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Gettin' All-Primal in the Applachians

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  • Sending good vibes and patience your way!

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    • Oh CC hang in there. I hope that things get sorted soon.
      take very good care
      G x
      "never let the truth get in the way of a good story "

      ...small steps....

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      • sending love to the family Crabcakes.
        I like badgers, books and booze, more or less in that order.

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        • So. Third is dozing, with the tv parked on the Disney channel (her choice). Docs are chasing stuff down, but nothing obvious yet - the story of Third's life. She got bumpers on her bed and a "fall risk" bracelet, which means that she may not get up or walk around without an aide (both are protocol for seizure kids). I, myself, have been admitted to the hospital (delivered four kids and had my tonsils out as an adult), but none of my kids has ever been admitted anywhere overnight - just the usual emergency room runs and the odd day surgery - so this is all new. I am starting to understand why Forager started a thread just to stay sane last time her son was in.

          Peds floor is nice, tho. Large Ronald McDonald-sponsored Family Room with showers for parents, full laundry, TV/play areas, mini kitchen, work desks, and tables and chairs. Hubby drove up to deliver toiletry bags for the both of us, and then went home. Room itself has a rocker and a cute pull-out couch for parents to sleep on, and the nurses give you sheets for it, too - unexpected nice surprise. Seeing crowds of docs and nurses, as the Clinic is a teaching hospital, and we came in just before shift change, and are just now having another shift change.

          With all this excitement, we will have covered our 2013 insurance deductible already.
          I have a mantra that I have spouted for years... "If I eat right, I feel right. If I feel right, I exercise right. If I exercise right, I think right. If I think right, I eat right..." Phil-SC

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          • I hope Third comes out of this all in the clear.

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            • Oh Crabbcakes, I just found out about Third's hospitalization, I'm sending you lots of love. I understand what you are going through, the first time was especially scary for me but I would think even more so when the doctors don't know what is going on. I myself have never been admitted so I don't what the adult section of the hospital is like but I've found the ped wards to be very supportive of families.

              How is Third feeling? I've found with my son that there are some things he takes in stride, in ways I never would have thought possible and then there are other things that really disturb him. DS has a had a port every time in the hospital and it made blood work and meds so much easier.

              I hope the hospital is able to accommodate Thirds nutritional needs.
              Life is death. We all take turns. It's sacred to eat during our turn and be eaten when our turn is over. RichMahogany.

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              • CC lots of warm fuzzies coming to you from NZ.
                "never let the truth get in the way of a good story "

                ...small steps....

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                • Originally posted by Mud Flinger View Post
                  Sending good vibes and patience your way!
                  Originally posted by NZ primal Gwamma View Post
                  Oh CC hang in there. I hope that things get sorted soon.
                  take very good care
                  G x
                  Originally posted by badgergirl View Post
                  sending love to the family Crabcakes.
                  Originally posted by canio6 View Post
                  I hope Third comes out of this all in the clear.
                  Originally posted by Urban Forager View Post
                  Oh Crabbcakes, I just found out about Third's hospitalization, I'm sending you lots of love.
                  Originally posted by NZ primal Gwamma View Post
                  CC lots of warm fuzzies coming to you from NZ.
                  Hey, ladies and gent, many thanks for the wishes - they must have worked, because we were released, and got home from the long drive at midnight last night. Long story short, she checks out all clear of many, many truly awful things, so that is a relief, but we have two things to watch for - the peds neurologist said her EEG shows she is disposed to seizures, so we will have to be watchful. Of course, he can't predict if she will have any others. The seizure she did have was on the mild end of what is possible in that department, so I am being grateful.

                  And then the peds cardiologists said that her EKGs show two different wave anomalies, and combined with her habit of fainting, sends up red flags for them, but she juuuuust squeaked out of any diagnosis. So, we are again to remain watchful, and if she starts fainting due to nothing, we are to call them and head up to the Clinic.

                  Sigh. More for me to worry about, but again, nothing really awful managed to stick. Now I just get to tell her horseback facility that she had a seizure. Shit. Because they have very special guidelines for kids with seizures, and if they somehow determine that she should stay off her pony for any length of time, I am telling you, all the life will go out of this kid. Whoo.
                  I have a mantra that I have spouted for years... "If I eat right, I feel right. If I feel right, I exercise right. If I exercise right, I think right. If I think right, I eat right..." Phil-SC

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                  • Originally posted by Crabbcakes View Post
                    if they somehow determine that she should stay off her pony for any length of time, I am telling you, all the life will go out of this kid. Whoo.


                    That would suck. Is there anything else she could do at the stables to be around her pony without actually being on it? Not perfect perhaps but it would be something.

                    *crossing my fingers* that this was a one time thing.

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                    • Originally posted by Urban Forager View Post
                      Oh Crabbcakes, I just found out about Third's hospitalization, I'm sending you lots of love. I understand what you are going through, the first time was especially scary for me but I would think even more so when the doctors don't know what is going on. I myself have never been admitted so I don't what the adult section of the hospital is like but I've found the ped wards to be very supportive of families.

