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  • #31
    Originally posted by Grizz View Post
    FYI,

    I just popped in as a public service. Y'all are being aggravated by a professional TROLL that was thrown out of 2 discussion groups, and he destroyed the Iodine Group here at MDA. Put JamesS on "Ignore" or he will succeed in destroying this thread, too.
    Oh Grizz, you give me way too much credit. I did not destroy the "iodine group" here. You had more to do with that than anyone. People were laughing at your claims about iodine and posting evidence against your claims long before I came here. I simply added more evidence against your claims from credible sources of information. So I showed:

    -The so-called "bromine detox" is a joke.

    -That iodine is very dangerous in excess doses.

    -That your buddies on Curezone are well aware of this fact since they tell people to do "salt flushes" when people poison themselves with the doses they doses your buddies are recommending. And what do salt flushes do? That's right, they get rid of all the extra iodine causing the iodine poisoning.

    -I showed that your buddies on Curezone are quacks since after having people do the salt flushes for their iodine poisoning they tell people to take even higher doses of iodine, but keep up those salt flushes since they will be poisoning themselves even more. Although your buddies will make even more money selling more iodine to these gullible people.

    And so on and so forth.

    By the way, notice how it was that I was banned from Curezone as I was posting overwhelming evidence of the dangers of excess iodine? Of course they are Curezone sponsors so they whined to the Webmaster to get me banned because the medical studies I was presenting on iodine poisoning was hurting their business. This just goes to prove that the Curezone Webmaster is not interested in health and safety, but rather the almighty dollar!

    Comment


    • #32
      Hi all,

      OP here. Thanks again for the feedback. I was interested in personal experience from people who had "conquered" UC in particular but any IBD generally. Which I think I got plenty of.

      JamesS,
      First, you seem to be a proponent for grain so maybe a paleo forum is not the best place to push that view. Having said that I did read your link on fibre and it was an interesting read, thanks. Do you have more information on the UC related points you raised in that post?

      Comment


      • #33
        Originally posted by JamesS View Post
        Problem is that so much of his information is wrong:

        Addressing "The Fiber Menace"
        My issue with your review is that he does differentiate between soluble and insoluble fiber early on, but generally just refers to it as "fiber" in the book. My understanding is that the presence of the fiber in the supplements he produces is to help bind the agents in the gut, just as you said (soluble) fiber is needed for. I think the book does not do a great job clarifying the differences between soluble and insoluble fiber and keeping those differences clear throughout the entire text. Fiber IS essential, but not as much as conventional wisdom and the standard American diet would lead you to believe, and that is the major point that I got from the book.
        Depression Lies

        Comment


        • #34
          I have been diagnosed as having Microscopic Colitis and had to live with it using diet and meds (Entocort) for a year during which I almost died..the drug left my body unable to fight pneumonia. In any case I had to get off the drug and every time I tried within 3 days I'd be running to the bathroom which meant no real life. I ate only chicken broth, nothing raw, no gluten and still couldn't trust my body. I discovered the relationship of Mast cells to my illness and began taking an antihistamine while avoiding high histamine foods. It allowed me to get off the meds. I added rice and chick peas, occasional lentils and managed but it wasn't until I came here and began eating full on Paleo that I've actually started to make progress. As my body makes the changes I find that the fat is tolerated well. I'm still cautious and prefer well cooked vegies and bone broth but I'm doing well and eating more than ever.

          There is a group of people who are living with the serious problem of bowel disease and sharing with each other what works...they have been very helpful for me and that is where I first began to hear about Paleo. Anyone interested just pm me and I'll give the link.

          Cutting out all grains is the beginning, if you're still having problems you have to figure out why...something you're eating is causing you problems.
          A Woman's Place Is In The Revolution.

          Comment


          • #35
            OP I would also recommend looking into GAPS as a treatment. Very beneficial when dealing with and healing a cranky gut. I cant speak as to UC personally, but my boy did get good results with GAPS Gut and Psychology Syndrome | GAPS Diet

            Interesting point is that the GAPS diet is also fairly low in fiber in the initial stages also. I have not yet read the fiber menace, but they do seem to have that in common from what I understand.

            Comment


            • #36
              Originally posted by solomani View Post
              Hi all,

              OP here. Thanks again for the feedback. I was interested in personal experience from people who had "conquered" UC in particular but any IBD generally. Which I think I got plenty of.

