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Please help, I've been diagnosed with familial hypercholesterolemia =[

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  • #46
    He didn't say that Statins don't reduce LDL.....he just said there is no proof in the method of action....he actually says that Statins reduce the risk of dying with CVD by up to 30%..
    Strangely enough none of the major studies report mortality data for their subjects....upon further digging it was found to not be significantly different from the placebo group....In one study "The 4S Study" (arguably the most positive statin study yet) more people died while using the statins than in the placebo group (but this is insignificant apparently.) Have you even noticed that most of the Statin studies that are positive have actually been carried out by scientists who are funded by the big pharma companies? Something to think about...back later

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    • #47
      I have a friend that has a version of this, and my understanding is that unlike most people, the cholesterol he eats does cause him to have high cholesterol that causes heart damage _because of a defect in metabolism_. He had two triple bypass operations before age 50. He came for dinner and I cooked fish and rice (which I didn't eat) and baked tomatoes with olive oil and herbs and salad with olive oil and balsamic vinegar dressing. You may have to cut saturated fat and eggs, but from his experience you should still be able to eat chicken and olive oil. From my understanding, you don't need a very low fat diet, even though the doctors may say that . You need a diet low in saturated fat and cholesterol. So start by using plenty of good quality olive oil to keep your fat intake from going too low. And see how often your doctor is willing to test (or even if you can buy a home test machine) so you can self-experiment on what foods do affect your cholesterol.
      Last edited by Pamsc; 06-24-2012, 07:00 AM.
      __________________________
      age 56, type 2 diabetes, swimmer
      low carb since 2006 thanks to Jenny, primal since Jan. 2012

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      • #48
        Hi

        Dont want to hi-jack the thread, but on the subject of FH, is it something you have from birth? as this article, and a few others I have read say:

        Familial hypercholesterolaemia (FH)

        Reason I ask is I have high cholesterol since going primal, my ratios are very good, but my LDL is high. Also my mum has highish cholesterol.
        I'm 45 now, and always had lowish cholesterol until I went primal a few years ago. So if I'm reading the above article right, I havent FH?!

        Cheers
        Last edited by JonnyH; 06-24-2012, 07:42 AM.

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        • #49
          Originally posted by peril View Post
          Perhaps you could tell us exactly what is hypercholesterolemia? What are its symptoms? AFAIK it is nothing but measured high cholesterol. This "disease" is nothing by a symptom.
          Seems to me that you just did a cursory search of "hypercholesterolemia" in the absence of the operative word "familial"...an important distinction.

          The fact that you first begin your response with a question "what is hypercholesterolemia" and then end it with a dietary recommendation of how to fix it is more than a little alarming.

          A little background here first. I follow a Paleo style diet. I believe that it's the way humans were meant to eat. So, don't take this as my hopping on a Paleo board to just stir the pot. For normal people, eating Paleo is what we were meant to do.

          Genetic disorders require different recommendations. A uniform, dogmatic approach to every individual, even with genetic disorders, is incredibly reckless.

          To answer your question, though, FH is a genetic disorder that's passed down to children at birth. There's a range of severity, but the bottom line is that these individuals have problems processing LDL. Specifically, in the cases of those that have CHD (like my friend) they have problems metabolizing lipoprotein(a).

          At the end of the day, I'm not a doctor, which is why I'm scouring for information among the Paleo community regarding dietary recommendations for this disease. I believe that the current low fat diet he's been prescribed is dangerous in other ways, but if the man can't metabolize fat, I'd assume that a blanket paleo recommendation would be dangerous. I look at his condition almost as if he's a diabetic, only instead of not being able to produce insulin and metabolize glucose, he's unable to efficiently metabolize LDL. Sticking with that example, you wouldn't recommend that a type 1 diabetic eat sweet potatoes, would you?

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          • #50
            I am a bit afraid now because my lipid profile has always been bad and high cholesterol runs in our family. I am still unwilling to take a statin. I am going to stay on the Paleo Diet but decrease my fat grams to around 30 per day. I am going to keep my carbs between 20-25 for ketosis until mid Oct.

