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  • parkinson's disease

    Posting this here only because it is the most active thread.........

    Yesterday I learned that my doc - whom I really like, even though he's CW-trained - has Parkinson's Disease. I'm upset. I need info.

    So, if anyone can point me toward research, studies, etc. that show diet, nutrition, lifestyle connections to developing the disease, I'd really appreciate it. I know I can't cure him (the ultimate role-reversal) but all things considered, he's been good to me - letting me call the shots regarding my health without any arrogance or mournful sighs - and I just need to understand more.

    Thanks.

  • #2
    Vitamin D deficiency linked to Parkinson’s disease, cognitive decline | Observations, Scientific American Blog Network

    There's also more info on the Vitamin D Council site.
    Ancestral Nutrition Coaching
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    • #3
      Thank you, Dragonfly. I'll check it out and check back later for anyone else's suggestions.

      I'm surprised that this is upsetting me so much. Probably the fact that I have no control over the situation, not exactly my comfort zone.

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      • #4
        Some avenues to look into:
        Emily Deans has mentioned brain energetics has something to do with it so ketogenic diet, CoQ10, DHA could help
        The specificity on parkisons in that it's only the dopamine area of the brain that doesn't work could suggest it's an autoimmune disease
        Some creatine may help
        http://thepaleopremise.blogspot.com

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        • #5
          Terry Wahls recovered from multiple sclerosis eating what looks like a primal diet
          Terry Wahls MD | Defeating Progressive Multiple Sclerosis without Drugs | MS Recovery | Food As Medicine

          There is a link between low Vitamin D and Parkinson's, but it's not clear if it's part of the cause, etc. I'm sure there's a genetic component to some PD cases, but vitamin D definitely has neuroprotective properties.
          Cooking Primal with Otter - Journal
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          • #6
            My dad had it for 17 years, which is a really long time. Most people only last about 15 years or less before they pass. Sorry to hear about your doc.

            Honestly, I wouldn't wish it on my worst enemy. Everyone knows about the shaking, but that's only part. I can't remember the correct term for it, but there's also something where you'll be walking and still have the forward momentum but your leg just won't come out, so you fall a lot. There's also dementia the last few years, and I think that's probably the worst part.

            Unfortunately, I haven't heard of any definitive "cure" for Parkinsons. I think part of what helped my dad was staying physically active for as long as possible. Trying to keep a sense of humor about the whole thing helps too - i'm remembering my dad trying to carve the Thanksgiving turkey one year, coming at the bird with a big carving knife that was nearly flying out of his hand, and my ex deciding this was HIS year to carve. And there was the time he was in a pub, saw another man shaking and decided he would talk to him and put him at ease. Except the guy admitted he didn't have Parkinson's, he had the DTs.

            I wish I could say it was all going to be rainbows and sunshine, but it isn't. It's hard. Really hard. Best thing you can do is be there for him and don't let "Parkinson's victim" become his identity. Make sure he's still a human, not a patient, and that you stay his friend when it gets rough.

            ETA: My parents definitely had a CW diet consisting of "healthy whole grains" and low fat food since probably the 1980s. How much influence did that have on his disease? No clue. But it wouldn't surprise me if it at least triggered something he might otherwise have been able to fend off.
            Last edited by RitaRose; 11-30-2011, 07:06 PM.
            Durp.

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            • #7
              Go to youtube and look up "David Perlmutter Parkinson's Glutathione". He is a neuroscientist who has written a couple of books on brain health that are very good. As for natural remedies, cysteine and glycine are the limitings factors for glutathione production but cysteine gets destroyed in the stomach. Supposedly undenatured whey has double bonded cysteine in it that survives the stomach, I have no research info on that but have taken Mercola's power protein which is undenatured. Here is a study on Cysteine/glycine infusion and glutathione levels.

              Deficient synthesis of glutathione underlies oxidative stress in aging and can be corrected by dietary cysteine and glycine supplementation

              I think the basic connection is that Parkinson's is at least in part due to mitochondrial oxidative stress that eventually exceeds your cell's ability to clean up, for which glutathione is responsible. Increasing glutathione levels should either slow down the damage or stop it.

              Here is a better explanation...

              FuturePundit: Parkinson's As Mitochondria Removal Disease
              Last edited by Dave Mayo; 11-30-2011, 07:44 PM.

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              • #8
                I supplement with the stable form of cysteine NAC. I mix it with what I call my Sleepy drink mix. It contains ZMA, C, D, E, Selenium, Taurine, and sometimes Tryptophan.

                Nutritional Supplement Facts for NAC
                Last edited by MightyMouse; 11-30-2011, 10:58 PM.
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                • #9
                  Thank you all for your insight.

                  My husband has an appointment with this same doctor tomorrow. Since I can't seem to let this go, here's my plan............

