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Seizures, epilepsy, and a natural solution

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  • #31
    Originally posted by Paleobird View Post
    In my 50 year old, older-and-hopefully-wiser hindsight,
    quit trying to be older than you are
    Optimum Health powered by Actualized Self-Knowledge.

    Predator not Prey
    Paleo Ketogenic Lifestyle

    CW 315 | SW 506
    Current Jeans 46 | Starting Jeans 66


    Contact me: quelsen@gmail.com

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    • #32
      Originally posted by quelsen View Post
      quit trying to be older than you are
      OK, Honey Badger. 49.25 Fifty just sounds more impressive.

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      • #33
        cerebellum,

        Get yourself on 10,000 IU Daily of Vitamin D3 !

        A lack of D3 is the root cause of a wide range of diseases, and neurologic disease including epilepsy is included.
        Please see full details is my Vitamin D3 report below the line.
        http://tinyurl.com/Vitamin-D-Report

        5D) Mental Problems and Vitamin D3 deficiency
        - - - Epilepsy, Depression, Schizophrenia, Mood Swings
        - - - ADD, ADHD
        - - - Brain Fog
        - - - PMS
        - - - Alzheimers, Dementia
        - - - S.A.D. ( Seasonal Affective Disorder - Winter Blues )

        The root cause of all of these amazing symptoms is that Vitamin D3 is ESSENTIAL to a properly functioning immune system.
        Epidemic of Vitamin D deficiency sweeping the world

        Grizz
        Last edited by Grizz; 07-11-2011, 01:09 PM.

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        • #34
          Originally posted by Paleobird View Post
          OK, Honey Badger. 49.25 Fifty just sounds more impressive.
          liar. that ass cant be more than 25
          Optimum Health powered by Actualized Self-Knowledge.

          Predator not Prey
          Paleo Ketogenic Lifestyle

          CW 315 | SW 506
          Current Jeans 46 | Starting Jeans 66


          Contact me: quelsen@gmail.com

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          • #35
            Captain Vitamin D To the Rescue!

            After you have been around this board for a while you will see that this same poster jumps on with this exact same message on every thread about every malady from toenail fungus to cancer.

            I agree that getting adequate vitamin D is important but I think that our bodies do a fine job of that on their own if we just get outside more often in the sunshine. I think the levels of D we supposedly "need" are vastly overstated mostly by people who want to sell you vitamin D supplements. But note how they keep referring to the doctors as the ones with the profit motive.

            Also notice how the "evidence" that D cures everything is that people with all these various conditions such as kidney failure and advanced heart problems and diabetes also test low on D. Of course they are low on D. They are sick and therefore stay inside all the time. Correlation does not equal causation.

            Vitamin D is great but it is not a "cure" for epilepsy. I wish it were that easy.
            Last edited by Paleobird; 07-11-2011, 01:28 PM.

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            • #36
              Originally posted by quelsen View Post
              liar. that ass cant be more than 25
              Vintage 1962. I swear on Mark Sisson's abdominal muscles.

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              • #37
                Originally posted by Paleobird View Post
                Captain Vitamin D To the Rescue! .... Vitamin D is great but it is not a "cure" for epilepsy. I wish it were that easy.
                True, however blood will tell. If we assume modern medicine has any validity then my Vit D levels do need supplementing. When my blood work can bak with a 14 i was working from home and as such taking at least 45 minute naps in the noon sun for over two years.

                The MD gave me Vit D.

                I have not had a seizure in 35 years so i dont have a dog in this fight, but i do suspect that vit D supplementation has validity and apparantly so does my MD.... even though i really dont trust MD's
                Optimum Health powered by Actualized Self-Knowledge.

                Predator not Prey
                Paleo Ketogenic Lifestyle

                CW 315 | SW 506
                Current Jeans 46 | Starting Jeans 66


                Contact me: quelsen@gmail.com

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                • #38
                  Originally posted by Paleobird View Post
                  Vintage 1962. I swear on Mark Sisson's abdominal muscles.
                  i am going to need a closer inspection :-)
                  Optimum Health powered by Actualized Self-Knowledge.

                  Predator not Prey
                  Paleo Ketogenic Lifestyle

                  CW 315 | SW 506
                  Current Jeans 46 | Starting Jeans 66


                  Contact me: quelsen@gmail.com

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                  • #39
                    Originally posted by quelsen View Post
                    True, however blood will tell. If we assume modern medicine has any validity then my Vit D levels do need supplementing. When my blood work can bak with a 14 i was working from home and as such taking at least 45 minute naps in the noon sun for over two years.

                    The MD gave me Vit D.

                    I have not had a seizure in 35 years so i dont have a dog in this fight, but i do suspect that vit D supplementation has validity and apparantly so does my MD.... even though i really dont trust MD's
                    I didn't know you had a history of epilepsy too. If it was 35 years ago you must have been pretty young. Childhood epilepsy is often something that people "grow out of" at puberty. Adult onset cases are actually pretty rare.
                    Because of the protective pigmentation in skin on people of African heritage, you would need to stay out in the sun longer than I would in order to get the same amount of vit D. As I said, D is great but natural D is better than a pill, IMO. But, take it any way you can get it.

