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Primal Feet First: In Search of Lost Time or Remembrance of Things Past

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  • Awesome...

    Until today.
    Meh.
    I've been reducing my medication further and I may have hit an impass...
    At exactly HALF things are great!
    But when I go down another 500mg... Like I've been trying to do the past couple of days things aren't so great.
    My head is being ugly about it.
    I'm not sure if I need to slow down and go back to half a little while longer, or try and hold onto my guns and see if it will level out in a few more days of crappy headache and eye pressure.

    Tonight I'm taking the lower dosage.
    This has me at 2/3 of what I was at at my high "normal" dosage. And back at my "beginner" dosage...
    I'd really like to see my body take over and do things right at this dose!

    Am I'm being impatient maybe?
    Possibly.

    If My head still feels like it's being filled by a hydraulic pump tomorrow I'll take a slightly higher dose (back to half) so that I can be productive and feel well.
    And then I'll play at alternating days... to reduce my overall dosage but not have a lower dose every single day to stress my system.
    Baby-steps.

    Now some weirdness... because I found weirdness and I think it belongs here.
    So funny.

    Only the BEST prime B-rated movie monster goodness here!


    And this... Well, I didn't watch it. And I don't want to.
    It's not about the 'movie' ... just the picture!

    Now... seriously. Tell me that doesn't look like the cover photo for some creepy awful necrophilia blow-up doll or something?
    (I found that by accident BTW.)

    Here's the story blurb... (cracking me up)
    "Cinder has troubles. She has a wicked step-stripper for a mom, her fairy godmother is actually a voodoo god and worst of all she's been murdered. But Cinder doesn't intend to let a little thing like being dead stop her. She has places to go and people to kill. And she only has until midnight."
    Last edited by cori93437; 09-26-2012, 08:35 PM.
    “You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
    ~Friedrich Nietzsche
    And that's why I'm here eating HFLC Primal/Paleo.

    Comment


    • Have you seen The Lost Skeleton of Cadavra? It's a purposely ridiculous 1950's style monster movie. It's awesome.
      Depression Lies

      Comment


      • Worst death scene ever... um, what movie is that? has MST3K done a spoof on it yet? Can I get it through Netflix?

        These are the questions that immediately spring to my mind...

        Oh, and as far as your meds... I hope your Dr is onboard with this, and do NOT rush it. If you have issues, back up to the last "good" level, and stay there awhile until your system heals. This does take time. Are you involving your Dr?

        Comment


        • Originally posted by namelesswonder View Post
          Have you seen The Lost Skeleton of Cadavra? It's a purposely ridiculous 1950's style monster movie. It's awesome.
          No, but now I may feel the need to seek it out.
          I really like old cheezyness!

          Originally posted by RaeVynn View Post
          Worst death scene ever... um, what movie is that? has MST3K done a spoof on it yet? Can I get it through Netflix?

          These are the questions that immediately spring to my mind...

          Oh, and as far as your meds... I hope your Dr is onboard with this, and do NOT rush it. If you have issues, back up to the last "good" level, and stay there awhile until your system heals. This does take time. Are you involving your Dr?
          You know as much about the movie as I do... I just found the clip on Youtube...
          I have never seen a MST3K of that movie... but it would be EPIC!
          I adore this...
          Mystery Science Theater 3000 locket in silver by PicaPicaPress
          I just don't really wear jewelry, except the very simple little diamond pendant gift from husband I wear every day.

          Yes, my doctor is on board! This is reduction is her suggestion...
          I went back up to "half" so I'm slowing down the reduction.
          And starting to feel better.

          Basically since my eyes (Optic nerves) showed no signs of swelling or distortion last time, and since I was doing SO good, she was hoping that I could come off the pressure control meds and get "remission" status...
          It looks like that isn't happening yet.
          I'm still hoping for it by the end of the year though.
          “You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
          ~Friedrich Nietzsche
          And that's why I'm here eating HFLC Primal/Paleo.

          Comment


          • I love the worst death scene ever.
            If I just said LOL, I lied. Do or do not. There is no try.

            Comment




            • Well... since it's dead, I think I should go ahead and eat it.

              TWO Honey Crisps followed me home this week...
              Yeah, right. "Followed me home."
              No, PAID for them... ain't nothin' cheap about an organic Honey Crisp...
              “You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
              ~Friedrich Nietzsche
              And that's why I'm here eating HFLC Primal/Paleo.

              Comment


              • Originally posted by cori93437 View Post
                I really like old cheezyness!
                "The Blob"...
                I have a mantra that I have spouted for years... "If I eat right, I feel right. If I feel right, I exercise right. If I exercise right, I think right. If I think right, I eat right..." Phil-SC

                Comment


                • I've been reassessing.

