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  • Rheum appointment...what's next?

    Hi everyone;

    I had a 3 month follow-up with my Rheumatologist today for my RA. I started PB right after my last appointment. He was amazed at how fantastic all my joints looked. My joints look better now off steroids than they did in August ON steroids. He said if I am stable at my next appointment we will start tapering some of the other drugs I am on. These drugs are pretty nasty - so I would LOVE to get off of them.

    I was also quite surprised to find I am 25 lbs lighter than three months ago - woohooo! I am a size 8-10 now!

    While I am super pleased with these results, I still have some inflammation. I am stiff at night and still don't have the energy of a healthy person. I am thinking I need to tweak a little. I currently follow PB - but don't eat nightshades or eggs. I greatly restrict dairy as well. I eat too many nuts a eat a fair amount of fruit. Here is what I am considering:

    1. Eliminate diary 100% -currently have a little cream or butter 2-3 times/week.
    2. Eliminate nuts -easy fast food for me, but high in lectins.
    3. Go lower carb - I don't restrict carbs now.

    Any thoughts on the best way to lessen inflammation even more?

    Sorry for the obnoxious length of this post! Thanks for you thoughts!!
    Using low lectin/nightshade free primal to control autoimmune arthritis. (And lost 50 lbs along the way )

    http://www.krispin.com/lectin.html

  • #2
    It looks like you're doing a lot of the right things. So I'll say this: be patient. This is a process and your body doesn't heal overnight.
    Because if you didn't know, of that is life made: only of moments; Don't lose the now.
    ~Borges

    Comment


    • #3
      That's a good point sayrahh...thanks! I saw such a dramatic improvement in the first few weeks, that I am feeling impatient that I'm not yet a superstar.

      I am trying to decide which ONE of the above to do....not all of them. I fear if I get too restrictive, I will just collapse and eat pizza til I die!
      Using low lectin/nightshade free primal to control autoimmune arthritis. (And lost 50 lbs along the way )

      http://www.krispin.com/lectin.html

      Comment


      • #4
        Supplement Vitamin D to adequate levels.
        Omega 3 supplement. (I take a concentrated 1200 mg one.)
        Get enough sleep.
        Ancestral Nutrition Coaching
        Pregnancy Nutrition Coaching
        Primal Pregnancy Nutrition Article

        Comment


        • #5
          sounds like a good start. Please educate me as to why eggs are bad for RA. I went purely Primal quite a while back and my arthritis (AS) subsided. I eat tons of eggs, but do not have RA.
          Good luck with your journey.

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          • #6
            Originally posted by Clint W View Post
            sounds like a good start. Please educate me as to why eggs are bad for RA. I went purely Primal quite a while back and my arthritis (AS) subsided. I eat tons of eggs, but do not have RA.
            Good luck with your journey.
            Hi Clint;

            Congrats on the success with your AS - I love to hear about others who control autoimmunity with diet. I follow a low lectin version of PB based on the krispin website: http://www.krispin.com/lectin.html Eggs are listed as high lectin. I had, in the past, done some diets similar (although much lower fat) to PB and felt terrible. When I tried PB plus low lectin, the results were amazing. I am tempted to try adding eggs back, but am afraid to rock the boat. Nightshades are definitely a trigger for me.

            AS may be a little different though? Isn't the thought there that limiting refined starched can result in remission? Do you do anything other than primal diet to keep things controlled? I'm always on the lookout for pointers!

            Thanks.
            Using low lectin/nightshade free primal to control autoimmune arthritis. (And lost 50 lbs along the way )

            http://www.krispin.com/lectin.html

            Comment


            • #7
              Awesome progress. Did you tell the doc what you had changed to make such great improvements?

              Comment


              • #8
                Turmeric!
                Boswellia!
                "Let food be thy medicine and medicine be thy food." -- Hippocrates

                Comment


                • #9
                  Thanks Jammies. I only do PB. I was having to inject Enbrel, but do not anymore. I tried the no-starch/low starch diet with underwhelming results.
                  I'm almost starting to think that Red Wine is a trigger for me (horrors!!), but I'm in denial about that. ha!

                  lcme: I did tell my rheumatologist about my success and how I'm doing it. I could tell she thought I was a certifiable kook! She didn't say it, but I could tell. I work with MD's. They are fully programmed and brainwashed by big pharma. I've quit arguing with them. After all, they know it all.... just ask em.
                  hee!!

