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Do you know anyone who recovered from a very long illness?

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  • #16
    Thanks for sharing, Jammies. That's cool that he made such an improvement. It's probably likely that he sees therapy for balance to be uncomfortably redolent of being "weak", I can sort of sense how a strong-willed and independent person would feel about that. Avoiding alcohol is definitely a good idea....and rest and staying active.

    The cliche is goddamn true, health is wealth. I sometimes cannot believe--literally cannot believe--that I hit such a roadblock in my life. I'm such a relentless hard worker and ambitious person, and this has really messed things up. But I'm determined to get back to full health, or as close to it as humanly possible.

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    • #17
      Hi Sabre,
      The two neurological disorders I know about up close and personal are very different from yours but yet could be helped by PB eating in the same way.

      I have epilepsy which started when I was 22. It was really bad for a while, seizures all the time. I got it under some measure of control when I got into weight lifting and body building. In hindsight I basically cut out all the pathogens like sugar and caffeine and generally got healthier, kinda like PB.

      Recently I have been looking into the use of ketogenic diets for the control of epilepsy. My seizures are under complete control right now on meds but I would like to reduce the amount I take due to long term side effects. The theory is that the fat involved in keto diets helps to heal the neural coating myelin and prevent "crossed wires" from happening.

      The other neurological problem is my Dad's peripheral neuropathy caused by pre-diabetes. With just a few weeks of Primal eating his pain and swelling in the lower legs has gone away completely and he has been able to get off of two BP meds because his BP has come down by 30 points. This was a case of systemic inflammation.

      So two things, fat for neural repair plus lowering inflammation that could put any pressure on damaged nerves, both apply to the healing that is going on in your head right now.

      I so understand that feeling of your life having hit a roadblock but you will get past this.

      Comment


      • #18
        Hi Sabre

        I can't really comment on the diagnosis part of your illness - I'm pretty sure half of the specialists mentioned in this thread don't even exist in NZ!

        I can however comment about the chronic nature of your illness and the frustrations you experience. I have suffer from chronic pain from scoliosis and TMJ disorder. To this day, despite some very obvious symptoms and x-rays that proove my physical problems I still have every sodding Dr tell me that its possibly psychological. There is nothing more irritating than being told you need to reduce your stress levels - like thats going to help my lock jaw? If I don't exercise I need to do more, if I do exercise I need to do less, one Dr tells me they can see how my symptoms relate to my physical problems the next one I see can't figure out how the symptoms are connected. Admittedly when I eventually accepted that my pain was chronic and likely to be something I'd have to live with forever, I was quite tearful and depressed. Part of the grieving process I suppose, but now I am in the 'making the best of what i've got' part of that process.

        The only thing that really helps my symptoms is lifestyle. I have had to turn down jobs and think very carefully about my career to find something suitable for me. I have a 50/50 desk/moving about job now, with 5 hour days, no lifting. I know how to recognise early warning signs that my pain levels are heading upwards and can take measures to halt it in its tracks. I constantly have to consider my posture, and my resting position to make sure I don't overstress myself. I can only do things I love, like knitting and cake decorating, for short periods and then I must stop or suffer the consequences.

        I don't know if you will find your miracle cure - I hope you do. But the best advice I can give you is try and figure out some coping strategies for the meantime and hope like hell that won't be like this forever. Good luck.

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        • #19
          Originally posted by Paleobird View Post
          Hi Sabre,
          The two neurological disorders I know about up close and personal are very different from yours but yet could be helped by PB eating in the same way.

          I have epilepsy which started when I was 22. It was really bad for a while, seizures all the time. I got it under some measure of control when I got into weight lifting and body building. In hindsight I basically cut out all the pathogens like sugar and caffeine and generally got healthier, kinda like PB.

          Recently I have been looking into the use of ketogenic diets for the control of epilepsy. My seizures are under complete control right now on meds but I would like to reduce the amount I take due to long term side effects. The theory is that the fat involved in keto diets helps to heal the neural coating myelin and prevent "crossed wires" from happening.

