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  • #61
    Originally posted by DFH View Post
    I'm not sure if you meant homeopathic literally, or if you meant something more natural. I have never read anything about homeopathy that gives me any confidence at all!

    As far as a natural alternative to Levothyroxine, yes. Levothyroxine is synthetic T4. T4 is supposed to be an input to your thyroid to prompt your body to release the correct amount of T3. Some people do OK on it, sometimes it is a disaster. Levothyroxine is unpopular with a lot of thyroid patients.

    There are natural thyroid alternatives that are a mixture of T3 and T4, and you can even get natural T3 (which is what I use).

    The best source for info I know of is Mary Shomon's site and books, Thyroid Disease Information Source -- Bestselling Books, News, Information on Living Well With Hypothyroidism, Autoimmune Disease, Thyroid Diet, Home Page of Mary Shomon

    My own doc does not look at TSH. He prescribes a natural T3 and does blood tests for T3. It's stronger than T4 and requires a bit more follow up, but it really made a difference in my case.

    I don't know of a way to just get your thyroid working again to get off the meds entirely. You would not want to rely on something like that and stop having tests. I would think you need to keep going for good, but you may have better results with the natural stuff.
    Thanks! When I said homeopathic, I did mean "more natural". I don't mind going & testing (it's an opportunity to show my little girl that getting poked in the arm is not so bad), I just want to get off of drugs.

    Will check out links you provided in morning.
    --Trish (Bork)
    TROPICAL TRADITIONS REFERRAL # 7625207
    http://pregnantdiabetic.blogspot.com
    FOOD PORN BLOG! http://theprimaljunkfoodie.blogspot.com

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    • #62
      DFH, I have no pituitary, none, gone. I'm on all the replacement hormones or I'd be dead. Hydrocotisone, HgH, Testostrone gel, Desmopressin and of course Synthroid.
      Last edited by mikebike; 03-18-2011, 07:09 AM.

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      • #63
        Originally posted by mikebike View Post
        DFH, I have no pituitary, none, gone. I'm on all the replacement hormones or I'd be dead. Hydrocotisone, HgH, Testostrone gel, Desmopressin and of course Synthroid.
        Ah...that's high maintenance, but with a good doc, you can do quite well. My doc said the same to me about my adrenals, they were just "fried." I do testosterone injections, HCG (not HGH, that's OK), natural T3, and over the counter DHEA. For a while I did cortisol too but that went back to normal and it's OK.

        I guess some people do OK on synthroid, but that stuff just gives me the creeps. This is just opinion, but I think synthroid works ok when someone just has a simple issue with the thyroid not working well enough. Give it a little boost and things get better. If you have big, more complex problems, like a thyroid missing, or pituitary, I just don't think the old "measure TSH, take enough synthroid to get TSH in the reference range" is relaible. The endocrine system is way more complicated than that.

        Synthroid is synthetic T4. It's job is to prompt the thyroid in such a way as to get T3 where you need it to be. T3 is what really matters. Why not just take T3 instead of synthetic T4? This is the logic my doc uses, but I am oversimplifying a bit. The research my doc uses to back this up is recent and good. It is a bit more high maintenance, but that is OK with me because I feel great and never did on synthroid.

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        • #64
          DFH I kind of agree with you on the whole synthroid thing, and I take it! It seems obvious that my issues have been with conversion of T4 to T3... and I do take Cytomel as well for T3 and that shite is the bomb. But I have a doctor's appointment in April and I want to see what's going on with my levels of everything. Forever my Reverse T3 has been super high... and my guess from what reading I've done is that when I was under so much stress my body was converting my T4 to Reverse T3 instead of T3 and eventually I didn't have enough active T3 which was making me exhausted. In fact, I feel like I don't really need to take the T4, that I just needed to get rid of the stress and fix my adrenals (both of which I did) and then maybe supp with T3.

          We'll see how it goes, I'm not rushing into anything, but it's definitely in the back of my mind...
          sigpic "Boy I got vision and the rest of the world is wearing bifocals" - Butch Cassidy and the Sundance Kid

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          • #65
            Minxxa-

            I think you are on the right track.

