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  • Lyme Disease Anyone?

    Hi,

    I wasn't sure where to post this. After searching for 3 years why I feel so miserable and just can't seem to get better on a clean diet, I finally found out I have Lyme disease. Was wondering if anybody here dealt with Lyme disease and used natural remedies vs. antibiotics to get symptoms under control.

    Thanks,
    ~Kristina
    Started Atkins:: 1996
    Started Paleo: 2003
    Illness Started: 2008
    Started Leptin Reset: 01.10.2012
    Thighs Starting Size: 54.8 cm
    Thighs Goal Size: 53.5 cm
    My Journal: http://www.marksdailyapple.com/forum/thread46986.html

  • #2
    There have been a few threads on this that I've seen. Try to search for it in the upper right corner of the page.

    Comment


    • #3
      Kristina,

      First a question. Did you ever see that Classical Bulls Eye Rash that results from the Lyme infected tick bite?

      I want you to get this DVD ASAP, to see what you are up against & to learn the best approaches of dealing with your disease, your doctor & your insurance company. This disease is EXTREMELY political and insurance companies will want to drop you if your report Lyme Disease.
      Amazon.com: Under Our Skin: Andy Abrahams Wilson: Movies & TV

      I am so sorry to say this, but you have the Disease from HELL and you need specialized treatment ASAP. Don't just see a doctor for this, you MUST see a Lyme Disease Specialist as documented in the DVD. 3 years into Lyme disease makes it nearly impossible to cure. It is quick & easy to cure within 1 or 2 months of noticing the "Bulls Eye Rash." But unfortunately 3 years into it, this thing becomes a nightmare, because it is related to syphilis.

      Just like advanced stages of syphilis, Lyme Disease will attack the nervous system & then the brain. You will become spastic, won't be able to walk, and eventually become bed ridden, lose the ability to speak, and worse. Don't hesitate - order that video ASAP. It has the latest & greatest information on this horrible disease.

      Please do keep us informed,
      Grizz

      Comment


      • #4
        Shit, now I'm worried that I have it. Get well soon.
        In all of the universe there is only one person with your exact charateristics. Just like there is only one person with everybody else's characteristics. Effectively, your uniqueness makes you pretty average.

        Comment


        • #5
          Alex,

          Lyme Disease is nothing to fool around with. It is an EXTREMELY SERIOUS Degenerative disease that is far worse than syphilis. If you suspect you may have Lyme Disease, seek expert help ASAP, and order that DVD. Did you ever see a Bulls Eye Rash on your skin? That is proof positive that you contracted Lyme Disease.
          LDF -- Picture Gallery
          Lyme disease rash, Erythema Migran's, EM, Bull's Eye Rash - Tick bite Rashes- Lymes disease Lyme's disease lime disease limes disease

          But you can also get lyme disease without a rash!
          Some people with Lyme disease will have flu-like symptoms with or without a rash. These symptoms may include:
          * Lack of energy, which is the most common symptom.
          * Headache and stiff neck.
          * Fever and chills.
          * Muscle and joint pain.
          * Swollen lymph nodes.

          In some cases of Lyme disease, the person does not notice any symptoms during this stage.

          Stage 2: Early disseminated infection (1 to 4 months)

          If Lyme disease is not detected and treated while early symptoms are present, or if you do not have early symptoms that trigger the need for treatment, the infection may affect the skin, joints, nervous system, and heart within weeks to months after the initial infection.

          Symptoms at this stage may include:
          * Being tired.
          * Additional skin rashes in several places on your body that develop as the infection spreads.
          * Pain, weakness, or numbness in the arms or legs.
          * Inability to control the muscles of the face (paralysis of the facial nerves).
          * Recurring headaches or fainting.
          * Poor memory and reduced ability to concentrate.
          * Conjunctivitis (pinkeye) or sometimes damage to deep tissue in the eyes.
          * Occasional rapid heartbeats (palpitations) or, in rare cases, serious heart problems.

