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  • Yikes, what a mess! I'm glad you have those liquid electrolytes. I wonder if adding some salt to your water (on top of the electrolytes) would help with the headache? It may just take some time to recover from the immediate issues =\ Best wishes.
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    • A most interesting day, Sunday 7/12/2013. Four scenes of the movie "Cockroaches" were shot in our daughter's barn next door. As Lori is of on vacation, Dick and I were there representing The Barn, I guess, or The Property. What an amazing business film making is.

      At 10:30am the Grips, their truck and the electrical crew and truck arrived with a very large generator on a trailer. They laid miles of cable inside and outside the barn, set up cameras and lights. Then about 11:20 arrived another 25 people from maybe 15 different crews: make-up, wardrobe, photography, lighting, sound, etc. They asked us to move horses indoors and out and around. (They were all afraid of horses.) About noon 4 actors arrived. One girl's job was to hold the priest's vestments on a hanger, up off the ground, then to dress the actor in it.

      Next they shot the first scene 6 times, then the other 3 scenes, each many times. That was it. By 3:30 they were finished. The actors left. Everyone else began undoing everything. Crews left as they finished. The Grips left last, having cleaned up everything. Finally one of the production crew in the last van gave us a check for Lori for property rental and they left. All done and gone.

      Tonight at 2:30am they'll do it all again in the Long Beach Aquarium of the Pacific.

      These jobs are all "Hurry up and wait" kinds of jobs. A crew is called and it goes into immediate full-speed-ahead action. Then it sits around and waits for 3 hours and then does it again. At one point a strut for a mike fell down and the grips all rushed over. They travel all over the place. The make-up lady said she worked about 1 in 2-3 months, but makes $28,000 in the working month. (She did very little. this is a 'natural' shoot.) When she's not working she spends 2 hours in the morning, and 2 at night, looking for the next job. I think that sounds pretty nice. This as a low-budget, non-union shoot.

      The priest was an Irishman who is clearly a drunk, although he was sober as a judge today, and quite the character. But a good actor I think. One cameraman had worked at the Academy Awards, outside on the red carpet and said he'd made $3000 for 15 hours work (that's $200/hr, but a long day.)

      They also have 'locaters'. People whose job is to travel around picking locations for shoots. The producers spent 5 years raising the money for the film. Then they spend all the money in 23 days and hope and pray they have a great product 'in the can'. Next they have to 'sell' the product. It's really an amazing business.

      - - - - - - - - -
      I'm feeling somewhat better but the diarrhea is still with me. I've learned a lesson. I have not 'cured' the IBS. The doctor is right, it's in remission and just waiting to jump out and tear me up. I guess it will never be really gone.
      Last edited by Cryptocode; 07-21-2013, 05:21 PM.
      "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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      • Originally posted by namelesswonder View Post
        Yikes, what a mess! I'm glad you have those liquid electrolytes. I wonder if adding some salt to your water (on top of the electrolytes) would help with the headache? It may just take some time to recover from the immediate issues =\ Best wishes.
        My Blood and Urine tests are in, not the poop tests.
        Here are the Electrolytes:

        Component Standard Range Your Value
        SODIUM 135 - 145 mEq/L 130
        POTASSIUM 3.5 - 5.0 mEq/L 3.3
        CHLORIDE 101 - 111 mEq/L 96
        CO2 21 - 31 mEq/L 26

        Yes, I'm low in Sodium, Chloride, Potassium (a little) and Carbon Dioxide (somewhat).

        I have been taking electrolytes and didn't have any headaches yesterday.
        "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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        • So, I finished the CIPRO day before yesterday. No help there. My G.I. doctor said to quit the anti-diarrhea medicine that Urgent care had given me and take. Ahh, now I remember that. Cholestyramine . It was the only thing that helped me before when I had this, acute diarrhea.

          Cholestyramine or colestyramine (Questran, Questran Light, Cholybar) is a bile acid sequestrant, which binds bile in the gastrointestinal tract to prevent its reabsorption. It is a strong ion exchange resin, which means that it can exchange its chloride anions with anionic bile acids in the gastrointestinal tract and bind them strongly in the resin matrix. The functional group of the anion exchange resin is a quaternary ammonium group attached to an inert styrene-divinylbenzene copolymer.