            The ratio for the food plan I have for tomorrow is: protein 28%, fat 52%, carbs 21%

            That still leaves me with more fat than protein and keeps me in the "strict paleo" category.
            Paleo Diet: 8-25-13 Wt: 185 BF% 27
            Primal Diet (Lower Fat/Carb): 9-27, Wt: 176.4
            Potato Hack Diet (Rotation): 11-12, Wt: 171.2
            Primal Diet (LF/C): 1-23-14, Wt: 159.6
            1-30-2014 - 157 (lowest weight since 2004)
            GAPS/SCD 12-29-2014
            CW: 164 GW: 130-135 CBF%: 24.38
            49 - 5'7.5"
            Macros (PFC) 30/40/30

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            • #51
              Hi MsSmith. This is an old thread, but if it's any consolation, it's still relevant. High cholesterol ran in my mother's family. Strokes and heart attacks killed the majority of her siblings. Her pappy died at age 54, long before cholesterol became a byword. Yet only 3 of her siblings died young (out of 16) - one as a soldier in WW1, one from drinking lye as a toddler, and one in his 40's from a bone infection. The rest lived from early 70's to mid 90's, through major inflammations, operations, and other of life's hazards. Oh, and the majority never ever had a weight problem. I myself had a major stroke at age 53, changed my lifestyle and eating habits drastically a few years later, going low carb and, several mild heart attacks later, have passed my 71st birthday and am hanging in there. After a very bad experience with statins, they will never pass my lips again.

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              • #52
                Originally posted by MsSmith View Post
                I am a bit afraid now because my lipid profile has always been bad and high cholesterol runs in our family. I am still unwilling to take a statin. I am going to stay on the Paleo Diet but decrease my fat grams to around 30 per day. I am going to keep my carbs between 20-25 for ketosis until mid Oct.

                The ratio for the food plan I have for tomorrow is: protein 28%, fat 52%, carbs 21%

                That still leaves me with more fat than protein and keeps me in the "strict paleo" category.
                30g fat plus 25g carb is just 370cal. You will need to eat an enormous amount of protein to meet your daily energy need. If your fat is 52% then you're getting less than 750cal per day. The numbers don't stack up

                Sent from my GT-I9505 using Marks Daily Apple Forum mobile app
                Four years Primal with influences from Jaminet & Shanahan and a focus on being anti-inflammatory. Using Primal to treat CVD and prevent stents from blocking free of drugs.

                Eat creatures nose-to-tail (animal, fowl, fish, crustacea, molluscs), a large variety of vegetables (raw, cooked and fermented, including safe starches), dairy (cheese & yoghurt), occasional fruit, cocoa, turmeric & red wine

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                • #53
                  Originally posted by Texasbill View Post

                  Genetic disorders require different recommendations. A uniform, dogmatic approach to every individual, even with genetic disorders, is incredibly reckless.



                  At the end of the day, I'm not a doctor, which is why I'm scouring for information among the Paleo community regarding dietary recommendations for this disease. I believe that the current low fat diet he's been prescribed is dangerous in other ways, but if the man can't metabolize fat, I'd assume that a blanket paleo recommendation would be dangerous. I look at his condition almost as if he's a diabetic, only instead of not being able to produce insulin and metabolize glucose, he's unable to efficiently metabolize LDL. Sticking with that example, you wouldn't recommend that a type 1 diabetic eat sweet potatoes, would you?
                  Texasbill hits the nail on the head. I see so much general bad advice being dished out in these forums especially as it pertains to cholesterol, because people are trying to apply the one diet fits all regardless.

                  I was even scoffed at for being a troll when I suggested that saturated fat ain't good for everyone and my blood tests proved it. That was even before I found out that I carry the ApoE4 genes, so yes saturated fat my body cannot process which leads to very high LDL levels.

                  If anything is out of the ordinary you need to do your own investigative work versus listen to people here blindly, that's very dangerous. It's YOUR health!


