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  • I'm caring for my 66 year old husband who has Parkinson's and is in the early stage of Lewy Body Dementia. I cook primal dinners for him and I have him drinking smoothies with coconut and MCT oil, but he eats what he wants for lunch and when we go out. He did go low carb with me years ago so he is in the habit of not eating a lot of carbs, but his view is he doesn't have much life left and he will enjoy it as much as he can so he treats himself to whatever he likes. He has a lot of digestive problems and I have suggested to him that giving up grains and milk might help, but he isn't willing to try that.

    bloodsugar101.com has evidence that side effects of diabetes can be controlled if blood glucose never goes above 140--it sounds like you have seen more evidence of that
    __________________________
    age 56, type 2 diabetes, swimmer
    low carb since 2006 thanks to Jenny, primal since Jan. 2012

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    • The woman behind bloodsugar101.com appears to have no inkling about paleo or primal. Tempting to point her in that direction ...

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      • I'm thinking of using coconut oil again, just a tablespoon a day. Up a whole lb from 90 to 91.5.

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        • Could you elaborate? I had a high-hunger weekend, so need to cut back for a few days to compensate for high calories... How a tbs of coconut oil helps you? I tried the fat fast you have described, and couldn't do it on macadamia nuts and butter.
          My Journal: http://www.marksdailyapple.com/forum/thread57916.html
          When I let go of what I am, I become what I might be.

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          • Originally posted by Pamsc View Post
            I'm caring for my 66 year old husband who has Parkinson's and is in the early stage of Lewy Body Dementia.
            That what my dad had for 17 years, so I totally understand. Sending you a HUGE squeezy hug.
            Durp.

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            • My grandpa had Parkinson's as well. It's definitely though. *big hug*
              Healthy Bucket List:
              • Summit all of Colorado's 14-ers
              • Hike the Appalachian Trail
              • Do a real pull-up
              • Run a 5k
              • Be "Hot For Training Camp"



              Check out my journey at Outdoor Amy's Blog.

              Comment


              • Originally posted by Jodis View Post
                The woman behind bloodsugar101.com appears to have no inkling about paleo or primal. Tempting to point her in that direction ...
                She's negative about several trends that are pretty well established, such as vitamin D. But she has tremendous evidence on the benefits of low carb for diabetics. For example, a study came out a few years ago which showed that diabetics who kept their BG under very tight control had worse outcomes than those who had higher BG. She pointed out that the study didn't look at people who kept their BG low by diet (or even insulin), it looked at people who kept their BG low by taking some of the more dangerous diabetes drugs.

                I imagine a spectrum from mainstream medicine to the most alternative ideas. bloodsugar101.com and the Vitamin D council are one step away from mainstream medicine--trying to correct errors in mainstream practices. Primal is another step away--still interested in scientific evidence but questioning the basis of mainstream more deeply.
                __________________________
                age 56, type 2 diabetes, swimmer
                low carb since 2006 thanks to Jenny, primal since Jan. 2012

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                • My grandmother has Parkinson's too. It is hard to watch the progression.

                  Both my grandmothers are still alive. The 89 year old was not a big meat eater, always had room for junk food, always had peppermint patties in her purse. Said she didn't like the sweet taste, so after she would eat chips because she wanted the salty taste. She has Parkinson's, BP issues, has been wheelchair bound for a few years, has some heart problems, cholesterol issues, and the start of dementia, and is on a lot of meds.

                  The 97 year old drank 1 cup of black coffee with breakfast and ate meat, veggies, and a potato for most lunch and dinners. She didn't care for sweets. She was still driving well into her 80's and was a seamstress. Amazing to me that she could see and had the manual dexterity to thread a needle! She had breast cancer in 1999. She started complaining about knee pain, in her mid 80's. She had a mild heart attack in her early 90's and is in assisted living. She questions why all this stuff is happening to her and doesn't understand how fortunate she is.

                  I know genetics plays a role, but it's so obvious to see how different their lives have been dietarily and how different their later years have been. Still doesn't help me overcome my issues, but does make me think.

                  Sbhikes, that is an awesome accomplishment! Way to go! I've read a lot of your posts and am amazed by people that can do hikes like that. Friends back home do long day hikes, 36 miles in one day stuff. I could never do it. The fibro pain and inflammation didn't even let me think about it. You must have been enjoying it so much for 28 miles to fell like 18!

