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Fibromyalgia and Fat - Tomi's story

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  • #31
    Originally posted by Candy in Wonderland View Post
    I used to be tired ALL the time too, and now my DH almost doesn't recognize me . I hope you will feel the difference soon too, Judg!
    @Tomi, I hear you on the fibro-boards. I have a friend with fibro, chronic fatigue and a lot of other problems, but when I tell her she goes 'yeah right' and rolls her eyes and goes on feeling awful, taking more and more meds every day and dragging herself through every day, from doctors appointment to doctors appointment....
    Thanks for the good wishes, Candy. I've started a journal here to keep myself accountable, and you can be sure I'll be shouting it from the rooftops if this does make a significant difference to me. If so, maybe you could direct your friend to it. Personal testimonies do tend to carry more weight than advice. If you had any idea how much well-intentioned advice sufferers of CFS get, most of it downright dangerous, you'd understand why we get so resistant to it. People have a very hard time understanding that it doesn't play by the same rules as normal fatigue. It took my family members years to start getting it and back off with me. Heck, it took me almost as long to understand it myself... And when hope has been disappointed so many times, you just don't want to put yourself through it again. I myself have been feeling so hopeful lately, I'm scared I'm setting myself up for another let-down. And I'm just hoping to recover a little more functionality.
    5'2", 55 years, Primal since April. Pre-Primal weight loss, from 216.6 to 157.8
    Primal low: 140.2 (Dec. 3) Goal weight: 135?
    Main Primal goal: beating back my CFS enough to function more normally and start writing again

    More and more, our life has been governed by specialists, who know too little of what lies outside their province to be able to know enough about what takes place within it.
    - Lewis Mumford

    Comment


    • #32
      Originally posted by tomi View Post

      I'm trying to spread the word. I need to get involved with some of the fibromyalgia "support groups" online. But honestly, all those women do is belly ache about how awful they feel! I tried to get involved in several different sites, but I got so depressed reading all that "woe is me" crap! Yes, its aweful, but dwelling on it doesn't help either. I'm still going to go on and put in my 2 cents worth, maybe someone will find the information helpful and decided to try it.
      Any chance you'd be willing to hit FibroTV... I'm not sure what it is, but I know that's where my MIL gets a lot of her fibro suppot and treatment ideas. She was so sore and tired and not feeling well last night that she couldn't watch our kids after telling DH she would... I was in class and he wanted to work. He had to forego work because he had no one for the kids since she was feeling poorly. I wish she'd just trust that diet is the key so she'd feel better.

      it's amazing to read your story. I love how you're pain free now (you and Candy both) and how excited you are to help others.
      Primal since March 5, 2012
      SW: 221 | CW: 204 | LPW: 166 | UGW: 140 (80 lbs loss)



      Comment


      • #33
        Originally posted by Judg View Post
        I officially started as of today. How long did it take you to start feeling better? I don't know how much incentive I would have to maintain a primal lifestyle, eating-wise at least, if it didn't help with the fatigue. I've been losing weight very successfully on my own, but I was really hoping it would help lift the fatigue more than it has. Having energy sounds so wonderful... As it stands, if I go out grocery shopping one day, I have to stay home and rest the next day.
        Ok Girl! GREAT JOB on the weight loss and on making the choice to dig in! You won't regret it! For me - I saw a huge difference in my pain and energy level from about the 3rd day of being completely grain-free. But I do have my waves at times, and I really think they are related to eating refined sugar. I'm playing with the idea of cutting dark chocolate out because of the sugar in it --- and "natural ice cream" as well. Although I don't have ice cream very often I think the dairy and sugar are messing wtih my energy levels. For the most part I stay pretty strict on what I eat.

        Are you taking vitamin D3 ??? And a B Complex? You should also be taking Calcium. I take 4000-6000 units of D3 daily. And I find when I forget to take my supplements I feel it quickly!

        As for food -- no grains, legumes, beans or sugars. (is a bean a legume?) Be careful with nuts cuz they aren't all good for you. I think Mark has a post about nuts - you can do a search for that. I've read peanuts and cashews are strictly no-no's. Almonds are good, and I think brazile nuts are supposed to have some really good things in them - but beware of that high fat content. Stay away from the unhealthy processed oils. ONLY - Coconut oil, Olive oil and butter should be used for consumption. Take your canola and corn oil - and pour them out on the weeds you want to kill in the cracks of your sidewalk! Go easy on condiments like catsup cuz its loaded with high fructose corn syrup. And limit high sodium flavorings like soy sauce (besides, soy is very bad for us).

        Course - trying to get meat grown as naturally as possible is best - but not everyone has access to it - or can afford it. We buy a beef once a year that is all grass fed, but chicken and eggs come from the grocery store. Our fish is all fresh caught and free from the wonderful customers at our boat shop. Course, it gets frozen before we eat it.