              JamesS,
              First, you seem to be a proponent for grain so maybe a paleo forum is not the best place to push that view. Having said that I did read your link on fibre and it was an interesting read, thanks. Do you have more information on the UC related points you raised in that post?
              I am not really a proponent of grain, but neither am I against it. What I keep stating is that some people do fine with and some don't. Just like some people do fine with dairy and some don't. Some people do fine with meats and some don't. Some people do fine with fruits and some don't. Some people do fine with nightshades and some don't........ That is one of the reasons I do not advocate any type of strict diet. There is no single food or group of foods that is going to work for everyone.

              As for the UC, which points exactly are you asking about? The mycoplasma involvement? Here is more information:

              How Bacteria In Cows' Milk May Cause Crohn's Disease

              Mycobacterium avium subsp.paratuberculosis in Crohn

              Is Crohn's disease caused by a mycobacterium?

              Comment


              • #37
                Originally posted by namelesswonder View Post
                My issue with your review is that he does differentiate between soluble and insoluble fiber early on, but generally just refers to it as "fiber" in the book. My understanding is that the presence of the fiber in the supplements he produces is to help bind the agents in the gut, just as you said (soluble) fiber is needed for. I think the book does not do a great job clarifying the differences between soluble and insoluble fiber and keeping those differences clear throughout the entire text. Fiber IS essential, but not as much as conventional wisdom and the standard American diet would lead you to believe, and that is the major point that I got from the book.
                Does it matter if the fibers are soluble or insoluble when he uses both in his formulas? In other words how can he claim one is safe and one is dangerous then use both in his formulas?

                Comment


                • #38
                  Originally posted by JamesS View Post
                  I am not really a proponent of grain, but neither am I against it. What I keep stating is that some people do fine with and some don't. Just like some people do fine with dairy and some don't. Some people do fine with meats and some don't. Some people do fine with fruits and some don't. Some people do fine with nightshades and some don't........ That is one of the reasons I do not advocate any type of strict diet. There is no single food or group of foods that is going to work for everyone.

                  As for the UC, which points exactly are you asking about? The mycoplasma involvement? Here is more information:

                  How Bacteria In Cows' Milk May Cause Crohn's Disease

                  Mycobacterium avium subsp.paratuberculosis in Crohn

                  Is Crohn's disease caused by a mycobacterium?
                  ]

                  Good read but it looks like nothings happened on this since these papers were published. No antibiotic followup? I always suspected bacteria was involved somehow. But then I am not sure what the link is to wheat. When I don't eat wheat the condition improves, when I do I get a reaction within 20 hours. So it seems more complex then just bacteria or wheat.

                  Anyway will try the CSD first.

                  Comment


                  • #39
                    Originally posted by solomani View Post
                    ]

                    Good read but it looks like nothings happened on this since these papers were published. No antibiotic followup? I always suspected bacteria was involved somehow. But then I am not sure what the link is to wheat. When I don't eat wheat the condition improves, when I do I get a reaction within 20 hours. So it seems more complex then just bacteria or wheat.
                    Could be you also have a gluten intolerance or wheat allergies both of which can aggravate an autoimmune condition if you consume wheat.

                    Comment


                    • #40
                      Originally posted by BestBetter View Post
                      JamesS -

                      I never give medical info - I merely share what i've done/experienced and suggest things for people to look into for themselves.

                      I'm sure you know a lot of good information, and have probably helped a lot of people. But the way you respond in this forum makes you look like a pompous know-it-all, and several of the things you've stated as fact are unproven theories.

                      And by the way, if what I'm writing is so ridiculous, then how did I single-handledly, without the help of any of the many specialists I've been to, manage to both heal my IBS AND simultaneously put my MS into remission without the use of a single MS drug?

                      Perhaps you just need to feel like you're the only one with the answers.
                      Low fiber was very important for me when I was in a flair. Fiber is the enemy when you have MC. The problem is that your so sick you can barely eat and the pain is terrible along with the big D. Not a small problem. Learning to figure out what's going on with your body takes time and all the while sometimes comes back up within a few minutes of eating...or you're running.

                      Eliminating all grains and eating low fiber is good advice in my view. Everyone is different so good luck. (I'm slow to join this thread...)

                      For those who may be dealing with what is commonly called (for lack of understanding or diagnosis)IBS there is a good forum of knowledgable people you may find helpful. http://www.perskyfarms.com/phpBB2/index.php
                      Last edited by meeme; 09-13-2012, 07:11 AM.
                      A Woman's Place Is In The Revolution.