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                  • Thanks for the hugs! I think part of the appeal of primal for me is that it gives me something I can control.

                    Those of you with parents/grandparents declining with chronic disease, any wisdom on what to do or not do to involve or spare my kids, who are 18 and 21? The 21 year old couldn't discipline himself to succeed in college so he is home helping with his father. I've told him I do expect that at some point the situation at home will become unpleasant enough that it will motivate him to go out and find something else to do. The 18 year old had an excellent freshman year in college and has an internship away from home for most of the summer, but she and I are close.
                    __________________________
                    age 56, type 2 diabetes, swimmer
                    low carb since 2006 thanks to Jenny, primal since Jan. 2012

                    Comment


                    • Originally posted by Pamsc View Post
                      Thanks for the hugs! I think part of the appeal of primal for me is that it gives me something I can control.

                      Those of you with parents/grandparents declining with chronic disease, any wisdom on what to do or not do to involve or spare my kids, who are 18 and 21? The 21 year old couldn't discipline himself to succeed in college so he is home helping with his father. I've told him I do expect that at some point the situation at home will become unpleasant enough that it will motivate him to go out and find something else to do. The 18 year old had an excellent freshman year in college and has an internship away from home for most of the summer, but she and I are close.
                      My MIL has Parkinson's with dementia. When we moved away due to my husbands new job, our sons took over helping. We never shielded them from good or bad days. They sit with her to give my FIL a break. I do have someone come in weekly to clean the house and cook for them. He pays the oldest daughter to come and bathe her mother a couple of times a week. Out of their 7 children, our family is the only one helping without expecting anything. The boys all tell funny stories involving my MIL and her delusions. It's just became part of the family history. One of my favorite memories is each of them taking her out on the dance floor during my oldests wedding reception, so she could "dance." I don't think you need to shield kids, just explain and be matter of fact about it. They will surprise you by rising to the challenge.
                      Female 55
                      Starting wt: 198, Goal: 135, Current with PB: 165
                      Started at a size 16 down to loose 10

                      With PB my asthma has improved, low back pain is gone, & I've got more energy

                      My Primal Journal: http://www.marksdailyapple.com/forum/thread60175.html

                      Comment


                      • Originally posted by Pamsc View Post
                        Those of you with parents/grandparents declining with chronic disease, any wisdom on what to do or not do to involve or spare my kids, who are 18 and 21?
                        After a while, it will just plain become impossible. There's no toughing it out, he will eventually need specialty care like in a hospital or hospice. A lot of Parkinson's patients become paranoid and delusional, so they won't trust you to care for them anyway.

                        My best advice is to get all of the decision making (like financial papers, medical papers, etc) wrapped up now while he's still clear-headed. Then you won't have to worry about convincing people he's competent or getting him on a good day. Other than that, joining a Parkinson's support group was a big help to my mom. My dad passed in 2003, and she is still friends with some of the people in that group, all of whom are/were in different stages of the disease. For some reason, I think it helps her now to help others going through it. My only other idea was coconut oil, but you've got that one covered, which is great. I wish I had heard about that 20 years ago.
                        Durp.

                        Comment


                        • Originally posted by Pamsc View Post
                          Thanks for the hugs! I think part of the appeal of primal for me is that it gives me something I can control.

                          Those of you with parents/grandparents declining with chronic disease, any wisdom on what to do or not do to involve or spare my kids, who are 18 and 21? The 21 year old couldn't discipline himself to succeed in college so he is home helping with his father. I've told him I do expect that at some point the situation at home will become unpleasant enough that it will motivate him to go out and find something else to do. The 18 year old had an excellent freshman year in college and has an internship away from home for most of the summer, but she and I are close.
                          I feel ya. That's why I'm doing it. Though for me it is more other diseases. Though my grandpa had Parkinson's it was cancer that took him home. My dad's father also has cancer and diabetes and heart disease. His cancer has metastasized and we don't expect him to make it through the year (honestly, I saw him at Christmas, and I'm a little surprised he's still here). My dad's mom has had a couple run ins with cancer, but all caught early and cured with just surgery to remove the small tumor.

                          On my mom's side is my grandpa who died of cancer, as did her mother (ovarian). Then my own dad has leukemia (which we are pretty sure is from exposure to farm chemicals when he worked as a farm hand over the summers in high school, plus living near El Paso his whole life, meaning near the a-bomb testing sites, copper smelters, etc.) and diabetes. My mom has high blood pressure and hypothyroidism and recurring depression.