        I try to stick to the old saying "don't eat anything white" --- with the exception of cauliflower - and the very very rare white potato. Which means - maybe twice in the past 6 months.

        I've been where you are energy-wise. You may not ever be where you'd like - but I promise eating clean and natural will greatly improve your energy levels. I don't have "crash" days anymore - now I just have "gosh I'm just dragging a bit today" days now. But they don't slow me down too much. I'm working again - 4 days a week in the afternoons. I'm able to keep up with the housework and all the yard work. And weekends my husband and I bike, hike and work on projects (like the pergola we are currently building in the back yard) My life has improved 1000 fold since I changed my diet.

        I'm so anxious to hear how this is changing your life! Please stay in touch. If you'd like I can give my personal email.

        tomi
        Last edited by tomi; 04-18-2012, 09:43 AM.
        1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
        2. Eat to heal
        3. Move to live
        4. Embrace today
        5. Live with intention
        6. Respect my body
        7. Cultivate joy
        8. Find my passion
        9. Meditate on peace in my soul

        Comment


        • #34
          Originally posted by tomi View Post

          I'm so anxious to hear how this is changing your life! Please stay in touch. If you'd like I can give my personal email.

          tomi
          Same here. I'm anxious to see how you do with the new lifestyle!
          Primal since March 5, 2012
          SW: 221 | CW: 204 | LPW: 166 | UGW: 140 (80 lbs loss)



          Comment


          • #35
            Originally posted by jenn26point2 View Post
            Any chance you'd be willing to hit FibroTV... I'm not sure what it is, but I know that's where my MIL gets a lot of her fibro suppot and treatment ideas.

            it's amazing to read your story. I love how you're pain free now (you and Candy both) and how excited you are to help others.
            FibroTV??? never heard of it - but if you can get me any information I would be happy to explore that venue of getting the word out.

            thanks!
            1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
            2. Eat to heal
            3. Move to live
            4. Embrace today
            5. Live with intention
            6. Respect my body
            7. Cultivate joy
            8. Find my passion
            9. Meditate on peace in my soul

            Comment


            • #36
              I know she spends a lot of time here:

              https://www.facebook.com/FibroTV
              Primal since March 5, 2012
              SW: 221 | CW: 204 | LPW: 166 | UGW: 140 (80 lbs loss)



              Comment


              • #37
                So - I'm feeling a little less frustrated today. I'm putting away the spreadsheet where I track all my calories, carbs, fats and proteins. I need to take a break and just work on eating healthy, and continue to reduce calories so I will lose weight. I know my body is capable of shedding the weight cuz I did it last year on Medifast. I just gained it all back after I started eating regular food again. Losing it on regular food is the key - duh! I'm gonna stick to the 80 grams of each - with a total of about 1300 calories. I know at some point my body will start cooperating. I cut out the eggs and bacon about 3 weeks ago because of the high fat content - now I have a hard time getting in enough fat through out the day. Good thing I have almonds and dark chocolate - but I wonder what the sugar in the dark chocolate is doing for the fibromyalgia. I may be cutting that out next. But, what do I replace it with? maybe butter on my steamed veggies - that works! Everything is better with BUTTER!

                Summer is coming.......... at least the calendar says it is. Funny mother nature seems to be doing her own thing this year. Seems I remember last spring was pretty dang disappointing as well. Today is April 18 - and it is 50 degrees and wet-ish outside! I'm still using the pellet stove to heat this drafty old house and still having to wear a light jacket when I go out. Where is spring? The weekend was beautiful though! A teaser for whats to come I hope! I even got a bit of a sunburn from working on the pergola all weekend.

                This is the first year I've felt really good since getting sick 10 years ago. The fibromyalgia won't be holding me back this year - thanks to finding the primal lifestyle. I've got the eating and sleeping down - now I just need to work in the weights and keeping myself moving slowly the better part of the day. If the weather would improve I would be outside working on the yard every morning, then going to work in the afternoons. There's always lots to do outside. Course I could be doing the same thing inside - and my house might have a little less DUST if I would do it! But, cleaning house just doesn't give me the same satisfaction or fullfillment as doing gardening. I see all these people out walking, running and biking (we have a very active neighborhood) - but I just can't get out there when there is still a chill in the air and a drizzle of rain coming down. Yuck !!!!

                Last night I was going to make Salmon for dinner but hubby had to work late - so I made chicken instead. So, tonight is the Salmon and veggies. Yum! I could live on fish. I'm planning to fast until dinnertime today - or at least until I get home from work this afternoon. Is a little honey in my herbal tea okay on a fast? hum.........
                1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
                2. Eat to heal
                3. Move to live
                4. Embrace today
                5. Live with intention
                6. Respect my body
                7. Cultivate joy
                8. Find my passion
                9. Meditate on peace in my soul

                Comment


                • #38
                  Thanks, tomi and jenn. I will be maintaining a journal here, but I'll probably wait until this evening for today's entry.