          Cholestyramine removes bile acids from the body by forming insoluble complexes with bile acids in the intestine, which are then excreted in the feces. When bile acids are excreted, plasma cholesterol is converted to bile acid to normalize bile acid levels. This conversion of cholesterol into bile acids lowers plasma cholesterol concentrations.

          Bile acid sequestrants such as cholestyramine are primarily used to treat hypercholesterolemia, but can also be used to treat the pruritus, or itching, that often occurs during liver failure, due to the liver's inability to eliminate bile.

          Cholestyramine is also used to prevent diarrhea in Crohn's disease patients who have undergone ileal resection. The terminal portion of the small bowel (ileum) is where bile acids are reabsorbed. When this section is removed, the bile acids pass into the large bowel and attract water due to their osmotic effect, causing diarrhea. Cholestyramine prevents this increase in water by making the bile acids insoluble and osmotically inactive. Post-ileal resection patients should use this medication cautiously, however, because bowel surgery heightens the occurrence of small-bowel obstructions, and there are several reports in the medical literature of Cholestyramine causing bowel obstructions.

          Cholestyramine is also used in the control of the diarrhea form of Irritable Bowel Syndrome (IBS-D), as well as in the treatment of Postcholecystectomy syndrome chronic diarrhea. Cholestyramine is also useful in treating post-vagotomy diarrhea.

          Cholestyramine can also be used in the treatment of Clostridium difficile infections, in order to adsorb toxins A and B, and reduce the diarrhea and other symptoms that these toxins cause. However, because it is not an anti-infective it is used in concert with vancomycin.

          Dose: 1 packet daily, at night. It was developed to reduce cholesterol but was replaced by statins at this. But it's great for IBS-D.

          Now I'm also taking penicillian for the sore tooth implant also resulting from whatever caused all this.

          Went to the second No-smoking class last Monday. I won't set a quit date until I'm back to reasonable health.
          "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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          • This time it was the doctor's that screwed up, and I also did by taking their advice. It went this way:

            I've been taking electrolytes since the acute diarrhea started. Then, after the G.I. doctor prescribed Cholestyramine he sent an email to my GP to watch my test results. But my GP is apparently en vacans and has a replacement. The replacement sent me an urgent email to pick up his prescribed K-Tab and take 4/day for 2 days, then get another blood test for electrolytes.

            An ha. I did (not thinking this through). But after reading again about KCl I went into slow mode; don't move if you can help it.
            Because the additional KCl on top of the electrolytes I'd been taking for a week now would be a big overload. KCl is what they inject into death row prisoners to cause a massive and deadly heart attack. So I survived yesterday. but with acute diarrhea again, definitely an overload condition. Without this it was getting better, no longer acute. So today I'm all punky again.

            I won't be taking the second day's worth. But I was most interested to know that KCl in 10mg tablets, slow release, is available from somewhere. The lowest I can find is 20mg. (They could be cut in 1/2.)
            "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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            • Kaiser's new urine tests for glucose and Ketones are testing for diabetics with ketoacidosis. For both combined: critical DKA figure are a BG over 13mmol/L combined with ketones over 1mmol/L,
              "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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              • Today is 8/21/13. I should have been dating each post, otherwise tracking does little good. I see from the editing date that the acute diarrhea started 7/20/13. So it's been 1 month. It seems a lot longer, lots.

                Finally today I feel much better. So far there has been nothing out but gas and urine. It's clear that in me the functional cause of diarrhea is the inability of the colon to remove water and send it to the bladder - when that starts working diarrhea stops.

                I had problems taking the cholestryamine after 6 days, each time. By then I'd be so bloated and packed up I had to stop taking it to clear out. Then I'd wait 2-3 days and start again. The last two weeks I haven't taken any. Now I wonder if it really helps, because what seems most effective is a good clean diet. So now that I'm seeing results I'm more afraid of eating out - anywhere. Maybe this will fade.

                Thank you Wonder, Janie, and Janagam for you comments and interest. I've been so focused on diarrhea for a month that I must apologize for not replying. I'll go back and read them again.