                      How is Third feeling? I've found with my son that there are some things he takes in stride, in ways I never would have thought possible and then there are other things that really disturb him. DS has a had a port every time in the hospital and it made blood work and meds so much easier.

                      I hope the hospital is able to accommodate Thirds nutritional needs.
                      Outside of forgetting her breakfast, they did a good job food-wise. I sustained visits from the peds nutrition section and numerous visits from various folks from dietary (read - the kitchen), but we got it figured out. I cook better, though, but it wasn't "bad" food. Third caught her sisters' colds, so she wasn't really eating much anyway, unless I literally fed her, so it worked out.

                      You are right about stuff that kids take in stride. It all worked out except for the IV port. For two days I watched her act like a zombie, and 30 minutes after that thing was pulled in preparation for going home, she was up and about and quickly returning to ornery. That thing depressed her entire sensory system to a huge degree, and she was nearly terrified of it.

                      The only complaint I have is that the sheer numbers of specialists and their entourages, floor doctors, floor nurses, fellows, and students, that changed shift wise, was overwhelming. They all, to a wo/man, were professional and nice and all that, but I could have used someone who was kind of the railway yard overseer in all this to let me know who was ordering what for which reason. I got it figured out, but I pity anybody kinda slow, because they wouldn't get it. The nursing supervisor said it best - the Cleveland Clinic is very, very good but it is most definitely an institution.

                      The first time you went in, is that when Son was diagnosed?
                      I have a mantra that I have spouted for years... "If I eat right, I feel right. If I feel right, I exercise right. If I exercise right, I think right. If I think right, I eat right..." Phil-SC

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                      • I'm glad to hear you and third are back home. I hope she can continue to ride her pony.

                        DS was diagnosed before his first hospitalization. His first hospitalization was just overnight for sinus surgery when he was 7. Surgery was traumatic for all of us because none of us had ever been in the hospital or had general anesthesia. After that he had a couple other out patient sinus surgeries and then a few months later he was admitted with pneumonia. Fortunately after that bout of medical interventions he went 5 yrs before he had any other hospitalizations. And then the last 2 yrs he's been hospitalized twice, each stay was for 3 weeks. We are keeping our fingers crossed that we can avoid a hospital visit this year, though if it does happen we've worked out some things that make the visit more manageable.

                        With CF periodical hospital stays are just a reality. It took us awhile to accept that and now that we have it's less stressful.
                        Life is death. We all take turns. It's sacred to eat during our turn and be eaten when our turn is over. RichMahogany.

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                        • OH CC thank goodness you are home, and don't stress the horse riding thing..... well I mean wait until you know the answer, don't waste your weekend worrying about it.

                          I started having a few funny turns about 3/4 years ago. As long as I can remember I faint when I vomit - but now I also have the whole jiggly seizure clenched teeth thing going on as well. So not nice actually waking up from one, not knowing what, where, how, who.... but really frightening for DH.
                          Anyway heres hoping that all the Crabbcakes can have a quiet relaxing stressfree weekend
                          take care
                          G x
                          "never let the truth get in the way of a good story "

                          ...small steps....

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                          • Originally posted by Urban Forager View Post
                            DS likes shooting his 22 rifle with DH. I don't go with them but I hear his aim is getting very good. Lately DS has been playing Team Fortress 2, it's a co-op game he plays on line. In April for DS's birthday I have agreed to take him to a gaming event about 3 hrs form here. From what I understand players bring their computers and play together, there are tournaments and prizes. As a parent I'm curious to meet the people he plays on line with. I guess I'll just bring some knitting or felting to keep myself busy.

                            So far DS hasn't been interested in anatomy, but I think I want to check out that book Venus with Biceps!
                            In terms of math and science, there are entire branches of physics and math that deal with trajectories, wind resistance and all that. In order to get to the math, he'd hafta wade through basic algebra first, though. If he has gotten that far, I'd be more than willing to offer Skype lessons on the physics and math (bear in mind any lessons would need to be evening lessons.)
                            Life is not a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, steak in one hand, chocolate in the other, yelling "Holy F***, What a Ride!"
                            My Latest Journal

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                            • Oh hell, Crabbcakes, I sorry. I hope things turn out to work for Third, I really do. If you need some science help with Second and cooking stuff, I can either try to help or give a couple guest lessons via skype.
                              Life is not a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, steak in one hand, chocolate in the other, yelling "Holy F***, What a Ride!"
                              My Latest Journal

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                              • Wow, Naiadknight that is so sweet of you to offer! I think he will eventually be interested in the sort of physics that has to do with trajectories and resistance. He seems to have an engineering type of brain; he builds elaborate lego weapons, highly creative but so different from my sort of creativity.
                                Life is death. We all take turns. It's sacred to eat during our turn and be eaten when our turn is over. RichMahogany.

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