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  • #16
    IAMASK - I didn't see the comment before that your wife was told she needs to be on BC to manage the endometriosis.

    I was told the same thing.

    Now, everybody's case is different and I won't say she should get off it, but getting off of the BC was key for my recovery. I was initially put on BC to manage the pain but the pain only got worse; since endometriosis is generally an estrogen-dominant condition, taking the estrogen in pill form isn't really a great thing. I know the docs figure by suppressing ovulation they are preventing the growth of wayward endometrial tissue, or something like that... Anyway, I would urge her to do more research into this matter.

    I have been off birth control since before my diagnosis. I had only one surgery (which served as both to diagnose and to remove some of the tissue), which was 4 years ago. So it is possible to live with this condition and do well. Again, everybody's case is different, I won't pretend to know what it's like for your wife since I know some women can have stage 4 and no symptoms, and some women have stage 1 and are debilitated. It's unpredictable. Just do lots of research!


    • #17
      Glad you're looking into changing docs. Once a year for checking on thyroid levels is not nearly enough unless you've been on the same med levels and have lower symtpoms for a long time.

      My best suggestion is get yourself fully informed. The more you know the better your questions can be and the better able to interview doctors you will be. My rule of thumb is if the doctor gets irritated when you ask questions regarding information you've learned, they're not the right doc for me!

      And just to add it's completely awesome you're so involved in the process! Having family support is super important and it can be difficult when you're suffering and exhausted and everybody around you looks at you like you should just buck up and deal. :-)
      sigpic "Boy I got vision and the rest of the world is wearing bifocals" - Butch Cassidy and the Sundance Kid


      • #18
        Just to affirm Minxxa's recommendations. I, too, went 5 years without a diagnosis, constantly being told that I was 'normal' when I was hypothyroid. It is essential to be pro-active in your care. Get copies of ALL bloodwork and tests and retain them in a file for yourself. If a doctor has you on thyroid meds and doesn't schedule regular check ups (mine are every 4 mos), find another doctor.

        If you take any other hormones--birth control, replacement, etc.--you must get FREE T4 and T3 tests, not just total. Otherwise you don't know how much of your thyroid hormones are available to you.

        Some doctors don't bother testing antibodies for Hashimoto's because the treatment is the same as for any other type of hypo. Also keep in mind that the blood test is not conclusive. If the antibodies don't happen to be attacking the thyroid when the blood is drawn, you may not show enough for a diagnosis.

        I have nodules, and when one was large enough for biopsy, the pathologist diagnosed Hashimoto's. After he got the results, my endo commented that he would not have made a diagnosis based on my bloodwork because the level was too low, but biopsy results are conclusive.

        On diet--I feel best eating primal (no grains, starch, sugar, etc.), but the number of carbs is, I think, unique to individuals. I know a lot of folks who cannot lose unless they stay <20g carbs a day, but I actually lose best on closer to 30g (all veggies). In fact, if I go too low with carbs, I actually feel ill. However, in order to lose, I have to eat VERY low calorie, regardless of how clean and primal my eating is. Of course, I'm also post-menopausal, and that plus the hypo, really compromises my metabolism. But I can lose and have been losing regularly.


        • #19
          Great stuff.


          • #20
            Has she tried supplementing with iodine? I have read a lot of great things about iodine addressing the underlying issues (not just the symptoms) of hypothyroidism.



            • #21
              In psychiatry, an old-fashioned but well-studied augmenting medicine we use for depression is cytomel (T3). Psychiatrists have been using it for years, and it is thought to increase the sensitivity of the serotonin receptors, but who knows. I've never seen it work except in patients who are already hypothyroid, but euthyroid by the typical tests and on synthroid already. I always wonder if what I'm really doing it catching all the poor hypothyroid patients who don't respond to synthroid or have poor conversion. I've had endocrinologists tell my patients to stop the T3 immediately (even with normal blood test results!), btw. The endos never even had the courtesy to call me to ask what reasoning I might have to prescribe T3. And some of those patients were feeling better. It's a cheap medicine, and it works.


              • #22
                Cytomel is the bomb. That's all I got to say about that.
                sigpic "Boy I got vision and the rest of the world is wearing bifocals" - Butch Cassidy and the Sundance Kid


                • #23
                  Do you need a perception for Cytomel? Also where can one buy it?


                  • #24
                    cytomel is a prescription medicine, at least in the US, available (by prescription) at pretty much any pharmacy.


                    • #25
                      I'm finding the psychiatric use of Cytomel so very interesting. I've been on 15 mcg. of Cytomel for about a year because of my low T3 (not converting adequately with my Hashimoto's) and although I've never been really depressed, I was always easily annoyed by both small and big things. Lately, I've been finding myself in much more 'mellow' moods and much less anxious about 'little things.' I attributed it to old age (I'm 68), but perhaps it's the Cytomel!


                      • #26
                        I dunno, but the cytomel has been awesomeness!! I also have conversion issues, and it makes ALL the difference in how I feel. I went without for a week once because I ran out and couldn't get to the base to fill it (hub's in the navy), and i noticed within one day. I was more tired.. and irritable, tho that could be from the tired!

                        Em, maybe the original easily annoyed came from the lack of T3? I wonder that myself as I had the same thing... just easily irritatable. Now, most of the time, I'm like "meh, whatever." Interesting...
                        sigpic "Boy I got vision and the rest of the world is wearing bifocals" - Butch Cassidy and the Sundance Kid


                        • #27

                          My mom is officially off her thyroid medication...I am not doctor but this is what we did

                          Water fast once a week or more(only clean water to help reset digestive tract) ...see intermittent fasting also on marks main site.

                          No sugars or grains etc....typical primal and very low carb like some have already mentioned.

                          Think meat + marks big ass salad.

                          do high protein. Tyrosine(amino acid is very helpful for thyroid function)

                          Iodoral brand iodine supplement.

                          Boku superfood - superfood supplement with sea veges, single cell algae and a bunch of other stuff

                          i gave her an herb mix that i made myself with ashwaganda(adaptogen) rhodiola(stimulates thyroid) eleuthro(siberian ginseng)...another adaptogen

                          good luck

                          apple cider vinegar before meals - apparently helps with digestions....also apparently...hypothyroid is caused in many cases by digestion issues. fix you gut and see if that helps!


                          • #28
                            I hope you plan to have her blood tested in a couple of months to insure that her thyroid levels are optimum. Personally, I would never cease an Rx without a physician's supervision.


                            • #29
                              I agree that you need to walk a careful line about coming off meds. Not saying she shouldn't be by any means, that is my eventual goal as well. And I do agree that thyroid issues can be caused by digestive issues (i.e. insulin resistance and leaky gut) and fixing the diet can definitely help thyroid function, and possibly fix the original cause in some people.

                              However, thyroid issues can also come from other sources, and while all of the diet/supplement changes will aid in recovery (and eating crap and being vitamin deficient definitely make it worse), some people may still need supplementation.

                              Keeping an eye on the labs for a while to make sure the levels are within normal ranges, while keeping track of her symptoms (or lack thereof!) for a while would be a good idea.

                              It sounds like your mom is feeling tons better... and that myself is a major victory!
                              sigpic "Boy I got vision and the rest of the world is wearing bifocals" - Butch Cassidy and the Sundance Kid


                              • #30
                                Oh yeah i should have mentioned that she is going to get tested. She says she feels better than she ever has before though. She talked to a doctor beforehand and did research. She came off it once before a long time ago so she knows what symptoms to look for.