                I've been going to the no-smoking classes but done nothing about stopping. Dealing with diarrhea and an infected tooth is all I can deal with at one time. No the oral surgeon wants to do some periodontal work on the non-infected implant because the bone has withdrawn from the implant, and it's solidly anchored in a large bridge so that it can't be removed.

                But I'm still going to stop smoking. Dick has agreed to eat paleo every day that I don't smoke. Hurray! That's a huge motivator.
                Last edited by Cryptocode; 08-23-2013, 05:13 PM.
                "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

                Comment


                • So sorry your gut is still being such a pill. My latest kick is the Specific Carbohydrate Diet, which deals a lot with chronic diarrhea as well as HEALING celiac disease! You might want to look into it. Check out scdlifestyle.com. The original book "Breaking the Vicious Cycle" is really good at explaining the mechanics and all that's wrong with guts like ours, but intro diet it describes does not work for me because it's very dairy heavy. The website I mentioned has a much better diet, which starts off with basically chicken soup!
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                  • Originally posted by namelesswonder View Post
                    So sorry your gut is still being such a pill. My latest kick is the Specific Carbohydrate Diet, which deals a lot with chronic diarrhea as well as HEALING celiac disease! You might want to look into it. Check out scdlifestyle.com. The original book "Breaking the Vicious Cycle" is really good at explaining the mechanics and all that's wrong with guts like ours, but intro diet it describes does not work for me because it's very dairy heavy. The website I mentioned has a much better diet, which starts off with basically chicken soup!
                    8/24/13
                    Thanks. I'll definitely check it out. Turns out I'm not over it after all. Big Rats. Yesterday was good. Today is bad.
                    "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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                    • 8/30/13

                      Ok, here's where I am. I took chlorestryamine for 1.5 months. Unfortunately I don't remember how it worked (the effects specifically) last time I took it about 6 years ago when I was on SAD. Then I took about 1/4 of the full prescription and then had constipation for the next 6 years until 4 months after starting PB.

                      This time, at first, it causes constipation in 6 days. So then I'd stop taking it until I pooped, usually 2-3 days. After 1.5 months the constipation effect had decreased to occurring in 3 days.

                      Next I read a lot of threads and blogs on diarrhea, and Wonder's advice, and did 2 days of low-fat chicken broth, saltines, and 1 green banana. The 'low-fat' was not the recommendation, but because I'd determined that the infection and antibiotics had caused a great reduction in gut bacteria and may have introduced some bad bacteria which was somehow causing my liver to pump out a lot more bile. I reasoned that eating fats would just cause more bile production. This reasoning still seems correct but I hate low-fat chicken broth.

                      On day 3 I added BRAT - Bananas, R, applesauce, and T. By the end of that day I was squirting out quarts and quarts of clear liquid. Oh sad. Think of all those electrolytes and de-hydration.

                      OK, so I gave that up. I searched for chlorestryamine on the forum and found a thread of another woman who also had no gall-bladder and massive diarrhea. The commenters said the chlorestryamine was the only solution in this situation but to cut the dose. Brilliant. Why am I so stupid, that idea never occurred to me. I still behave toward doctors in a thoroughly brain-washed way. After all, chlorestryamine worked before and now it didn't because it caused constipation too soon. It's an obvious step. But this woman has been taking chlorestryamine for years, she was on it permanently from her doctor. It has some bad side effects similar to those from statins.

                      I hate and loathe the stupid doctor that led me to having to have my gall-bladder removed. She insisted I take fiber supplements. Mark's blog today was hilarious because it was so sad.

                      So last night I measured the little scoop, it's 1 Tsp. I took 1 tsp, 1/2 a dose. We'll see how that works. Dick had planned dinner only for himself and was angry when I said I had changed my mind, that I was going to eat dinner. So we were both angry and I was starving. I had some tabouli I'd bought to try, and some meat.

                      This morning I had 2 eggs in butter, no bacon. So far no diarrhea but I expect some later today. It takes a while to work.
                      Last edited by Cryptocode; 09-06-2013, 04:10 PM.
                      "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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                      • 9/5/12
                        So far, so good. Two nights of 1tsp. Each night I consider the days elimination and adjust the dosage. So last night, after too loose a stool in too small pieces, I used a skimpy 1tsp. Good results this morning. It had the form of a whole poop. Not the best consistency but improving.