                  Sent from my iPhone using Tapatalk - now Free

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                  • #54
                    Originally posted by Paysan View Post
                    Hi MsSmith. This is an old thread, but if it's any consolation, it's still relevant. High cholesterol ran in my mother's family. Strokes and heart attacks killed the majority of her siblings. Her pappy died at age 54, long before cholesterol became a byword. Yet only 3 of her siblings died young (out of 16) - one as a soldier in WW1, one from drinking lye as a toddler, and one in his 40's from a bone infection. The rest lived from early 70's to mid 90's, through major inflammations, operations, and other of life's hazards. Oh, and the majority never ever had a weight problem. I myself had a major stroke at age 53, changed my lifestyle and eating habits drastically a few years later, going low carb and, several mild heart attacks later, have passed my 71st birthday and am hanging in there. After a very bad experience with statins, they will never pass my lips again.
                    Thank you so much for sharing. I think I have made the right decision. I prayed about it. Though none of us can control what happens, I do have to do my best (just like everyone else) and make the best decisions possible for my family.
                    Paleo Diet: 8-25-13 Wt: 185 BF% 27
                    Primal Diet (Lower Fat/Carb): 9-27, Wt: 176.4
                    Potato Hack Diet (Rotation): 11-12, Wt: 171.2
                    Primal Diet (LF/C): 1-23-14, Wt: 159.6
                    1-30-2014 - 157 (lowest weight since 2004)
                    GAPS/SCD 12-29-2014
                    CW: 164 GW: 130-135 CBF%: 24.38
                    49 - 5'7.5"
                    Macros (PFC) 30/40/30

                    Comment


                    • #55
                      Originally posted by peril View Post
                      30g fat plus 25g carb is just 370cal. You will need to eat an enormous amount of protein to meet your daily energy need. If your fat is 52% then you're getting less than 750cal per day. The numbers don't stack up

                      Sent from my GT-I9505 using Marks Daily Apple Forum mobile app
                      Yes I know my meal plan for today was incomplete when I posted last night. I went to the grocery store and stocked up on Paleo goodies. I just had some sauteed in EVOO mushrooms, spinach, and asparagus and I've got my eye on some pork chops and coconut oil as soon as I catch up on replying to all you fine folks. Thanks!
                      Paleo Diet: 8-25-13 Wt: 185 BF% 27
                      Primal Diet (Lower Fat/Carb): 9-27, Wt: 176.4
                      Potato Hack Diet (Rotation): 11-12, Wt: 171.2
                      Primal Diet (LF/C): 1-23-14, Wt: 159.6
                      1-30-2014 - 157 (lowest weight since 2004)
                      GAPS/SCD 12-29-2014
                      CW: 164 GW: 130-135 CBF%: 24.38
                      49 - 5'7.5"
                      Macros (PFC) 30/40/30

                      Comment


                      • #56
                        Originally posted by MsSmith View Post
                        Yes I know my meal plan for today was incomplete when I posted last night. I went to the grocery store and stocked up on Paleo goodies. I just had some sauteed in EVOO mushrooms, spinach, and asparagus and I've got my eye on some pork chops and coconut oil as soon as I catch up on replying to all you fine folks. Thanks!
                        If familial hypercholeaterolemia is in your family then pork chops shouldn't be looked at twice. I came into this board in search on my quest on a the great question of what oil is ok, with a focus on coconut. Truth is while for a normal person coconut oil is probably your best option, for us with familial chosterol issues it is not option at all. And a non modified paleo diet for us is no option. I've heard twice a month bacon mentioned, pork, lamb. Anyonr with this condition needs an intervention with an endrochronologisr fast! I was born with the severe side of this condition, had a transfusion at birth because my blood was thick as molasses. The doc's wanted to put me on meds at 6 years old because my levels, on a fairly regulated diet were at levels that gave certain to a heart attack by age 18. With the sideeffects, such as memory loss, in adults my mom said no way to the harmful meds. So we saw experts, who also wanted me on meds but devised a strict diet and gave me 6 months to get my levels in normal range. As a child I tried to battle with the man for once a year cheese, my weakness. His response, nope, never, and so far with pushing the limits of his dietary requirements I have found everything he said to be right. Here's the deal... No red meats or dairy, ever. Lean protein such as chicken or turkey, prefferably steamed, white meat only 1-2 times a week (meaning 1 meal, not every), cold water fish 2 times a week (3 occasionally), besides that your vegan. And so not paleo you need fiber and lots of it. Beans, legumes, whole grains are one of the most intregal portions to getting your limits low. I reach for the ancient grains as unprocessed as possible. Egg whites are ok, never a yolk, but whether egg whites have much nutritonal value that can be absorbed without the yoke is questionable, so I only consume it here and there. Trust me I wish I could go paleo, the health benefits for normal folk are there. But those of us with this problem are 1 in 500. Your body isn't just producing excess cholesterol, it genetically cannot get rid of any cholesterol on its own. High fiber is the key to getting it out without meds. Proof is in my testing and the fact I'm 33 now, no heart attacks (a near guarantee for me they thought with diet) and becaue I'm so aware I can literally feel the difference in my blood movement without enough fiber and or too many fats. Sorry for thr rant but reading some of the food suggestions on this board really scared me.

