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Accidentally glutened at weekend, feel so ill. Anything I can do?

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  • #16
    Originally posted by eKatherine View Post

    It makes sense to do a biopsy for someone who is currently eating gluten. It makes sense to do it on their siblings, parents, or children, even though they may not be experiencing symptoms, because a high percentage of celiacs are asymptomatic. But it makes no sense to take someone who has already been gluten-free for an extended period of time and make them sick in order to diagnose that they are sick.

    This is my instinct. I just find the alarming insistence on the Coeliac UK website a little bit disconcerting!

    My understanding (limited so far) is that the reason to get a diagnosis would be to get the automatic screening prog that coeliacs are offered - which I think includes yearly bone density screening and possibly screening for crohns and bowel cancer. you can also get gluten free nasty baked stuff free on prescription if you are diagnosed but I wouldn't want that anyway. Both the diagnosis and the screenings would be free on the NHS.

    TBH as an EDSer with known allergies already and with a very friendly, sympathetic and open-minded GP (she needs cloning!) who is happy to read things I give her and google and admit she might not know, and has bent certain protocols for me in the past anyway, I suspect she might be able to let me have the bone density and bowel cancer screenings anyway.

    I might be inclined to do a scheduled, planned challenge with certified gluten free oats at some point, just to know for sure (whether it is all oats, or just gluten-contamimated ones). But not before my holiday!

    We have recently taken my elder daughter off grains as she was having constipation and she is so much less moody and difficult without them. My younger daughter still gets sourdough rye bread if she asks for it (but we don't offer) because I want them to come with me of their own accord, not by force. I am now wondering whether I have done my daughter a disservice by taking her off gluten before getting her tested, but it would be too horrible for her to start eating them again. She would be really distressed at the thought of it - she is only 5 but she's really good at asking if anything she is offered is safe. She hated the constipation so much and has been clear of it since giving up grains and she's a sensible girl who would rather feel well than eat bread. I don't think I'd want to put her through that. She is an EDSer too.

    We both used to have milk allergies, but by avoiding triggers and nurturing our gut a bit we managed (after a few years) to outgrow them and we can both now have hard cheese and butter (though I personally only eat unpasteurised cheese).

    My husband and youngest daughter don't have any of these issues, but he is primal and she is mostly primal (occasional sourdough excepted).

    Sorry - rambling now! Thinking aloud!

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    • #17
      Originally posted by eKatherine View Post
      I think of myself as non-celiac gluten intolerant, though I have never been tested. So for all I know, at that point when I stopped eating gluten so many years ago, an endoscopic biopsy might have tested positive. I couldn't have afforded the test though.

      I react the same for gluten-free oats as wheat.
      This is me exactly. In the last 2 weeks (I have been very low gluten for 7 years now) ingestion of rice and a samll serve of a bread product I've previoulsy tolerated well resulted in a terrible gut cramping and indigestion/almost reflux pains. Plus windy bowel and run to toot all the time. After the first i fasted for 28 hours, then ate lightly for a couple of days and felt better. After the second i realised that the less gluten/grains I eat the worse the symptoms when I eat them so I take it that my body is telling me not to do that. So I won't.

      I also dosed myself with a herbal infusion of Valerian, Carraway seeds, cardamon pads, parsley leaf, linden flower leaves, fennel seeds, rosehips, willowbark. I would have added Chamomile and wild yam but I was out of those. I made a big pot and had 3 cups over the fasting period and it really did relieve the pain.

      You may find some ease from a herbalist who can give you a specific herbal infusion for painful and cramping gut symptoms.
      Odille
      F 58 / 170cms / SW 131.5 kgs / Current 112.4/ GW 65
      following Primal Lifestyle and swimming my way to health

      My Primal Blog / Photo Blog / RedBubble shop / My Calendars / My Facebook

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