            My doc called it "reverse T3 syndrome."

            I don't care if he called it "silly patient syndrome." I got off synthroid, used T3 only, and everything went back to normal. He does very detailed blood tests, and we go over them line by line. The difference is just amazing, really.

            Many endos won't check rT3, won't talk about it, or don't believe it. Those are the ones you want to avoid.

            There is a doc named Wilson that came up with some of this, and he may have gone a bit overboard. I read one critique that said he was trying to blame rT3 for too much. Whatever. All that matters is that we get healthy. This is bad news for the synthroid/generic makers, so naturally they are going to attack anyone that says their product isn't perfect.

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            • #66
              Originally posted by naiadknight View Post
              I read somewhere ... that there's a HEAVY link between Hashimoto's thyroiditis and celiac/ other autoimmune diseases. Hashimoto's is actually a form of hypothyroidism most people don't realize they have because their doctor does no more testing after determining they're hypothyroid.
              Yes, Hashimoto's is actually the most common cause of hypothyroidism in the United States and it's very prevalant in my family (german/irish ancestry). In fact more people have it than not... siblings, parents, grandparents, cousins, aunts, uncles. Interestingly several have also been diagnosed as Celiac. Somehow I've managed to avoid it to this point and my doc did check me for the antibodies along with the usual thyroid tests. I'm doing a pretty strict paleo (no grains or dairy at all) and I'm hoping it keeps my thyroid healthy and I'll avoid the 'family disease'.

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              • #67
                Originally posted by Dr. Bork Bork View Post
                Thanks! When I said homeopathic, I did mean "more natural".
                You may want to use terms like holistic or naturopathic instead. Homeopathy is a specific approach to healing that involves using teeny, tiny amounts of an active substance in water with the idea that the essence of it will be enough to cure you. Unsurprisingly, it is controversial.

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                • #68
                  Originally posted by DaisyEater View Post
                  You may want to use terms like holistic or naturopathic instead. Homeopathy is a specific approach to healing that involves using teeny, tiny amounts of an active substance in water with the idea that the essence of it will be enough to cure you. Unsurprisingly, it is controversial.
                  That is putting it politely! I'm on a site where people pride themselves as being skeptics and you should see them go off when you mention homeopathy. Wow. There was one topic about the NHS in the UK covering homeopathy and these skeptics were fuming about it. The popular word for it they use is "woo."

                  I get into it with them all the time about organic food too. Many of them just scoff, which is pretty dumb. I started a topic about WWFG and it went surprisingly well.

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                  • #69
                    Originally posted by DFH View Post
                    That is putting it politely! I'm on a site where people pride themselves as being skeptics and you should see them go off when you mention homeopathy. Wow. There was one topic about the NHS in the UK covering homeopathy and these skeptics were fuming about it. The popular word for it they use is "woo."

                    I get into it with them all the time about organic food too. Many of them just scoff, which is pretty dumb. I started a topic about WWFG and it went surprisingly well.
                    I originally wrote something far less polite but I changed it so as not to hurt anyone's feelings. I'm a skeptic as well, but there are people I love and respect who deeply cherish beliefs that make me grit my teeth. (They'd say the same about me.) I try to bear that in mind even on the interwebs.

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                    • #70
                      Originally posted by DaisyEater View Post
                      I originally wrote something far less polite but I changed it so as not to hurt anyone's feelings. I'm a skeptic as well, but there are people I love and respect who deeply cherish beliefs that make me grit my teeth. (They'd say the same about me.) I try to bear that in mind even on the interwebs.
                      Yeah, I know. It's weird to go into your favorite vitamin or natural food store and see a homeopathy section. I know stores need to stock what people want to buy, or customers will go somewhere else, but sheesh....