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                        • #57
                          And sorry for the typos, I'm terrible at typing on these phones

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                          • #58
                            I totally agree with the advice from MissAmandaLynn. Those of us with FH can take no short cuts and cant follow the same rules as those with normal high cholesterol. Its all in the detail. I have really struggled with the detail on diet. All I get told it eat a healthy low fat diet. I am doing the same thing. No red meat, pork, duck etc. Only chicken, turkey and fish. No seafood except scallops and mussels. Soya porridge or alpen (non sugar version) for breakfast. Mackerel salad for lunch with lots of beans and pulses. No sauces or mayo. Also no desserts, sweets, chocolate or sugars. Not even in coffee. Its a bit depressing but we have no choice?
                            What I would like is any recipes where we can at least feel like we are eating something nice. Sweet stuff is the biggest problem. Most recipes which claim to be healthy options just are not extreme enough for FH

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                            • #59
                              Originally posted by MissAmandaLynn View Post
                              If familial hypercholeaterolemia is in your family then pork chops shouldn't be looked at twice. I came into this board in search on my quest on a the great question of what oil is ok, with a focus on coconut. Truth is while for a normal person coconut oil is probably your best option, for us with familial chosterol issues it is not option at all. And a non modified paleo diet for us is no option.
                              I don't know what the diagnosis is, just that "high cholesterol runs in our family." I had an executive panel done in Dec. and I am going to compare it to the last 5 yrs. executive panels. I just haven't had the opportunity to drive all the way across town with my daughter to get them yet.

                              I haven't had coconut oil or anything with coconut in it in weeks. I am only using palm shortening, ghee, and olive oil (sparingly). I am eating a thin bone-in pork chop every day (discarding the fat portions) and either chicken breast, chuck roast, rib eye steak (also discarding the fat portions), or 90/10 ground beef every day. It will probably be mostly PC and GB or PC and chicken. Two meals. Maybe there will be days when I don't want to eat meat, but I am not going to force myself to go without it. I rarely have bacon, eggs, or cheese. I do not eat legumes. I can't tolerate beans of any kind post cholecystectomy. Grains cause excessive bloating for me, as well as heartburn. I do not eat fish/seafood of any kind. I exercise almost daily (when I can), 2 miles on the treadmill at 3 mph.

                              I appreciate your concern and I'm sorry you've had so many health problems. I hope you are doing much better.

                              ETA: Here are my new macros. I was eating meals of PC and CB and then alternating with the potato hack diet. I have stopped doing that and have increased my carb portions from around 30 to 50 grams.

                              Pork chop, ground beef, squash, raw carrot, ketchup/mustard (52 grams fat - 932 calories)
                              Pork chop, ribeye steak, squash, roasted carrots (66 grams fat - 961 calories)
                              Pork chop, chicken breast, squash, raw carrot, ketchup (36 grams fat - 830 calories)
                              Pork chop, roast, squash, cooked carrots (57 grams fat - 987 calories)

                              Option: Smaller portions of squash to add green (snap) beans. I am limited with veggies, also due to being post cholecystectomy.

                              As I said, I will probably do the PC and GB and PC and CB meals more than the roast or ribeye meals with PCs.

                              Salad with and without grilled chicken is also something I enjoy.
                              Last edited by MsSmith; 01-23-2014, 07:33 AM.
                              Paleo Diet: 8-25-13 Wt: 185 BF% 27
                              Primal Diet (Lower Fat/Carb): 9-27, Wt: 176.4
                              Potato Hack Diet (Rotation): 11-12, Wt: 171.2
                              Primal Diet (LF/C): 1-23-14, Wt: 159.6
                              1-30-2014 - 157 (lowest weight since 2004)
                              GAPS/SCD 12-29-2014
                              CW: 164 GW: 130-135 CBF%: 24.38
                              49 - 5'7.5"
                              Macros (PFC) 30/40/30

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