                        I sure hope I don't have to take this for life. The difference between Chlorestryamine on CW and PB is surprising. My gut must be much healthier even accounting for all the antibiotics than it was on CW. The response is very much quicker as well as a lower dose. I wish my damned G.I. doc knew anything about nutrition.

                        Bad news. Dick had his yearly blood tests. His parents lived well into their 90's in perfect health, although his dad was very overweight. So is Dick, but not quite as much. His test results are that Dick is at the very top of the prediabetic range, in fasting glucose and A1c. His first reaction was anger and denial. He's a bread fiend. Last night we had shrimp, marinara sauce, rice noodles. He added 3 slices of bread and he thought this was good. It's going to take a long time, and it's his decision. But I sure hope he makes it and carries through.
                        Last edited by Cryptocode; 09-06-2013, 04:10 PM.
                        "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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                        • 9/6/13
                          Today I felt good enough to exercise:
                          Swats I (Wall) 15
                          Push Ups I (Wall) 35
                          Plank I 15 seconds
                          Plank Oblique left I 15 seconds
                          Plank Oblique right I 15 seconds

                          Two weeks ago:
                          Swats I (Wall) 10
                          Push Ups I (Wall) 10
                          Plank I 10 seconds
                          Plank Oblique left I 10 seconds
                          Plank Oblique right I 10 seconds

                          There actually was improvement.
                          "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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                          • 9/25/13

                            Oh God!

                            Well, 1.5 weeks ago I licked the diarrhea, for almost 1 week. No diarrhea, no medicine. Then our son bought at foreclosure an industrial building in TN. We talked daily and often for 3 days. Right after he called to say he bought it my stomach went into tizzy and tension, and the next day I had diarrhea again. So I'm on the medicine again.

                            Also I started the Wellbutin to stop smoking and loaded up the electronic cigarettes. Turns out even one pill causes more insomnia. First night - 1 am, second - 3 am, third - 4am, next 2 pills a day (7am and 2pam) - no sleep until after 6am, then until 9am. Now I feel like crap with a headache. So that's the end of that process. Next I'll try 5-HTP.

                            It took about 3 days after his successful purchase for me to calm down emotionally, although my stomach is not entirely calm yet. Then it began to sink in that he and Tina are moving a long way away. He's leaving us. He really needs to do this. The business atmosphere in CA is deadly. But although we've talked about it for probably 5 years, some how the reality of this never sank in.

                            Now I feel absolutely deserted. Our daughter does live next door, on our property, and does not pay any rent. But there is very little contact between us. She seems only to try to take advantage of us. And I'm afraid, terribly afraid, to ever be in a position of being dependent on her for anything.

                            And that means we have to move away. We can't move near our son in TN because it's a very small town with no hospital. I will check on the doctors available. I think I'm getting close to crying. Since I was 16 I've always been the strongest one in the whole family and took most of the family responsibilities. Now I may be breaking down.

                            Maybe it's not possible for use to move. We're not very strong physically. And we've lived here for almost 40 years, in a big house with a big barn and a 3-car garage. It's hard to even imagine how much stuff we have. Very much, maybe most would have to go. And where would we go.
                            Last edited by Cryptocode; 09-25-2013, 02:28 PM.
                            "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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                            • 10/9/13
                              No improvement on the IBS-D front. I now suspect that I have escalated to IBD. WebMD has these suggestions:
                              For IBS-D:
                              Limit or eliminate foods that may make diarrhea worse, including caffeine, alcohol, milk products, foods high in sugar, fatty foods, gas-producing foods (such as beans, cabbage, and broccoli), and the artificial sweeteners sorbitol and xylitol (often used in sugarless gum and sugarless candy).
                              Foods high in fat, including bacon, sausage, butter, oils, and anything deep-fried.
                              Cipro and Flagyl for 10 days which seemed to control the diarrhea after about 5 days of being on it. Now my stools just seem to be loose.
                              I have Crohn's and took Digestive Advantage IBS (a probiotic) for several years. Felt it helped put me in remission.
                              I take Swansons Utlimate Probiotic Formula and it has worked wonders for me. It has lessened the side affects of the Pentasa that I take with it.
                              My Gastro guy suggested VSL #35.
                              I am having success taking Genestra HM Forte probiotics, and SeaCure to heal my gut.
                              Make sure they test and retest for h-pylori and
                              Try Saccharomyces Boulardii, it helps with the diarrhea, what I am taking has 5 billion cfu.
                              For diarrhea