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                      • #71
                        I just read the last two posts and had to just say that I can so relate! I've been trying everything you can imagine to drop weight over the past few years with little success. I adopted the Primal/Paleo way of eating around the first of the year and still my weight won't budge, although I feel a lot better (trying to focus on the good stuff). Around the same time I found an integrative medicine physician who ran a host of blood tests and is treating things holistically. The final test results just came back the other day - normal T4 and T3 but elevated reverse T3 levels (Wilson's Syndrome), so I'm hoping between healing my leaky gut, adrenal support, stress management and a slow-release compound T3 regimen, my weight will start to move in the right direction. Reading this discussion has me cautiously optimistic.

                        I can so relate to the comment that people look at you differently!! I wasn't always overweight so I have some perspective on the difference as well. When I became heavy, I became invisible. My friends are all pretty fit and they all - even those who get this piece - still see an overweight person as someone who just isn't trying hard enough.

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                        • #72
                          I got off synthroid, used T3 only, and everything went back to normal.

                          DFH -

                          This is my diagnosis as well - just found out Friday. Did you experience hyperthyroid symptoms when you first started on the T3? My doctor tells me I may.

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                          • #73
                            DFH... I've actually read up on Wilson's syndrome and Reverse T3 a LOT. Depending on what my tests say next month I'm going to takl to my doc about it... he wasn't all that receptive last time as if it wasn't an issue, but I'm bound and determined this time to discuss it and how stress causes T4 to convert to Rt3 and take up the spots so that the T3 can't use them... and ask WHY he thinks it's not that important. Mind you, I have a great doctor, and I like him a lot... but even great docs who are open minded can sometimes be wierd about things. I really really want to try T3 only... just for a while and see how I feel.

                            How much T3 are you taking a day? Right now I'm on 10mcg/day....
                            sigpic "Boy I got vision and the rest of the world is wearing bifocals" - Butch Cassidy and the Sundance Kid

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                            • #74
                              bostonLisa- if rT3 is high, metabolism can be reduced to as much as 40% of normal. You absolutely can get it solved. I was in the same situation. Everyone thinks they can tell you how to fix and no one can, and they blame it on you!

                              I don't recall any hyper symptoms when I started T3. I think there was a warning about rapid heartbeat, and to back off meds if that happened.

                              My med bottle says 125MCG.

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                              • #75
                                Ah, I so need to find a good doctor!!

                                About 3 years ago I started seeing a wonderful ob/gyn who had an additional integrative studies degree. She is the first doctor I had who looked at my thyroid even though I've had numerous symptoms for years (probably 15 at least - I'm 43 now). She also found out my vit d was super low and also put me on synthroid, which as I'm learning isn't ideal, but at least she was trying to help me. She ordered a cortisol saliva test, which I never had done because she moved out of state to start a new practice.

                                I feel back to square one.

                                My GP and new ob/gyn just look at results and say everything looks good and order no additional tests even though I'm very symptomatic -- I feel much better since I've been eating primal for a year, but I still deal with crushing fatigue, difficulty sleeping (never feeling refreshing, difficulty falling asleep, waking in night, etc.), dry skin and hair, hair loss, tingly feet and hands, and more. It's so frustrating. I have a very stressful teaching job and from my reading, I'm now suspecting adrenal fatigue as well. I just feel like even though I've cleaned up my diet, I am still a mess (had shingles in the fall and just do not feel up to par), but my dr. looks at my blood work and says, all looks good.

                                I actually have not been on synthroid since Aug 2010. Dr. just ordered new bloodwork for me which I had done TODAY, but from everything I've read she didn't order the correct tests.

                                She ordered only TSH, T4 (free), and vit D. No T3 or reverse T3 or cortisol saliva test. What tests should I ask for?

                                I am very eager to find a good doc who will work with me to treat my symptoms and at least do a complete blood panel. DFH - your doc's site looks unbelievable, but I can't swing flying to CA. financially right now.

                                Anyone know of a good doc in eastern Va (Hampton Roads area)?

                                Glad to connect with some knowledgeable folks -- plan to read as much as possible and get myself straightened out! Thanks!
                                My journal

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