                  I'm sending a personal note (with my appologies for being so presumptuous) to be handed directly to the doctor, pointing him to the links mentioned in this discussion. I'm not comfortable sending him a link to the actual discussion, bringing up his personal medical issues on a public forum. I'm not ashamed to admit that this whole thing is somewhat self-serving. I'm 63 and I fully expected to "leave" him (by moving away or whatever), not the other way around.

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                  • #10
                    2 links on Glutathione - the latter a study that suggests it is not a benefit to PD.... fwiw....

                    Glutathione: The Mother of All Antioxidants
                    Mark Hyman, MD: Glutathione: The Mother of All Antioxidants

                    From:
                    http://www.parkinson.org/NationalPar...dcba48b6cb.pdf

                    What’s Hot in Parkinson’s Disease?
                    July 2009

                    Glutathione Fails to Demonstrate Significant Improvement in
                    Parkinson’s Disease Symptoms in a Recently Published Trial

                    Michael S. Okun, M.D.
                    National Medical Director, National Parkinson Foundation

                    Dr. Robert Hauser and colleagues at the National Parkinson Foundation (NPF)
                    Center of Excellence at the University of South Florida recently put a highly
                    controversial drug of interest in Parkinson’s disease to the test. They carefully
                    performed the first randomized double-blind, placebo-controlled clinical trial of
                    intravenous glutathione therapy in twenty one Parkinson’s disease patients. The
                    therapy was well tolerated but there was no significant improvement in any
                    outcome variable.

                    The National Parkinson Foundation has for many years received a large number
                    of information requests on whether intravenous glutathione therapy works in any
                    positive way for Parkinson’s disease. Glutathione acts as an antioxidant, and
                    has been found to be reduced in the brains of patients with Parkinson’s disease.
                    Some doctors have chosen to offer a fee for infusion of glutathione service. It is
                    important for patients to be aware of several important facts about glutathione
                    therapy: first, there is a lack of evidence it actually works; second, the therapy
                    requires an intravenous line which has both short and long term risks; and finally,
                    insurance does not cover the costs of this therapy.

                    There is a clear message for patients and families in the Parkinson’s disease
                    community regarding this drug. At this time there exists no compelling evidence
                    that intravenous glutathione results in any meaningful clinical improvement in
                    Parkinson’s disease patients. Patients should beware of any medical practices
                    offering a fee for glutathione treatment of Parkinson’s disease.

                    The Hauser article appeared in the journal, Movement Disorders:
                    Hauser RA, Lyons KE, McClain T, Carter S, Perlmutter D. Mov Disord.
                    Randomized, double-blind, pilot evaluation of intravenous glutathione in
                    Parkinson's disease. 2009 May 15;24(7):979-83.

                    *A letter to the editor of Movement Disorders concerning the appropriate
                    interpretation of the results for patients has been submitted by Dr.’s Jankovic
                    (Baylor), Lang (Toronto Western), and Okun (University of Florida)

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                    • #11
                      Also of note from Dr. Wahl's site, a comment from March 2012:
                      Please share how adopting the Wahls Diet

                      We have been following The Wahls Protocol for 6 weeks. My husband (57 yrs old) has been exhibiting Parkinson's symptoms and has been seeing a neurologist since July, 2011.

                      In just 6 weeks his PD symptoms show significant reversal. The most dramatic is the restoration of his balance and the return of his normal walking gait. Also affected: asthma gone in one week, blood pressure normal, speech clear, normal sleep patterns, more energy, consistently brighter mood. He has been an exercise enthusiast since age 21, which has certainly been a factor in his enduring strength and quick recovery. His right side is regaining strength, becoming more balanced each day.

                      We started to re-introduce foods at 5 weeks on the 4-day rotation and found that sweet potatoes work fine but dairy showed up within hours- general digestive upset, headache, slurred speech and nasal/throat congestion/drip. Amazing! We will continue with grain free, legume free, dairy free, 12 cups of vegetables, etc, until all symptoms are gone before we add anything.

                      Thank you, Dr. Wahls, this is very exciting!


                      Dorothy West

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                      • #12
                        strange timing for me, check out Peter's Hyperlipid blog today-- re. parkinsons and diet.
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                        • #13
                          Not nutritional advice, but you should check out LDN, low dose naltrexone.

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                          • #14
                            Originally posted by morganpmiller View Post
                            Not nutritional advice, but you should check out LDN, low dose naltrexone.
                            Can you elaborate MorganpMiller?

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                            • #15
                              Just google LDN, you will find all you need to know. It antagonizes opiod receptors for 3 to 6 hours, causing the body to then respond by producing endorphins, met-enkephalin and beta-endorphin. Met-enkephalin plays a major role in regulating the immune system. The hope is to get the immune system funtioning better to reduce inflammation, which will also hopefully improve brain function. It is believed there is an autoimmune component to parkinson's. Read about it and you will find many people have had success with LDN. You will also learn in greater detail why LDN works for so many, and so many different conditions.

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