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Fibromyalgia and Fat - Tomi's story

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  • #16
    Originally posted by tomi View Post
    I've wondered if mine has to do with thyroid also. I was tested many times over the years, and was always just on the low side. Once was actually in the low and was treated for a month or so. I just started taking Kelp capsules with the hope of them giving my thyroid a little boost! Glad to hear you have found your problem and are able to keep it in check.

    Isn't it a beautiful day in the Pac NW today? Spring is MY time of year!!!!! Moderate temps, and the bursting colors just make my heart sing!

    Have a wonderful day!
    If you were being treated for thyroid disease why did you stop?

    While we've had sun breaks today it's not so beautiful right now.. Clouds are darkening, wind is blowing, looks like rain. I'm in the Salem area, BTW.

    Comment


    • #17
      Tomi, great to read you're having such success with the fibro! I was diagnosed over 12 years ago after years of pain, fatigue, migraines, and just overall health issues. I was informed 2 years ago by a doc I met in CA that it was treatable. He suggested basically paleo and I found my way here.
      I don't post often and I haven't been on the forum for months. My husband and I moved from PA to CA a month ago, so life has been extremely crazy, so the food has been awful for months and the pain has returned, but not quite as severe as I used to have. At my highest I was 230 then I got down to a low of 175, but didn't maintain that long and I leveled off around 185. The weight has slowly started to creep back up with all the stress and chaos and I'm probably around 205 or so. I just haven't found the motivation to be strict with all the other changes in life right now.
      I appreciate reading your journal and hope to have more time to stop by now that things are settling down. I do find that nightshades are a trigger for me, especially tomatoes. I just wanted to stop by and introduce myself as a fellow sufferer. Keep up the good work!

      Comment


      • #18
        Originally posted by KimT View Post
        pain, fatigue, migraines...

        ...I do find that nightshades are a trigger for me, especially tomatoes.
        My mother-in-law had the same symptoms as you. The migraines are what sent her to doctors looking for answers. She always thought they were sinus infections b/c that's what the doctors always said. She noticed certain foods caused the migraines - alcohol, salsa being two things I can think of right off the top of my head. She cut those items out and the headaches remained - body aches started. Finally, she found a doctor that thought fibro and did his testing. She's not pain free yet and I think a lot of it is b/c she's still eating processed food or ordering take out all the time. Trying to convince her that paleo/primal is the way to go, but she's not looking at that yet. She's concentrating on yoga and tai chi and massage therapy, sleep therapy, and supplementation (D3, soy protein <-- yuck!!), pot brownies (last I heard anyway). Not sure if she'll pick up on diet as a cure or not. We don't talk about it anymore. Whenever I make a suggestion or ask questions, I feel like I'm being ignored or the discussion is being avoided...

        I hope now that things are settling down from your move, you'll be getting back into a routine of paleo/primal eating. I hope you feel better soon. What a move! All the way across the country!
        Primal since March 5, 2012
        SW: 221 | CW: 204 | LPW: 166 | UGW: 140 (80 lbs loss)



        Comment


        • #19
          @jenn26point2 --- thanks for the link on the nightshades I read the entire article. Interesting read - as I do have quite a sensitivity to tomatos and peppers. Everytime I eat tomatos I end up having some very uncomfortable GI problems. The peppers just cause a lot of burping. I had all meat chili for dinner last night - and was having some minor fibromyalgia pains at bedtime. Not horrible, but enough to get me out of bed to take some Tylenol. Then this morning I was having issues with diarrhea. Could very likely be the tomates and peppers in the chili. I'm going to avoid both for the next couple weeks and see what happens. Thanks! Please tell your MIL that I would be very happy to tell her what changing my diet has done for me. Two years ago I was applying for disability --- today, I'm doing great! If you think it will help I will give you my email address and you can see if she would like to hear more. My sister also has fibromyalgia, and she isn't at all intersted in hearing about how I've overcome it. She is extremely obese (400 is my guess) - and diabetic. She says she can't do this diet because of her diabetes. Food is her crutch. She is getting so bad and is so big she can barely walk. Yet she won't consider changing her diet to see if this will help her. Its makes me so frustrated! But, the choice is hers. All I can do is offer the information.

          @marcadav --- I was treated with Synthroid for a month and my labs came back good, but she didn't continue the meds. Never was sure why and was so fed up with doctors at that point I just let it slide. I will be having some blood work done in June and will ask for a full thyroid panel to be a part of it. The doctor never said it was thyroid disease, just below normal. SO We're neighbors huh? Wasn't the weather strange yesterday? We managed to get in a short bike ride in the evening - but it was COLD! The weekend is supposed to be good - we're planning to do some concrete work so we're praying it holds up! Thanks for the note!

          @KimT --- First, let me encourage you to get back to eating healthy. Everything in life will be easier without the pain and fatigue related to the fibro. Having energy and feeling so much better keeps me away from the foods that I know will cause me harm. I see those foods as poison to my body. Making such a major change in your life - as this move to CA - is difficult all by itself, so please take yourself during this transition time and I promise everything will be much easier. Get your diet back in shape - and make sure you are doing some daily movement - walking or stretching or yoga - whatever you do that makes your body feel best. I know its a struggle to add one more thing when it feels like everything is so out of control.......... but your diet is the one thing you have absolute control over, in the midst of the storm. Please write and tell me that you are going to take care of yourself. I will be waiting to hear.......... As for the weight - eating right will help it come down again. You're living in CA!! the best place in the country to be active and outside and enjoying all the beautiful sunshine! I'm in OR --- and I have CA envy! Get on your bike and ride to your hearts content! Or go walk on the beach - oh, assuming your on the coast. Or go climb a mountain! You can do it, girl!

