affect my fertility? Guess we'll find out when we TTC this fall. Just trying to take things one day at a time. It's been nice rekindling my relationship with my inner red-meat carnivore who was suppressed for over a year into chicken & ground beef submission (CW diet).

[OperaDivaMom]

PCOS is what led me to a Primal/paleo diet to begin with, I'm excited to see this thread here! I have a son who is 18 months old, conceived by a pure miracle since it shouldn't have been entirely possible. I am still breastfeeding, so my doctor isn't really willing to give me an "official" PCOS diagnosis or do any kind of TTC measures. I'm taking matters into my own hands and going paleo, exercising, and trying a couple different herbal/natural supplements to try to get my cycles started (vitex and maca). I don't need to lose much weight, although I'd be happy to be 10-15 lbs lighter since I am very petite. I technically have the "lean" form of PCOS since I'm not overweight and my androgen levels are normal, but my estrogen is very low and probably always has been, which creates the same inequal androgen/estrogen ratio, but without all the androgen side effects like excess hair.

I am hoping to get pregnant in the next year or so, we haven't been preventing but it's hard to call it "trying to conceive" when you don't have cycles. Hoping the paleo lifestyle will get my body healthy so I can make that happen!

[NDF]

I could be remembering the hormonal profile of PCOS incorrectly, but I'm pretty sure estrogen is usually elevated in PCOS. Low estrogen is usually indicative of other things.

Again, I could be remembering incorrectly.