                  I've upped my medication dosage and feeling great didn't come right back unfortunately... and maybe fortunately.
                  It's a mixed bag.

                  Because I think it may be diet related.
                  And in a way diet related would be better than medication related... right?
                  I mean... if I can control this more with my diet I may be able to live pill free AND pain/brain weirdness free.
                  And that would be a good thing to do without the drugs and their side effects!
                  There are still some big "if's" here though...

                  So this is what happened.
                  I read this article about the same time I was in the "I need to increase my medicine again" stage...
                  Your Brain On Ketones | Psychology Today*

                  And I've read in Paleobirds "Eat MOAR Fat" thread some about Nutritional Ketosis some and it's connection to brain issues like epilepsy.
                  But for some reason I didn't make the connection to me until I read the article that also mentions the connection to migraines, which I'm being treated for in conjunction with my brain pressure problems because they see it as two separate issues... which I honestly think is a little silly... but that's ME and I'm not a doctor.

                  Now... when my brain pressure was really bad, and even when my pressure was supposed to be "under control" not so long ago but I was still having bad speech and those times when it's like 'fuses are blowing' and I zone out... so from brain function weirdness before I started taking the second medication which is ALSO used as an epilepsy med. See the relationship I'm seeing?
                  The worst of those times are very very similar to the descriptions I have read of partial seizures, almost word for word as a matter of fact, except they have never shown up like seizures on an EEG.
                  Kinda sounds like "neurotoxicity"* to me...
                  Plus the sort of "dementia"* symptoms I was having (got worse as day or tiredness progressed) poor memory, confusion, disorientation, not finding the right word for things or saying exactly the wrong word (look right at the vacuum and say "zipper")... blanking out a LOT for things a person my age should NOT ever blank on... like my own NAME! Yes, it happened.

                  Anyway... What this all comes down to is that during the week I was really thinking after I read that article and remembered that I had been eating some rice kind of regular because of my change in diet, not huge servings but still more carbs than normal for me, during the same time I was really trying to lower my medication.
                  Because of the other changes in my diet (LowOx) I think I had been replacing some of the other green veg I was eating before with slightly higher carb options... things that would suit husbands taste and mine since he doesn't like some of my other options much and I was trying not to prep two separate sets of side dish vegetables.

                  I remember remarking in another thread that the rice made me feel bloated... but I kept eating it a bit because I had made a big batch and frozen it in pre-packed portions for convenience.

                  So... it's time to see if going back to LC even VLC a lot of days works this kink out of the system.
                  (I don't count... so don't expect 'tracking of numbers'... I know which foods are low and which are high... I might have a quick peek at a nutrition guide but I'll be damned if I'm logging it and having people say "eat more meat, eat more carbs, eat more fat..." ... I'd probably get railroaded for "starving" myself around here anyway. Bollocks! I eat when I'm hungry.)
                  I don't think I need to go to full on Ketosis for life... but I'd consider visit that possibility later I suppose.

                  For now... Yesterday and today have been as they should. Meat and green veg.
                  Husband can have all the prepped rice he wants.
                  And on the upside my weight has finally decided to shift another pound down, finally.

                  Slow and steady and all that.

                  It's weird... my weight really doesn't bounce around.
                  I find a new low... it stays within about 3 lbs of that for normal daily fluctuations no matter what I do... then one day...
                  Sometimes a week, sometimes two, sometimes an entire month... *poof* it goes to a new one pound lower increment and there I am.
                  If I'm really lucky it happens twice in one week... but that's only happened twice! LOL

                  Of course, what I do is "what I do"... as in stick to the plan.
                  Real food is on the plan, including the ocassional Honey Crisp apple (which I feel near ashamed to pay for at $5 a lb)... and sometimes sharing a nice treat with husband is too.
                  A girl has to live.

                  And hopefully we'll know if this is successful pretty soon.
                  That's all I got.

                  I know... SO not an exciting post.

                  * reference to article in link
                  “You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
                  ~Friedrich Nietzsche
                  And that's why I'm here eating HFLC Primal/Paleo.

                  Comment


                  • healing with diet = avoiding brain surgery = most exciting post in the world.
                    Jeez, lady. What could top that? This:

                    ???
                    Nope, not even close.
                    I like badgers, books and booze, more or less in that order.

                    Comment


                    • Good luck, Cori - I think you may be onto something very interesting. Keep us posted.

                      Comment


                      • Ahh... just when I go and say it (almost) never happens...

