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  • Autoimmune blood work

    Hello there!

    So I saw a new MD and mentioned that I have been having arthritis like flares in my wrists and hands, my cousin has rheumatoid arthritis and I used to be a lot worse before going gluten free. She ordered all kinds of autoimmune and inflammation markers bloodwork and it all came back perfectly normal.

    I have been attempting the autoimmune protocol and have been about 95% strict. I am really questioning whether or not it's worth staying on this restrictive diet.

    My biggest concern is getting my left foot healed up from tendonitis. I've been swimming and doing a bit of lifting heavy things, but I miss being active so much.

    If my bloodwork is stellar, is there any point doing this elimination diet. I don't really want to live on Advil, but I'm wondering if I'm making these flares in my wrist and hands too big a deal? The thing is that I think I've seen improvement by doing the AIP. Ugh. I am confused and feel like a hypochondriac.


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  • #2
    Your bloodwork WOULD be stellar if you're not having flare-ups and avoiding the things that cause you pain. The inflammation markers would only show if you're actively inflamed.

    When testing for celiac, they usually have people eat plenty of gluten-containing foods for a bit before testing.
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    • #3
      So if I'm still having a flare in my wrists and hands, and my blood work is great, what conclusion am I to draw? The flare has improved some, but not completely. I'm beginning to wonder if it's not autoimmune, maybe it's cortisol/stress. I know over a year ago my cortisol was high. The flare started the month my husband was laid off. I started AIP and about a week into it and my flare became not as painful, but still there.

      I have a few health things going on. I'm trying to figure out the trigger for the flares. I used to be so much worse before primal so I am thankful.

      In the past:
      High cortisol
      H pylori

      On going:
      PCOS
      Endometriosis

      New: flares of pain & stiffness in wrists and hands
      Tendonitis in my foot

      Found out I am a carrier for Heamochromotosis. I had one high iron blood test, but rest have come back normal.

      High iron is linked to arthritis
      High cortisol is linked to arthritis and cartilage loss

      So, part of it is I am trying to re-convince myself that this AIP is worth it. I imagine it is beneficial if I can relax and accept it. ( I made pancakes for my family while I had broth)

      Mostly just feeling frustrated and probably self-pity. I'll face it and accept it.




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      • #4
        What have your lastest iron studies come back as?

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        • #5



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          • #6
            In case you can't see photo:
            TIBC 344
            UIBC 233
            Iron, serum 111
            Iron saturation 32
            Ferritin 56


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            • #7
              I have a similiar thing going on. My bloodwork shows only "markers" for RA, supposedly not levels high enough to need medicating, etc. Yet the specialist put me on Plaquenil and in a years' time my ESR rates are normal. I still have flares (the bad ones start in my hips and move down to subsequent joints in my knees, ankles and up to elbows, shoulders, hands and fingers). I had a tendon blow out in my left ankle ten years ago and it's still not healed completely. I have to wear a foot brace every day or the foot goes all 'floppy' and feels slightly swollen.

              I haven't tried the AIP diet, although I should. I guess I just posted this to let you know someone else theoretically "doesn't" have the problem, but really does.

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              • #8
                At least your irons within normal range.
                Is it possible damage was done last time you had high iron?

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                • #9
                  What I'm leading too, have you had an ultrasound or other test done? (X Ray to see if bone density is ok, etc)

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                  • #10
                    I've only had an X-ray of my left foot and it just showed minor osteoarthritis in my big toe. I see a podiatrist next week.


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                    • #11
                      Oh that sucks!
                      I'm not sure if that's reversible.
                      I'm sure someone here could tell you the best vitamins to take to help

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                      • #12
                        I am in kind of a similar situation. I have some things going on that seem like they are autoimmune in origin. I have not yet tried adopting an autoimmune paleo diet to see if it helps, but it's on my To Do list. I'm waiting for some bloodwork to get back. My flare-ups are fairly minor and so sporadic, I have a hard time convincing doctors that anything is wrong except for the fact that I'm chronically constipated. I will probably do an elimination diet, starting with just plain chicken soup and then adding back veggies and meats one at a time.
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                        • #13
                          I'm sorry about what you're going through nameless wonder. AIP is definitely a big commitment. I should have planned more. My sweet friend just bought me a cookbook dedicated to AIP. Tried a yummy citrus avocado dressing that helped get me through lunch.


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