                              Medicines that may be used to treat severe diarrhea that does not improve with home treatment include:
                              Antidiarrheals, including diphenoxylate (such as Lomotil) and loperamide (such as Imodium), which slow intestinal movements.
                              Bile acid binding agents, including cholestyramine (such as Questran), which prevent bile acids from stimulating the colon, slowing the passage of stools and relieving diarrhea.
                              Alosetron (Lotronex), which is used for some women who have severe diarrhea and who have not responded to other treatments. This medicine slows the movement of stools through the bowels.
                              Alosetron, a medicine that decreases abdominal sensitivity, has been shown to relieve symptoms in some women who have severe diarrhea and who have not responded to other treatments. Although this medicine was previously removed from the market when its use was shown to contribute to ischemic bowel disease (which occurs when there is not enough blood flowing to the intestines), the U.S. Food and Drug Administration (FDA) reapproved alosetron for limited use in IBS. Specific guidelines for the use of alosetron require health professionals prescribing it to sign a certificate and patients to sign a consent form.

                              Four biologics are FDA approved for Crohn's. Three of the four block a protein called tumor necrosis factor (TNF) that's involved in inflammation. These drugs are often called anti-TNF drugs or TNF inhibitors. They include Cimzia (certolizumab), Humira (adalimumab), and Remicade (infliximab).

                              The fourth medication, Tysabri (natalizumab), is called an integrin receptor antagonist. It blocks certain types of white blood cells that are involved in inflammation.

                              Because they suppress the immune system, all biologics carry an increased risk of infections, which in rare cases can be serious. Cimzia, Humira, and Remicade carry a boxed warning for increased risk of serious infections leading to hospitalization or death. If someone taking a biologic develops a serious infection, the drug should be discontinued.
                              Other common side effects from biologic use include headache, flu-like symptoms, nausea, rash, injection site pain, and infusion reactions.

                              Cortiosteroids like prednisone, for example, can cause a wide range of adverse effects including weight gain, mood swings, bone loss, skin bruising, high blood pressure, and high blood sugar. Those side effects are why corticosteroids may be used to control a flare, but aren't the choice to treat Crohn's over a long period of time. "The stop-gap method, which is steroids, is something we cannot use long term," says Swaroop.

                              The drug, called vedolizumab, is being developed to treat the two main forms of inflammatory bowel disease (IBD) -- ulcerative colitis and Crohn's disease. Both arise when the immune system launches an abnormal attack on the lining of the digestive tract, leading to chronic inflammation and symptoms such as abdominal cramps, diarrhea and rectal bleeding.
                              The two studies included more than 2,000 patients with either colitis or Crohn's who had failed to get enough relief from standard medications, which include immune-system suppressors such as corticosteroids, azathioprine (brand name Imuran) and mercaptopurine (Purinethol).
                              About half of the patients had also tried the most recently developed drugs for IBD, known as anti-TNF agents. Those drugs -- infliximab (Remicade), adalimumab (Humira) and certolizumab (Cimzia) -- are given intravenously, and block an inflammatory protein called tumor necrosis factor (TNF).
                              Last edited by Cryptocode; 10-09-2013, 12:21 PM.
                              "When the search for truth is confused with political advocacy, the pursuit of knowledge is reduced to the quest for power." - Alston Chase

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                              • Phew, that's a lot. I'm glad you've had some success with the probiotics. Seems like gut bugs are a huge factor in your condition (since antibiotics affected it & probiotics help to an extent). I only heard of Seacure recently, through the SCD Lifestyle website. Do cultured foods or beverages have any affect for you (kombucha, kefir, saurkraut)?
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