                  Comment


                  • #10
                    Originally posted by Clint W View Post
                    I work with MD's. They are fully programmed and brainwashed by big pharma. I've quit arguing with them. After all, they know it all.... just ask em.
                    hee!!
                    +1000

                    I also work with/for them and have since I was 16. I couldn't agree more with you. It's part of my job to clean up their mistakes. As a group, they know next-to-nothing (and don't care to know) about nutrition and/or natural health and are overall remarkably lacking in intellectual curiosity.
                    "Let food be thy medicine and medicine be thy food." -- Hippocrates

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                    • #11
                      *sigh* It's such a shit system isn't it. I am pre med and I have a friend who got offered an interview who is exactly how you describe. He's done a tonne of lab work, but he just doesn't have that spark to want to know the truth, he just wants to be a know-it-all and pass on "facts."

                      Comment


                      • #12
                        stick with it

                        Originally posted by jammies View Post
                        That's a good point sayrahh...thanks! I saw such a dramatic improvement in the first few weeks, that I am feeling impatient that I'm not yet a superstar.

                        I am trying to decide which ONE of the above to do....not all of them. I fear if I get too restrictive, I will just collapse and eat pizza til I die!
                        I really can sympathise - I have MCTD, and I've been on a primal diet for about six months. I got some routine blood tests back today, with spectacular results - all values back to normal, only got high ANA antibodies left. Plus the symptoms have practically disappeared. But it has taken six months, and it is SO hard to stick to the diet 100%, as I've read is important for autoimmune. Just considering knocking out nightshades, and trying to work out what's left - and it's not a lot. I do definitely have the odd splurge on grains (I challenge anyone to bake pain au chocolat for the whole family and not try any).

                        Comment


                        • #13
                          I'd imagine the next thing to try is really sorting out your omega 3/ omega 6 ratio - looking up numbers, weighing things, doing sums, being strict about keeping to 1:1. This isn't something I've done - just cutting out the veg oils, cutting back on nuts and eating more oily fish has done wonders. But you might want to keep track of the 3:6 ratio in all your meat.

                          Comment


                          • #14
                            Originally posted by TigerLily View Post
                            Turmeric!
                            Boswellia!
                            I second these
                            Also, Cat's Claw (Uņa de Gato) is getting a lot of good feedback for RA. Saventaro and Samento are great brands (you want TOA-free cat's claw). Moducare, a pine sterol supplement for autoimmune conditions, would also be worth looking into. You can get all of these at a discount from www.iherb.com

                            Have you ever been tested for Hashimoto's? It tends to go hand-in-hand with RA and both tend to be th1 cell-mediated dominance diseases, meaning that branch of the immune system is overactive. Often, stimulating the th-2 branch can help tremendously- supplements that do that are polyphenols (green tea, pycnogenol, pine bark, resveratrol and grape seed).
                            Things to possibly avoid for people with th1 dominance are echinacea, medicinal mushrooms, licorice, ginseng, beta-sitosterol and astragalus.
                            http://www.prettyinprimal.blogspot.com

                            Comment


                            • #15
                              Originally posted by deborahck View Post
                              I really can sympathise - I have MCTD, and I've been on a primal diet for about six months. I got some routine blood tests back today, with spectacular results - all values back to normal, only got high ANA antibodies left. Plus the symptoms have practically disappeared. But it has taken six months, and it is SO hard to stick to the diet 100%, as I've read is important for autoimmune. Just considering knocking out nightshades, and trying to work out what's left - and it's not a lot. I do definitely have the odd splurge on grains (I challenge anyone to bake pain au chocolat for the whole family and not try any).
                              I had MCTD....now my RNP is normal so the diagnosis is UCTD. This food stuff, the docs ignore it, but when has plaquenil EVER reversed test results???

                              ETA: I hardly eat nightshades although I don't ban them. For the most part, just try to make sure they're cooked real well.
                              Because if you didn't know, of that is life made: only of moments; Don't lose the now.
                              ~Borges

                              Comment

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