          The other neurological problem is my Dad's peripheral neuropathy caused by pre-diabetes. With just a few weeks of Primal eating his pain and swelling in the lower legs has gone away completely and he has been able to get off of two BP meds because his BP has come down by 30 points. This was a case of systemic inflammation.

          So two things, fat for neural repair plus lowering inflammation that could put any pressure on damaged nerves, both apply to the healing that is going on in your head right now.

          I so understand that feeling of your life having hit a roadblock but you will get past this.
          Hey Paleobird, kudos for the post, means a lot. I'm into bodybuilding/weightlifting too, by the way.

          If you haven't already read it, check this out:

          http://www.nytimes.com/2010/11/21/ma...pagewanted=all

          It's an article about a kid who had terrible seizures that were largely controlled by a high fat, low carb diet.

          Comment


          • #20
            Originally posted by Lizzielou View Post
            Hi Sabre

            I can't really comment on the diagnosis part of your illness - I'm pretty sure half of the specialists mentioned in this thread don't even exist in NZ!

            I can however comment about the chronic nature of your illness and the frustrations you experience. I have suffer from chronic pain from scoliosis and TMJ disorder. To this day, despite some very obvious symptoms and x-rays that proove my physical problems I still have every sodding Dr tell me that its possibly psychological. There is nothing more irritating than being told you need to reduce your stress levels - like thats going to help my lock jaw? If I don't exercise I need to do more, if I do exercise I need to do less, one Dr tells me they can see how my symptoms relate to my physical problems the next one I see can't figure out how the symptoms are connected. Admittedly when I eventually accepted that my pain was chronic and likely to be something I'd have to live with forever, I was quite tearful and depressed. Part of the grieving process I suppose, but now I am in the 'making the best of what i've got' part of that process.

            The only thing that really helps my symptoms is lifestyle. I have had to turn down jobs and think very carefully about my career to find something suitable for me. I have a 50/50 desk/moving about job now, with 5 hour days, no lifting. I know how to recognise early warning signs that my pain levels are heading upwards and can take measures to halt it in its tracks. I constantly have to consider my posture, and my resting position to make sure I don't overstress myself. I can only do things I love, like knitting and cake decorating, for short periods and then I must stop or suffer the consequences.

            I don't know if you will find your miracle cure - I hope you do. But the best advice I can give you is try and figure out some coping strategies for the meantime and hope like hell that won't be like this forever. Good luck.
            Hey Lizzie, thank you for sharing. I hope you can find ways to alleviate the pain.

            I can definitely relate to how aggravating it is to be told your symptoms have a "psychological" basis. The particularly annoying thing, though, is that in a LOT of cases, I bet they're right! Swarms of people come in complaining of some illness and a non-trivial amount of them are just anxious or miserable or hypochondriac, and this TAINTS those of us, like you and I, who really have a serious physiological injury that causes us psychological suffering. And so the doctors think "oh here's another one, have some xanax".

            I wanted to strangle my doctor when he repeatedly, despite my polite and measured contradiction of him, suggested I was possibly anxious. I have zero anxiety. I travel constantly, I'm extroverted, I love being around people, I'm ambitious, and I'm very strong mentally. My goddamn brain was ON FIRE. In fact, my natural instinct was to downplay how much physical pain I was in, and the doctors thought I was just a bit under the weather, or having a flu, or worn out, and so on.

            Anyway, I made huge improvements, and plan to keep doing so.

            Comment


            • #21
              Sorry if this has been touched on, I didn't read everything but have you ever tried acupuncture? I know 2 different people who had RA so bad they needed assistance to walk and now are off their meds and everything and are fine bc of acupuncture. One of them is my cousin and she never believed it would have worked, but she gave it a shot and it did.