                        Down a second pound this week.
                        *shocked*
                        “You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
                        ~Friedrich Nietzsche
                        And that's why I'm here eating HFLC Primal/Paleo.

                        Comment


                        • Yes, it's long...
                          It covers a lot of area... including some of the Autoimmune stuff I WILL be ranting about later.

                          But, particularly around 35min it mentions that neurologists are starting to classify some migraine issues as slow seizure/epileptic related events.
                          SO... very much what I was thinking with my previous posts.


                          The 'autoimmune issues'/gluten stuff will be a long awful post.
                          I feel so robbed...
                          “You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
                          ~Friedrich Nietzsche
                          And that's why I'm here eating HFLC Primal/Paleo.

                          Comment


                          • Here I am... back as promised with a post about my crazy health revelations.

                            I've been procrastinating a bit.
                            First there was a busy weekend with husband.
                            Normal Friday afternoon torture times, which aren't nearly as torturous anymore, then off to get milks and dinner together.
                            We were supposed to 'do' on Saturday but I was SUPER tired (I had let my potassium run too low) to I slept in and we did some shopping via a trip to the butcher shop, dinner, and an early bedtime.
                            Early bedtime as so that we could spend the next day enjoing the Florida Aquarium in Tampa. SHARKS! LEAFY DRAGONS! *squeeeee*
                            Then Monday I shaved my dog... he's a Schnauzer, it's appropriate.

                            Also, I wanted to make sure that what I was thinking was happening wasn't just a fluke... that it was really, REALLY, happening before I go reporting this freaking miraculousness.
                            Seriously.
                            So...
                            TMI alert... Last week was PMS week.
                            Not only did I loose 2 lbs during PMS week (impossible?!), but I wasn't a gawddam shambling trainwreck with my head feeling like it was going to explode the whole time.
                            As a matter of fact, I felt very strangely 'fine'. I actually had to look at the calendar and go... "Wait, am I freaking out just because it should be getting close to my period?"
                            Seriously, zero PMS symptoms... no bloat, no headache from the nine hells, no cramps, and the menses actually sneaked up on me all stealth like a Ninja!

                            So... what happened is that have slowly I realized that the nerve disease RSD/CRPS (primarily a disease of pain), which is in the entire right half of my body toes to nose, that I have had since 1997 is no longer causing me PAIN.
                            Now, I still feel strange on that side of my body. It doesn't feel 'normal'.. so it still feels different and affected, like the disease is still here... but not 'in pain'.
                            The internal spinal cord stimulator that I have which controls the pain is currently turned off.
                            It has been off for about 2 weeks.
                            I had been noticing that I didn't feel the urgency to recharge it like i used to. Previously I could tell before it even needed charging, several days before it needed it when the charge was running low I would start to have more pain and I would ache terribly. Not anymore.

                            Now... ages ago when I was diagnosed ('98-99)I was told that it was just a brain problem, no one knew why my brain "messed up" and caused it. But the fact that I was getting better and watching Nora Gedgaudas video where she talks about not only low carb and that relationship to migraines/seizures, but also diseases and autoimmune reactions made me do some research on my disease and guess what. That same disease, RSD/CRPS is now linked to autoimmune. (And autoimmune is kinda linked to my pushing my head thing to happen too.)

                            And now that I'm grain free... I'm not in pain.

                            I'm not sure if my body will ever be 100% 'normal'. I think that boat sailed ages ago to be honest. Maybe if I had known about grains 15 years ago my body would have healed up and the disease wouldn't have spread the way it did... and I certainly wouldn't have suffered through all of these years of crazy drugs, surgeries, and PAIN... ans so many lost years of my life.
                            As it is... I hope that it continues to heal, even slowly.
                            What I've got right now is better that what I've had in a very long time.

                            I also want to admit something right here...
                            I used to think that the autoimmune response/wheat stuff was overblown.
                            Ummm.... yeah. Geez. *hangs head in embarrassed shame*
                            That bit me right in the ass... or rather was biting me right in the ass while I was thinking it!

                            And now... as to my HEAD.
                            It's getting better too. Much better.
                            Getting back to lower carb has helped immensely!
                            I have reduced my one medication to the initial dosage of one 500mg cap morning and night...
                            And I feel fine!

                            Now the bad news.
                            A very special person in my life is about to die, hospice has been called.
                            It's not exactly a surprise, but he is dear to me and it hurts.
                            So my further medication reducing efforts are suspended pending a trip to TN to kiss my grandfather goodbye.