                      Comment


                      • #41
                        Hey Solomani,
                        I've only read a few posts in this thread, hope I'm not just saying what others have already said.
                        I was diagnosed with UC about 10yrs ago. Tried a whole stack of drugs in my time, too. None of them actually had a positive effect except steroids, which I was given after a brief hospital stay. I can tell you definitively - the SCD/GAPS diet works. I've been attempting to follow this diet, with varying degrees of success, for a couple of months now. After a couple of DAYS of strict adherence (the intro part is very strict) my symptoms had dramatically improved. I'm talking going from 15+ loose bowel motions a day to maybe 6, with form. Still not normal, but completely life changing for me.
                        It's very similar to the PB, but starts off limited and you introduce new foods to see if you react. There's also a decent amount of dairy involved. We make homemade yoghurt, cream and kefir.
                        I struggle with the diet only because I'm a flat-out carb addict. I work at a pizza shop, and sometimes I can't resist a garlic bread. That night I always remember why I avoid such foods.
                        I have a friend who is studying Nutrition/Dietetics and she is appalled that I avoid grains. Apparently they're essential for life? They're basically poison for me.

                        TL;DR - Try SCD/GAPS. It works.

                        Comment


                        • #42
                          Hi Josh,
                          Brilliant. That's good to hear positive first hand experience like that. I am waiting for the book to arrive but I started avoiding foods based on the legal/illegal list on their website over the last 8 days. I can't say I've seen an improvement but then again my condition has become relatively mild since cutting wheat (I normally get inflammation/bleeding about once a week then have to use meds then OK for another week).

                          It may sound strange to people who don't suffer from an IBD but its a pretty happy moment when you get a normal bowel movement so I am very happy for you.

                          I notice your Australian as well

                          Comment


                          • #43
                            hi everyone. i know i'm a bit late to the party but was interested to hear people's link between primal/paleo and SCD.
                            i was diagnosed with ulcerative colitis about 8 years ago. was on mesalamine for awhile but it stopped working and i refused to go on steroids. i started doing my own research and went through naturopaths, acupuncture, diet changes etc. only thing that really worked were diet changes through following SCD.

                            one thing to remember though is you should eat different things depending on whether you have symptoms or are in remission. i.e., tons o veg is amazing as a preventative measure but KILLER when in flare up mode.

                            also, i found making my own yoghurt a big help.

                            i have been symptom free now for about 2 years. up until 2 months ago i still occasionally ate wheat, sugar, starches etc but if i went hog wild i would feel it the next day and really have to reign it in. early Nov i decided to go primal. mainly, because it just all made sense to me. the fact that it's similar to SCD also means it will keep me out of the loo!

                            so i totally think SCD/primal works for colitis BUT be careful when in flare up and remove all physical gut irritants like non sluble fiber (stick with squash, sweet potatoes, potatoes, apples w no skin, papaya etc) and anything with sharp edges! (nuts, seeds, berries, shrimp shells!). all other times, for me, i eat a ton of fibrous greens (kale, spianch, lettuce greens etc), lots of fat (coconut mainly) and lots o protein, limited fruit. i drink half decaf every day with no problems and even drink alcohol.

                            i also suggest reading Listen to Your Gut by Jini Patel Thompson. She experimented on herself with tons of foods and supplements so provides a nice long list of different options to try out. Main thing is, every gut is different. it takes awhile to figure yourself out, but once you do...easy peasy!

                            good luck!

                            Comment


                            • #44
                              I have IBS---it was gone until this past Dec when I OD'd on sweets and stress! I currently am just eating meats, fats, broth and liver and feel TONS better...can't do any of the fiber at the moment. I'm truly ketogenic---have you looked into the benefits of ketosis for this condition? I am also epileptic so it addresses that issue too (although I tend to think my gut flare up is directly tied to my seizures).
                              Check out my blog on nature and nurture!
                              http://thewoodsygal.com/

                              Comment


                              • #45
                                I have been on SCD now for 3 months. So far I would say I have found straight paleo to be more effective. When I was just doing the paleo diet my rate of medicine use went to 7 to 10 days. 3 months after starting SCD I have seen a slow deterioration and now use medicine daily. It could be coincidental - 3 month flare. But I don't know. Will stick with it a bit longer to see.

                                The strange thing is that my other symptoms have all abated or disappeared entirely. Its just the bleeding frequency and quantity has increased. Its all very strange to me.

                                /shrug

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