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              • #22
                I haven't--thanks for the suggestion. Full disclosure though, I'm a hardened skeptic, I'm not convinced the acupuncture was the causal factor in helping those people with their RA, but who knows, anything is worth a shot.

                Comment


                • #23
                  That's fine, but I am telling you, my friend was so bad she dropped out of our college for 2 years to get things figured out. No doctor could help her. She went to acupuncture. I saw her last month for the first time in 2 years and she was a different person. She was basically in a darkened room in her bed everyday bc of migraines and couldn't move bc of RA. She is back to being normal.

                  Comment


                  • #24
                    That's really great to hear she made such improvements.

                    I sounds like she's in a similar boat to me. I'm actually taking a year out of college to get things figured out.

                    What age is she? Do you know what the cause of her migraines was?

                    Comment


                    • #25
                      I don't know that what you are describing is vertigo, but it sounds kinda similar. I have had issues with vertigo from a car accident that resulted in nystagmus (which resolved early on) and feelings of dizziness etc. The good news is that I was helped tremendously by a Physical Therapist who specialized in vertigo. He used the "Epley maneuver" on me (from that NPR article someone else quoted above) and also had me do some simple exercises that helped tremendously. The exercises were things like:
                      1. face a wall (I always did this in the shower) and imagine there is a clock on the wall in front of you. Touch the 12 on the clock then touch your chest and follow the movement of your hand with your eyes as you do so. The repeat with the 11 and so on around the clock both clockwise and counter clockwise.
                      2.lay in bed and log roll side to side as fast as you can tolerate for 5 repetitions.

                      It may be worth a try?

                      Comment


                      • #26
                        @Donne,

                        The 2nd one sounds like a scene from The Exorcist. I just need some foam coming from my mouth and bulging eyeballs rolled into the back of my head. The power of Christ compels you!

                        Seriously though, I'm glad to hear the exercises helped for you. I'm certain though that what I have isn't vertigo. I have no balance problems, I jog all the time, I feel woozy but it's the kind of wooziness you get after a few beers, or extreme fatigue. I don't feel like my balance is affected.

                        I was on a certain prescription drug for a skin problem and I believe it weakened my immune system, and when I got a viral illness of some kind my immune system was too weakened to stop it from going to my brain, and it caused inflammation, which probably crushed a part of the visual cortex. That's my best guess.

                        I was in hell for 2-4 months. True hell. Like no other suffering I've ever experienced. But I've made huge improvements. I still have a long way to go though. It's been really helpful posting here and reading your reponses.

                        Comment


                        • #27
                          Originally posted by Sabre View Post
                          That's really great to hear she made such improvements.

                          I sounds like she's in a similar boat to me. I'm actually taking a year out of college to get things figured out.

                          What age is she? Do you know what the cause of her migraines was?
                          She was diagnosed with Chronic Fatigue Syndrome, basically bc they couldn't figure anything else out. She is 24, looks great now.

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                          • #28
                            They tried to label me with that too. I absolutely refused it. Though I admit that mental fatigue has been a consequence.

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                            • #29
                              Well, I took some hardcore amazon mushrooms as a teenager and it changed my vision/perception a LOT! All the lines in a room still wiggle and dance a bit, and I have trouble telling if lines are parallel if I'm not at just the right angle to see them. For years after that trip, my eyes were very static-y, and I had AWFUL night vision. And my head just felt buzzy, like I couldn't access my thoughts properly and wasn't getting all the details from my environment I used to. But it's been like seven years and I'm pretty much back to normal now, except sometimes lines still writhe if I stare too long. Oh, and the stars on a clear night undulate like I'm looking up at the waving ocean's surface from below. But it's gotten better over time, and that was definitely brain damage.
                              Crohn's, doing SCD

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                              • #30
                                ***Note to self: Skip the Amazon mushrooms, your head already has enough problems.
                                “You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
                                ~Friedrich Nietzsche
                                And that's why I'm here eating HFLC Primal/Paleo.

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