          Stage 3: Late persistent infections
          If Lyme disease is not promptly or effectively treated, damage to the joints, nerves, and brain may develop months or years after you become infected (late Lyme disease). Symptoms at this stage may include:
          * Swelling and pain (inflammation) in the joints, especially in the knees.
          * Numbness and tingling in the hands, feet, or back.
          * Severe fatigue.
          * Partial facial nerve paralysis, which usually occurs within the first few months after the tick bite.
          * Neurologic changes, including problems with memory, mood, or sleep, and sometimes problems speaking.
          * Chronic Lyme arthritis, which causes recurring episodes of swelling, redness, and fluid buildup in one or more joints that last up to 6 months at a time.

          Heart, nervous system, and joint symptoms may be the first signs of Lyme disease in people who did not have a rash or other symptoms of early infection.
          Lyme disease: Symptoms - MayoClinic.com

          Grizz

          Comment


          • #6
            Originally posted by Grizz View Post
            I want you to get this DVD ASAP, to see what you are up against & to learn the best approaches of dealing with your disease, your doctor & your insurance company. This disease is EXTREMELY political and insurance companies will want to drop you if your report Lyme Disease.
            Amazon.com: Under Our Skin: Andy Abrahams Wilson: Movies & TV
            Just an FYI: I don't know the film, but I checked and it's available for streaming if you have Netflix.
            Durp.

            Comment


            • #7
              Grizz,

              Thank you for all the info. Believe me I have read more about Lyme than I ever wanted to read and already watched the movie Under Our Skin. Like RitaRose said it's available on Netflix so I downloaded it.

              Anyway, I did not have the rash and my symptoms started about 14 months after I was bitten. That's why it has taken me so long to figure this out (well, that and the fact that most doctors are worthless). Below is a partial list of my symptoms and based on some of them I believe it has already affected my nervous system and also my brain. I have been wondering why I just cannot get full and now I think it's either from Lyme (can affect brain and cause anorexia OR insatiable hunger) or due to fungal overgrowth that I also cannot seem to get rid of. I know I have forgotten some and this IS a horrible disease. Here I have been wondering why despite a healthy, clean diet, and a relatively toxin free lifestyle (as much as that's possible these days) I am just not getting better. As many people in the movie indicated, other people AND doctors start to tell you it's all in your head. I even went to see an infectious disease specialist who handed me a prescription for Prozac. I knew better than to take it.

              My doctor happens to be a Lyme Literate MD (the only one where I live) but I don't trust him much. You would think at least HE would have thought to check me for Lyme, yet it was me who asked for the test. I first got a CD57 which came back at 20 and anything under 20 is serious illness. Then I got the Igenex Western blot and co-infections. I supposedly have Lyme and babesia, possibly others since they sometimes come back negative if there wasn't a provocation.

              I really want to take the natural route and actually my doctor felt that abx, which he uses aggressively, would be too much for me because my stomach/gut are already so messed up. Right now my plan is to do a 10 day water fast at a clinic in California (medically supervised) followed up by herbal/homeopathic remedies. I have been reading Dr. Klinghardt's guidelines for treating Lyme and co-infections and actually would love to see him. I can't get in to see him until February next year.

              So, for now I am already taking herbals, I am trying very hard to get probiotics back in but the die off is horrendous, then a water fast hopefully end of September or end of October the latest, followed by more herbals/homeopathis, and then, if still necessary, Dr. Klinghardt February 2012. He uses natural remedies and "cured" his own Lyme disease. I know once you have it you will always have it but you can get your immune system back to a point where you can live a normal life. I have "met" several people on Lyme forums who feel healthy and well - this gives me hope.