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                    • #40
                      Originally posted by Paleobird View Post
                      I didn't know you had a history of epilepsy too. If it was 35 years ago you must have been pretty young. Childhood epilepsy is often something that people "grow out of" at puberty. Adult onset cases are actually pretty rare.
                      Because of the protective pigmentation in skin on people of African heritage, you would need to stay out in the sun longer than I would in order to get the same amount of vit D. As I said, D is great but natural D is better than a pill, IMO. But, take it any way you can get it.
                      yeppers really really bad. 3 hospital required seizures before age 5. countless others. on phenolbarbitol and dialantin until 12. I really wish i had not taken all those drugs
                      Optimum Health powered by Actualized Self-Knowledge.

                      Predator not Prey
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                      • #41
                        Every case of epilepsy is different and so I thought it might help everybody to share some.
                        So just in case anyone else with (or without) epilepsy cares, this is my epilepsy story:

                        I was 22 years old, in great health, a senior at Stanford University, summa cum laude GPA, a job all lined up for after graduation. In short my future was so bright I had to wear shades. It was the last semester of school, right at midterms.

                        One night I had a paper to write and an exam to study for so I put on the pot of Italian roast coffee, got out a stack of chocolate bars, and set to it as I had many a time before. About 4a.m. I finished up and decided to catch a few hours sleep before class. I had a seizure in my sleep. (My boyfriend was there and saw it).

                        I got to class the next day and somehow managed to turn in my paper and take a test despite feeling like a complete zombie. Then I went to the campus clinic and told them what had happened They (whose medical expertise stops at bandaid and aspirin) sent me to the Stanford Medical Center, one of the foremost neurological research institutes in the world. They, in their infinite wisdom, put me on Tegratol, the drug that I said felt like an Everclear hangover that never ends. I told them I din't like the side effects but they told me to take my pills like a good little girl or they would call the DMV and have my license yanked. Even medicated, I was still having seizures sometimes 2-3 times a night with 2-3 nights like that per week.

                        (For some still unknown reason, my seizures always happen at night when I sleep. I wake up just as I go into one.)

                        I had a lot of zombie time in there that I don't even remember. (That's scary). I broke up with my boyfriend and years later I had to call him and ask him why we broke up because I honestly couldn't even remember the event. I finished school, the cum laude averaged out with the crappy grades I got that last term. I tossed the meds as soon as I got diploma in hand and went completely unmedicated. I started working and was making a pile of money but was hanging out with a crowd who were putting it up their noses as fast as they made it.

                        There is nothing like self medicating into oblivion on coke and booze to try to run away from the fact that, most of the time you are in serious PAIN. This is something I think most people who have never had a seizure don't get. Somebody looks relatively OK after a seizure but they're not. A seizure is like your whole body fighting itself. Your biceps and triceps both try to contract at the same time. Your quads/hamstrings too. All over your body, these electrical impulses gone haywire are sending contradictory instructions to all your muscles. After a seizure, you feel like you have just run a marathon.

                        That is not even getting to the subject of mouth pain. The tongue is one of the most neuro-sensory dense areas on the human body. You often bite your tongue and/or the inside of your cheek in a seizure. This gets worse when it's still all swollen from the last time and you have another one and bite it again. I have scar tissue on the sides of my tongue.

                        I self medicated and partied my ass off for a couple of years after graduation. Then I finally decided to change jobs and take charge of my health. I got into body building, cut out all the booze, drugs and other chemicals such as caffeine and sugar in my life and went all natural. Probably without knowing it, my body building diet was inducing ketosis (high protein, low carb, low calories). It really worked. My seizures diminished to a manageable level, about once or twice a month.

                        Then I met a neurologist (a friend of my sister's husband) who was not a jerk and actually listened. He wanted me to be in a research study so he did all the tests he could think of for free and, finding nothing, put me on phenobarbitol which brought my seizures down to one every six months or so. I figured that was as good as it got so I went with that for years.

                        It was only 6 years ago that my Kaiser neurologist got me to try a second medication, Valproic Acid. I haven't had a seizure since. Better yet, I used to wake up at night often with the panic aura feeling of a seizure starting. This happening several times a night makes for some very patchy un-restful sleep. That NEVER happens anymore. I know I used to drink too much back when my seizures were bad. Now I feel no need. I wasn't an alcoholic, I was just afraid to go to sleep at night. Now I go months at a time without even having to think about seizures. It's wonderfully liberating.

                        Part of me going Primal is about me getting back to those body builder days (minus the 80s big hair). I don't lift heavy like that anymore but I am getting down to that level of leanness and fitness again. I am hoping to reduce my dosage of meds gradually over time as I agree that the less meds necessary the better in the long term for the health of my kidneys, liver, etc.