                  Yes, I do take supplements, but I'm only up to 1000 units of D3. I'm not planning on changing that right away because if I change too many things at once, I won't know which things are helping and which are not. So right now it's grains that are the big issue for me.

                  Beans are indeed legumes. And just when I had spent years developing a taste for them too. Sheesh. I never liked them to begin with, learned to love them, and now have to learn to unlove them.

                  A spreadsheet? Oh my. I could never handle strictly regimented diets or recipe planning. They just couldn't accommodate all the unplanned things that happen in life.

                  And yes, losing weight is relatively easy. Almost any diet will do it if you stick to it. People do it all the time. The problem, of course, is returning to the "normal" eating that made us fat in the first place. Reprogramming our heads to accept a new normal is a key element in succeeding in keeping it off. I didn't even try for years, but just concentrated on improving my eating habits so that when the weight came off, it would stay off. So far, so good. The real test will come when I've reached my goal, mind you. It's a little early to crow about it now, but seeing as it's taken me so very long to lose it, I'm optimistic I will keep it off. And now, of course, I am reprogramming my head yet again to eliminate the grains altogether. I was already limiting my carb intake, but I thought it was something I would increase a bit on a "normal" diet. Guess not. Of course, fats are a wonderful consolation... LOL! I always did love me my butter and chicken skins and olive oil and I absolutely refused to cut them out, diet or no. I figured you had to have some indulgences to stay on track, and now I find out they were good all along. Now it's the black bean soup that will be the indulgence. Too funny.

                  So Tomi, I thought bacon and eggs were supposed to be a very permissible part of a Primal diet. Why are you cutting them out? When I had some 10% fat Greek yogurt for breakfast the other day (with blackberries) I found it kept me feeling satisfied and unhungry much longer than the fat-free yogurt I normally ate. It was great. My energy levels stayed up, I felt full and content much longer, and therefore ate less during the day. Or am I missing something here?
                  5'2", 55 years, Primal since April. Pre-Primal weight loss, from 216.6 to 157.8
                  Primal low: 140.2 (Dec. 3) Goal weight: 135?
                  Main Primal goal: beating back my CFS enough to function more normally and start writing again

                  More and more, our life has been governed by specialists, who know too little of what lies outside their province to be able to know enough about what takes place within it.
                  - Lewis Mumford

                  Comment


                  • #39
                    Originally posted by tomi View Post

                    We buy a beef once a year that is all grass fed, ...
                    May I ask where and what quantities are available?

                    Comment


                    • #40
                      Originally posted by marcadav View Post
                      May I ask where and what quantities are available?
                      Try local grass fed farmers. Sometimes they'll sell you a whole beef, half a beef, or quarter beef.
                      Primal since March 5, 2012
                      SW: 221 | CW: 204 | LPW: 166 | UGW: 140 (80 lbs loss)



                      Comment


                      • #41
                        Originally posted by marcadav View Post
                        May I ask where and what quantities are available?
                        We buy from a farmer over in the Salt Creek, Oregon area, we split a cow with a friend every year. We're about to see about ordering another - I will let you know if they have any available.
                        1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
                        2. Eat to heal
                        3. Move to live
                        4. Embrace today
                        5. Live with intention
                        6. Respect my body
                        7. Cultivate joy
                        8. Find my passion
                        9. Meditate on peace in my soul

                        Comment


                        • #42
                          @judg --- Bacon and eggs are totally permissible and encouraged unless you're trying to lose weight. Even Mark suggests not having them everyday if your trying to lose - simply because of the high fat content. Primal/paleo is all for good healthy fat - but we still have to be mindful of the amounts. Too much of even a healthy thing can derail our best efforts to be healthy and cause a gain - or at least prevent a lose.

                          This lifestyle isn't "about" losing weight - but it can certainly be used as a tool to lose weight - and I believe its the best tool available. We just have to learn how to use it correctly.

                          I'm working on it............ Sounds like you've made a lot of progress over the years and are on the right track. Now just have to give up those beans..............dang it! have a good day.
                          1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
                          2. Eat to heal
                          3. Move to live
                          4. Embrace today
                          5. Live with intention
                          6. Respect my body
                          7. Cultivate joy
                          8. Find my passion
                          9. Meditate on peace in my soul

                          Comment


                          • #43
                            Originally posted by tomi View Post
                            @judg --- Bacon and eggs are totally permissible and encouraged unless you're trying to lose weight. Even Mark suggests not having them everyday if your trying to lose - simply because of the high fat content. Primal/paleo is all for good healthy fat - but we still have to be mindful of the amounts. Too much of even a healthy thing can derail our best efforts to be healthy and cause a gain - or at least prevent a lose.