                          Yet two of my great grandmothers (one on each side) lived well into their 90s and in pretty good health until the last year or so of their lives too.

                          So I know I've got good genes, if I take care of myself. I am hoping that my changing diet and improved health will encourage my parents. I think my mom could fix or help a lot of her problems if she went gluten free, and I know my dad could do much better if he cut out all added sugar.

                          We shall see.

                          As for the other, it's a lot for a kid to handle, but at the same time experiencing that might help him to finish his growing up (since our brains aren't "grown" until at least 25), might help boost his empathy and discipline. And I think it's also an important way to build that relationship, you can never get that time back - especially when your loved one has a progressive illness.
                          Healthy Bucket List:
                          • Summit all of Colorado's 14-ers
                          • Hike the Appalachian Trail
                          • Do a real pull-up
                          • Run a 5k
                          • Be "Hot For Training Camp"



                          Check out my journey at Outdoor Amy's Blog.

                          Comment


                          • Originally posted by OutdoorAmy View Post
                            As for the other, it's a lot for a kid to handle, but at the same time experiencing that might help him to finish his growing up (since our brains aren't "grown" until at least 25), might help boost his empathy and discipline. And I think it's also an important way to build that relationship, you can never get that time back - especially when your loved one has a progressive illness.
                            Exactly. I took my (then) young kids to see my dad when it wasn't pretty. They had been there when he was better and fun, but it didn't seem to upset them (I think they knew they were doing him some good) to see him that way. And I thought it was important for them to see that we didn't just bail on people when it got rough and they needed us.
                            Durp.

                            Comment


                            • Originally posted by Paleobird View Post
                              Pedidoc, as a fellow dog lover, my condolences.

                              sbhikes, I want to go hiking with you some time. You rock.

                              After taking a bit of an MDA break and then going on a cruise for six weeks, I'm back home and finally got caught up on this thread. Good to know that it is still here and thriving.

                              I put on some weight with the cruise which I think was mostly due to the booze since I stayed pretty much on plan otherwise. The only other thing I couldn't control was the quality of the oils things were cooked in. I've got about 12 extra pounds that I want to get rid of again. I did it before (total of 65 pounds lost) so I know I can do it again.

                              The thing that is different this time is that my time is not my own as much as it used to be. I'm taking care of my 86 year old Dad who has had some health problems lately. So, I can't just take off for an all day hike the way I used to. I am cooking breakfast and dinners for him daily.

                              The cool thing is that Dad has agreed to go Primal and has been seeing great results after just a couple of weeks. He doesn't need to lose weight but he was being plagued by shooting pains and swelling in his feet from diabetes. These are both completely gone.

                              Is anybody else here dealing with elder care in their lives?

                              My Dad moved in with me last year when my Mom died. He's 93. He had me late and I had my son late so I have a 93 yr old and a 9 year old to take care of. I'm so lucky that Dad has no dementia or Alzheimer's, although I see the beginning of his mental clarity slipping away. He eats grains or potatoes at every meal and isn't so fond of veggies or fruit though he'll eat some, so some days we are all eating different meals (I'm currently the only one primal but I hope to change that someday.

                              It can be a big strain if I take my son somewhere fun and am not there to feed Dad... For 50+ years he's not had to fend for himself so I leave lots of stuff out with post I notes. I know how lucky I am that he's doing as well as he is, but I'm seeing him starting to slip, and I worry.

                              Thank goodness I discovered this site as it's helping me with him as well as myself. I'm supplementing D, Magnesium, selenium, and omega 3 amongst other things as well as giving him a cup of 72-hr bone broth a day.

                              My heart goes out to everyone here posting their experiences and ordeals.
                              SW: 243
                              CW: 177
                              Goal: Health

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                              • I'm pretty new to Primal & MDA. I've so enjoyed the website, especially this thread. It took me awhile to get through it. The last page or two has me realizing how as women we all go through so many of the same things: diet, exercise, children woes and elderly worries. Glad the thread was started and thanks.

                                I look forward to us all becoming a more fabulous version of ourselves.
                                Primal since 4/7/2012

                                Starting weight 140
                                Current weigh 126

                                www.jenniferglobensky.blogspot.com

                                Jennifer

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