              Current Symptoms as of 08.02.2011

              Headache most mornings; usually goes away throughout day
              Abdominal distention (daily and 24/7 since 2008 but gets worse after eating - I look pregnant on an otherwise slim body)
              Brainfog
              Trouble concentrating
              Stiff neck and most of body feels stiff
              POTS (Postural Orthostatic Tachycardia Syndrome)
              Constipation
              Discomfort and sometimes pain in abdomen after eating (anything - even a small amount)
              Insatiable hunger - no matter how much I eat but the more I eat the more pain I have
              Fatigue
              Anxiety
              Depression (on and off and mostly about my health and the way I feel)
              Hypothyroidism
              Adrenal insufficiency
              Red, burning eyes
              Trouble staying asleep
              Excessive sweating
              Heat intolerant
              Cold hands and feet
              Extreme die off from probiotics and fermented foods
              Food intolerances
              Hormonal imbalance
              Swollen eye lids upon waking (mostly on right)
              Right cheek bigger than left cheek
              White spots on fingernails
              Irritability
              Sudden outbursts of anger
              Very dry skin
              Physical, mental, spiritual, and emotional exhaustion
              Inability to work full time
              Inability to stand for even a short time
              Fluid retention (especially after eating)
              Low blood pressure
              Tinnitus (not daily and has improved)
              Gallbladder attacks but no gallstones
              Bad breath (no matter how much I brush, floss, or rinse)
              Hair Loss (started around beginning of July 2011)
              Muscle Loss

              Thanks again for the reply.

              Kristina
              Started Atkins:: 1996
              Started Paleo: 2003
              Illness Started: 2008
              Started Leptin Reset: 01.10.2012
              Thighs Starting Size: 54.8 cm
              Thighs Goal Size: 53.5 cm
              My Journal: http://www.marksdailyapple.com/forum/thread46986.html

              Comment


              • #8
                Grizz: I get a few of those symptoms from time to time, but they can usually be explained by something else.
                Example: Headaches on extremely hot days or joint pain after walking for 6 hours.
                And my adhd is congenital so I doubt it is a symptom. My main worry comes from trudging through swamps and fields at least three times a week. That an I swatted a tick on my leg recently. How long does the tick take to transmit infections?
                In all of the universe there is only one person with your exact charateristics. Just like there is only one person with everybody else's characteristics. Effectively, your uniqueness makes you pretty average.

                Comment


                • #9
                  I had lyme's disease in the 6th grade, about 13 years ago now and it sucked.

                  My mom and dad noticed a clear bite mark with a red circle around it(about 4 or 5 inches in diameter) on my shoulder blade. The doctor diagnosed me after seeing it for about .5 seconds. His response was the word "Classic." I always ached everywhere, couldn't concentrate, and my grades dropped. I forgot exactly what they did but nothing seemed to work.

                  There was a span of a month during the worst of it where half of my face didn't work. Needless to say I was scared out of my mind, as well as my mother.

                  Eventually I had to get an IV put into my arm and for about 15 minutes every night and had some type of medicine put into it. This eventually stopped the systems then I was good. I think technically I will still always have it but I won't suffer the systems anymore, unless I get bit again I guess.

                  I wish I could be more helpful but I wasn't too interested in the science of it when I was 11.
                  Last edited by TerpsPwn_387; 08-21-2011, 02:45 AM.

                  Comment


                  • #10
                    Well, I wrote a long response last night and oddly it said it would have to be approved by a moderator. Still hasn't posted.

                    Grizz, thank you for all the info. I do know (now) that it's a dangerous disease and people die from it. Can't imagine how miserable I would be feeling if I wasn't eating a clean diet. I have a very, very long list of symptoms and haven't seen any improvement in my health in about 3 years. That, combined with a low CD57 (mine was 20), a positive Western blot with Igenex, and a positive test for babesia makes me think that's what it is.

                    Here's a link to my symptoms. There are actually more. I need to update the list.
                    Set Free: My Symptoms
                    Started Atkins:: 1996
                    Started Paleo: 2003
                    Illness Started: 2008
                    Started Leptin Reset: 01.10.2012
                    Thighs Starting Size: 54.8 cm
                    Thighs Goal Size: 53.5 cm
                    My Journal: http://www.marksdailyapple.com/forum/thread46986.html

                    Comment


                    • #11
                      kkcarlton,
                      I looked at your symptoms. PLEASE get yourself tested for Lyme Disease ASAP . . .

                      Grizz

                      Comment


                      • #12
                        Originally posted by Grizz View Post
                        kkcarlton,
                        I looked at your symptoms. PLEASE get yourself tested for Lyme Disease ASAP . . .