                            Husband is worried about me traveling and the stress and having relapses/head crashes far away where he cannot take care of me...
                            I'm worried about access to proper FOOD!
                            “You have your way. I have my way. As for the right way, the correct way, and the only way, it does not exist.”
                            ~Friedrich Nietzsche
                            And that's why I'm here eating HFLC Primal/Paleo.

                            Comment


                            • Originally posted by cori93437 View Post
                              Here I am... back as promised with a post about my crazy health revelations.

                              I've been procrastinating a bit.
                              First there was a busy weekend with husband.
                              Normal Friday afternoon torture times, which aren't nearly as torturous anymore, then off to get milks and dinner together.
                              We were supposed to 'do' on Saturday but I was SUPER tired (I had let my potassium run too low) to I slept in and we did some shopping via a trip to the butcher shop, dinner, and an early bedtime.
                              Early bedtime as so that we could spend the next day enjoing the Florida Aquarium in Tampa. SHARKS! LEAFY DRAGONS! *squeeeee*
                              Then Monday I shaved my dog... he's a Schnauzer, it's appropriate.

                              Also, I wanted to make sure that what I was thinking was happening wasn't just a fluke... that it was really, REALLY, happening before I go reporting this freaking miraculousness.
                              Seriously.
                              So...
                              TMI alert... Last week was PMS week.
                              Not only did I loose 2 lbs during PMS week (impossible?!), but I wasn't a gawddam shambling trainwreck with my head feeling like it was going to explode the whole time.
                              As a matter of fact, I felt very strangely 'fine'. I actually had to look at the calendar and go... "Wait, am I freaking out just because it should be getting close to my period?"
                              Seriously, zero PMS symptoms... no bloat, no headache from the nine hells, no cramps, and the menses actually sneaked up on me all stealth like a Ninja!

                              So... what happened is that have slowly I realized that the nerve disease RSD/CRPS (primarily a disease of pain), which is in the entire right half of my body toes to nose, that I have had since 1997 is no longer causing me PAIN.
                              Now, I still feel strange on that side of my body. It doesn't feel 'normal'.. so it still feels different and affected, like the disease is still here... but not 'in pain'.
                              The internal spinal cord stimulator that I have which controls the pain is currently turned off.
                              It has been off for about 2 weeks.
                              I had been noticing that I didn't feel the urgency to recharge it like i used to. Previously I could tell before it even needed charging, several days before it needed it when the charge was running low I would start to have more pain and I would ache terribly. Not anymore.

                              Now... ages ago when I was diagnosed ('98-99)I was told that it was just a brain problem, no one knew why my brain "messed up" and caused it. But the fact that I was getting better and watching Nora Gedgaudas video where she talks about not only low carb and that relationship to migraines/seizures, but also diseases and autoimmune reactions made me do some research on my disease and guess what. That same disease, RSD/CRPS is now linked to autoimmune. (And autoimmune is kinda linked to my pushing my head thing to happen too.)

                              And now that I'm grain free... I'm not in pain.

                              I'm not sure if my body will ever be 100% 'normal'. I think that boat sailed ages ago to be honest. Maybe if I had known about grains 15 years ago my body would have healed up and the disease wouldn't have spread the way it did... and I certainly wouldn't have suffered through all of these years of crazy drugs, surgeries, and PAIN... ans so many lost years of my life.
                              As it is... I hope that it continues to heal, even slowly.
                              What I've got right now is better that what I've had in a very long time.

                              I also want to admit something right here...
                              I used to think that the autoimmune response/wheat stuff was overblown.
                              Ummm.... yeah. Geez. *hangs head in embarrassed shame*
                              That bit me right in the ass... or rather was biting me right in the ass while I was thinking it!

                              And now... as to my HEAD.
                              It's getting better too. Much better.
                              Getting back to lower carb has helped immensely!
                              I have reduced my one medication to the initial dosage of one 500mg cap morning and night...
                              And I feel fine!

                              Now the bad news.
                              A very special person in my life is about to die, hospice has been called.
                              It's not exactly a surprise, but he is dear to me and it hurts.
                              So my further medication reducing efforts are suspended pending a trip to TN to kiss my grandfather goodbye.

                              Husband is worried about me traveling and the stress and having relapses/head crashes far away where he cannot take care of me...
                              I'm worried about access to proper FOOD!
                              Cori, I never comment in journals and rarely on the forum but I've read your journal from start to finish. I am in absolute awe over your complete acceptance and grace you exhibit with your health problems. Your post today left me with jaw on chest. I'm so glad for you! So glad you are feeling better! Amazing.

                              Comment


                              • And also so sorry to hear about your grandfather. So hard. Take care.

                                Comment

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