                            This lifestyle isn't "about" losing weight - but it can certainly be used as a tool to lose weight - and I believe its the best tool available. We just have to learn how to use it correctly.

                            I'm working on it............ Sounds like you've made a lot of progress over the years and are on the right track. Now just have to give up those beans..............dang it! have a good day.
                            Gotcha. Makes sense. I'm still feeling my way on a lot of these things. There's a massive amount of data to absorb around here. I'm not here primarily to lose weight, although I still need to lose some more. I want to feel better. I do think I've been eating perhaps a bit too densely since I've started this, but at least I'm not gaining. And I wasn't planning on having bacon and eggs every morning, out of sheer laziness. Not a morning person.

                            Thanks for the info!
                            5'2", 55 years, Primal since April. Pre-Primal weight loss, from 216.6 to 157.8
                            Primal low: 140.2 (Dec. 3) Goal weight: 135?
                            Main Primal goal: beating back my CFS enough to function more normally and start writing again

                            More and more, our life has been governed by specialists, who know too little of what lies outside their province to be able to know enough about what takes place within it.
                            - Lewis Mumford

                            Comment


                            • #44
                              Originally posted by Judg View Post
                              Gotcha. Makes sense. I'm still feeling my way on a lot of these things. There's a massive amount of data to absorb around here. I'm not here primarily to lose weight, although I still need to lose some more. I want to feel better. I do think I've been eating perhaps a bit too densely since I've started this, but at least I'm not gaining. And I wasn't planning on having bacon and eggs every morning, out of sheer laziness. Not a morning person.

                              Thanks for the info!
                              I'm sorta where you - wanting to feel better is my FIRST goal. But if I can lose weight while I'm getting there then I'm going for that too! I am at 189 still - and my goal is also 135. I've got the feeling better part down pretty good - it could be better, but that I think I need to move more for that to happen.

                              I was eating bacon and eggs every day - and several people on the forum let me know that is probably what is stalling my weight loss - HOWEVER - I haven't had any for 3 weeks, and still no weight loss. So, it wasn't the bacon and eggs. Or if it was, the benefits of not eating it haven't showed up yet. My biggest problem is impatience! I have a hard time making a commitment to sticking to one method for more than 2 or 3 weeks. If I don't see a little encouragement from the scale I want to chuck it and move on to the next thing. I'm fickle I guess. I'm going to stay with the 80x3 thing - and I'm going to try fasting. Hopefully the scale will move. I'm hoping there is nothing wrong with my thyroid or adrenals, as has been suggested by a few ladies on the She groks thread.

                              Well -- stay in touch - I wish you the best! Lots of good reading on MDA! Just beware of the "nutrition" forum - there are a lot of odd ball things being suggested there.
                              1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
                              2. Eat to heal
                              3. Move to live
                              4. Embrace today
                              5. Live with intention
                              6. Respect my body
                              7. Cultivate joy
                              8. Find my passion
                              9. Meditate on peace in my soul

                              Comment


                              • #45
                                Yeah, forums are like that. They're public places and they attract the wild, the weird, and the wonderful.

                                As far as weight loss is concerned, benefits usually show up within days, so my thought is that you've mastered a maintenance routine, but to lose, you're going to have to either up the outflow of energy or decrease the inflow of calories, or a bit of both. If you compensated for the lack of bacon and eggs with something equally caloric, you're still at maintenance. You could probably afford to have them occasionally, either in smaller quantities, or with a little cutting back later in the day to compensate. The intermittent fasting thing could very well help too. That tends to work well with me. I'm better at cutting things out altogether for a while than systematically depriving myself a little bit. I was very impressed when I saw that Mark actually agreed with that way of doing things, seeing as it has always worked well for me, despite what dieticians tell us.

                                I'm going to have to figure this all out for myself as well. I knew where the balance was on my semi-vegetarian regime, but it will probably take a while to figure out on PB. So far I'm maintaining, and I will probably have to listen to my own advice to see some change. Mind you, I don't care if weight loss goes very slowly, as long as it keeps going. It had been going very slowly for quite a while anyway.
                                5'2", 55 years, Primal since April. Pre-Primal weight loss, from 216.6 to 157.8
                                Primal low: 140.2 (Dec. 3) Goal weight: 135?
                                Main Primal goal: beating back my CFS enough to function more normally and start writing again

                                More and more, our life has been governed by specialists, who know too little of what lies outside their province to be able to know enough about what takes place within it.
                                - Lewis Mumford

                                Comment

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