                        Being dependent on meds sucks but having seizures sucks a whole lot worse. I hope we can all find that individual balance point of minimum pills but maximum control.

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                        • #42
                          Paleobird,

                          Thank you very much for sharing your story; I really enjoyed learning about your experience and it does help knowing I'm not the only one there who has this condition. I usually consider myself to be a very rational person. After all, I just got an MA and I am 2 or 3 years away from obtaining my PhD in Social Psychology. It is funny, though, how one can lose all his or her sense of rationality when something serious happens to him or her, as with this case.

                          Indeed, after having no seizures for 4 years, and accomplishing that without medication, I thought that my teenage seizures were a thing of the past. These 3 seizures over the last month have been a real eye opener, because I do consider myself to be healthy. I feel lean and strong from lifting heavy things for over a year. Of course, call me stubborn, but I am unable to give up my coffee, not because I need the caffeine, but because I truly enjoy coffee for what it is: a fine drink. One of my favorite parts of waking up is preparing fresh locally roasted coffee (Chicago is a great coffee town) in my Chemex. I do not drink gallons of coffee, but I do enjoy a cup or two. Also, nothing beats a cup of fresh espresso (Metropolis's redline espresso is my favorite; also Chicago's very own).

                          I've been taking Vitamin D again as of lately, doing about 12,000 IU a day of quality pills alongside a tablespoon of Fish oil and vitamins to bolster my body. I'm also not stopping with my working out: I am taking a break from the gym by doing simplefit with my pullup bar for the next week or two and then I'll make a comeback to lifting heavy stuff (though I have to admit that I am a bit afraid to return to the gym given that is where my last two episodes occurred).

                          The doc put me on Keppra, and I am currently taking about 500 mg a day, which does not seem to be screwing with my head at all (something I was afraid the drugs will do). When I was first diagnosed with epilepsy at 16, they put me on Trileptal and Depakote, which really evoked the drowsiness all day. That's how my own story began:

                          At 16, I was playing an online computer multiplayer game with my friends while talking to them on the phone. I got a funny feeling and woke up on the floor feeling nauseous; then, I went to bed to rest because I did not know what happened to me. My friends then told me that I made odd noises through the phone, which fits the description of the seizure in retrospect.

                          The worst spectacle happened a few weeks later when I was sitting in my high school library (it was junior year), reading during study hall. I got that aura and woke up with paramedics putting me on a stretcher; I had a seizure. That was bad, given that kids could be cruel in high school, and my friends all ostracized me as they did not know how to react to what had happened. Best of all, I was right about to get my license before the seizure happened, and I had to wait an extra 6 months because of that. Even when I did get it, no one wanted to get into a car with me.

                          Fast forward to freshman year in college, and I had a span when I experienced many seizures, including some in my sleep (I remember waking up on the floor on at least one occasion). Then, one day, they stopped, though I was still on medication. After some time taking medication and not experiencing seizures, I decided to completely redo my lifestyle. I was overweight, never exercised, and was just all around unhealthy. That was also the time I decided I wanted a PhD in psychology. I took up the SAD way of losing weight, did better in school, and eventually ditched the pills.

                          It is now the summer before my third year as a grad student, right after I got my MA. The seizures are back much to my dismay. Though they appear less severe than they used to be, they are still there, and I am almost obsessing with trying to figure out "why." That factoid may be obvious by the formation of this thread.
                          --
                          Here it is, your moment of zen.

                          It's a no brainer: The journal of the cerebelum

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                          • #43
                            For people with epilepsy, caffeine=poison. You seem to be willing to move heaven and earth to get your seizures under control without an excess of meds but you won't do the one little thing of changing from regular to decaf? How rational does that sound? Your brain, your choice.

                            I'm so sorry that you had to go though being made fun of for your seizures. Kids can really be cruel. Now I understand more where that comment about being embarrassed at the gym was coming from.

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                            • #44
                              Paleobird, your story is very powerful. i'm glad you have done so well getting your life on a healthy path, and are willing to share your experience with @cerebelum.
                              This time, like all times, is a very good one, if we but know what to do with it. Ralph Waldo Emerson

                              Any given day you are surrounded by 10,000 idiots.
                              Lao Tsu, founder of Taoism

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                              • #45
                                Originally posted by Digby View Post
                                Paleobird, your story is very powerful. i'm glad you have done so well getting your life on a healthy path, and are willing to share your experience with @cerebelum.
                                It's also meant for anyone else lurking on this thread feeling confused, embarrassed, or just plain overwhelmed by the reality of the statement. "I have epilepsy". Holy f*ck! That is a tough one to deal with. When I was at my worst off on seizures, 3 a night 3 times a week, I seriously considered killing myself. I'm so glad now that I didn't. I am going to go climb Mount Kilimangaro next month. There is a life beyond diagnosis and it is worth living.

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