                        Grizz
                        Hi Grizz,

                        I did get tested. I am positive for Lyme and Babesia tested with Igenex. However, I do know once you start treating Lyme, other infections like Bartonella, Ehrichliosis and others often come to the surface. My doc is an LLMD but I can't get in to see him until October 14, unless they get a cancellation but he has a long cancellation list.

                        If I could get rid of the abdominal distention (VERY uncomfortable) and the constant hunger alone I would be a much happier person. Every day is a struggle not to overeat and I have gone back to counting calories. I feel I am half way there now but this coming half is going to be hard and long. Like most Lymies I cried with relief when I finally got the diagnosis, even just the CD57, and then I cried BECAUSE of the diagnosis.

                        In all these years of searching I even went to see an Infectious Disease Specialist. After discussing all my symptoms with him, and answering a few questions, he decided to do a stool test and handed me a prescription for Prozac! Why on EARTH are IDSs allowed to write prescriptions for anti-depressants? Luckily I knew better and despite all the brain fog and emotional issues that come with this disease, I KNEW deep down in my heart that that's not what I needed.

                        ~k
                        Started Atkins:: 1996
                        Started Paleo: 2003
                        Illness Started: 2008
                        Started Leptin Reset: 01.10.2012
                        Thighs Starting Size: 54.8 cm
                        Thighs Goal Size: 53.5 cm
                        My Journal: http://www.marksdailyapple.com/forum/thread46986.html

                        Comment


                        • #13
                          kkarlton,

                          Did you ever see the bulls eye rash on your skin?

                          Grizz

                          Comment


                          • #14
                            No I didn't have the rash but from what I understand many people with Lyme don't. I also read and heard that you can get Lyme and co-infections from mosquitoes now. In 2008, about a month before I started going downhill fast, I was bitten by a TON of mosquitoes or something in Mexico. I mean every part of my body that was exposed, except my face, was covered in bites. Who knows if I got it from the tick or some other bug.
                            Started Atkins:: 1996
                            Started Paleo: 2003
                            Illness Started: 2008
                            Started Leptin Reset: 01.10.2012
                            Thighs Starting Size: 54.8 cm
                            Thighs Goal Size: 53.5 cm
                            My Journal: http://www.marksdailyapple.com/forum/thread46986.html

                            Comment


                            • #15
                              I have Lyme but at the moment I'm doing very well and have not had a bad relapse for a while.

                              It started a few years ago, you'll know the story, getting iller and iller, feeling totally dreadful, my body came to a grinding halt one day and I couldn't move much. The fatigue I described as being dead but not quite.

                              Had the adrenal surges, the pain, elbow was the worst, all visual and noises hurt because it was too much stimulation.

                              For me what has worked and contributed to me functioning again is/are...Antibiotics, Doxy and Nitrofurantoin, I was also prescribed Naltrexone (to boost Immune System) took 5mls a night, herbals I took were/are Allicinmax (pure allicin derived from Garlic...I think it goes by the Brand Name Allimax in the USA), Bee Propolis, Vit C (I take Emergen-C), Vitamin B, Manuka Honey, licorice....all these helped.

                              Its a long journey, I've now found that this Primal Blueprint diet really, really helps and has stopped a decline into a relapse. I haven't used my walking stick since starting it and my stamina is building all the time.

                              You can get through this but it takes time....I treated it as a internal battle within my body. I changed strategies and played dirty many times....you have to the bloody disease is beyond awful. Unfortunately only those who have experienced know what I'm talking about.

                              I also think the Coconut Oil helps too. The Allicinmax, Manuka Honey, Bee Propolis and the Coconut Oil all have anti parasitic, anti viral properties....I feel this is the key to blasting the parasites.

                              You will get worse before better my friend, the parasitic die off will release more toxins in your body, you'll get the Herx effect but you'll come through because you know you're winning. I wish you well. x

                              Can I also say, thank you from the bottom of my heart those who have contributed to this thread re the seriousness of Lyme Disease, it's heartening to hear that people are taking it seriously and the word is spreading.


                              Incidently my GP prescribed me anti depressants too...and left to it!!! Thankfully I found a Lyme Literate Doc to treat me. I'm in the UK btw.

                              Comment

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