          I have a date with the leaf blower! Have a great day everyone!
          1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
          2. Eat to heal
          3. Move to live
          4. Embrace today
          5. Live with intention
          6. Respect my body
          7. Cultivate joy
          8. Find my passion
          9. Meditate on peace in my soul

          Comment


          • #20
            I've made it out for 2 bike rides this week, and I've done some yardwork too. Today I packed around the backpack leafblower - then mowed up all the leaves! I guess that might count for "lifting heavy things". This weekend will be a lot of heavy lifting too - with 30 bags of concrete to mix and pour. But we're cheating and renting a mixer. I can't wait to get this pergola done - get a new firepit (or build one from scratch as my husband wants to do!) and then bring out all our lawn furniture and start enjoying the backyard again! We've been under construction for 2 years! I've missed our quiet evenings under the stars. Instead we've been spending way too much time in front of that big dumb TV! I admire people who don't have one. Last we sold the giant hot tub - and now we are wanting to get a little 2 man face to face model.

            I'm not feeling real great today -- GI issues - maybe from the no bean chili. Then I ate too much chicken for lunch so I'm feeling full and sluggish! But I hadn't eaten breakfast and was feeling pretty famished after a 17 hour fast. But now I've used up my 80 grams of protein for the day. Dinner will be sweet potato w/butter and steamed veggies with some kind of dressing.

            I'm trying to stay withing the 80 grams of everything - so far I've gone a little over on the protein one day, and the carbs on another, but that was last week. This week is going great! I just hope the scales show me I'm doing the right thing. I need to see a smaller number on the 25th. I need my pants to start fitting loser!!!

            Even if nothing changes - I know I'm eating really healthy and I'm feeling terrific! I'm not having any rum and diet coke! Thats a really healthy choice! and I'm proud of it.

            Okay - I need to get off this dumb computer and go take care of the rest of my chores. Happy day everyone!
            1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
            2. Eat to heal
            3. Move to live
            4. Embrace today
            5. Live with intention
            6. Respect my body
            7. Cultivate joy
            8. Find my passion
            9. Meditate on peace in my soul

            Comment


            • #21
              Tomi, thanks for the encouragement! I have 3 days that have been fairly back on track. When we moved, everything was in storage for a month, so I had 1 skillet and paper plates. Not a lot of cooking options. Now that we are in a permanent place, I have all my kitchen stuff again and am back to shopping and looking for recipes since I actually love to cook! The eating has been awful since November when we sold our house and then moved in with family until the actual move. It was just easier to do fast food. I'm actually surprised I'm not feeling worse!

              The workouts and movement have been decent. Lots of walks with our dog the past few weeks, not to mention the two of us moved all the stuff ourselves. My husband and I are both kettlebell instructors and ki-hara resistance stretching practitioners, so we have contined with that as well. Through everything, I have learned that my body does better with pretty intense training. When I was first diagnosed and met my husband, he was doing Muay Thai and Kung Fu. I decided I wanted to try and started with the Kung Fu since it was easier on the body. After a few months I decided to try Thai. My body took a long time to adjust to the sheer physicality of hitting, kicking, kneeing, and elbowing. I told myself that I was in pain if I did it or didn't do it, so I might as well do something.

              Anyway, don't want to bore you with all that stuff. Thanks for the encouragement and I will be checking in on you! Hope you enjoyed your date with the leaf blower!

              @jenn26point2 I hope your mother-in-law figures out there is so much more to life than being held prisoner by her own body. People do need to come to the realizations on their own. I've been preaching to my diabetic father for years and he still won't make an effort to change. He needs to do it for himself, I can't make him. Just like you can't make her. Hopefully you'll be able to lead by example! If I can help out in any way, please let me know. I know how hard it is.

              Have a great day!

              Comment


              • #22
                Thanks for the offers of help, ladies. I did send her the link to this journal, so maybe she's lurking around and reading about all your fibro successes.

                I hope you're both feeling great today.
                Primal since March 5, 2012
                SW: 221 | CW: 204 | LPW: 166 | UGW: 140 (80 lbs loss)



                Comment


                • #23
                  Frustration is my emotion of the day. I'm not finding the success I was hoping for with eating 80 grams of each - or trying to stick somewhere near those numbers. I might ditch it for a more relaxed approach. Primal/paleo - and in moderation. The dark chocolate is my guilty pleasure, maybe I'll take a break from that too. I'm toying with the idea of putting away my food journal for a while cuz I think its making me think of food too much. If I only eat when I'm good and hungry I think I might have more success with weight loss. I've been reading a lot of what Mark has to say about IFing. I like his theory on eating when you're body tells you it needs food. WHEN he calls it. When Hunger Ensues Naturally. Makes perfect sense. The key I suppose it to eat just enough to stop feeling hungry, instead of eating to the point of being FULL.

                  Dinner tonight is salmon! not sure if I'll make steamed veggies to go with it - or make a sweet potato.

                  So, we got the concrete all poured around the posts of the pergola, filled in the flowerbeds with dirt, and replaced all the rock. I moved 24 60 pound bags of concrete! lifted them onto the hand truck, pushed them 50 yards, then lifted them off the hand truck. Thats a lot of heavy lifting! I was hurting and tired on Monday! But the pergola is looking pretty dang good! for a couple of amateurs I think we're doing okay.

                  I haven't been walking for about 3 weeks cuz I started riding my bike when the weather is good enough. Its mid-April and we are still seeing highs in the 40's ----- whats up with that? The weekend was gorgeous - I think it got up to 68 or 70 on Saturday! I even got a little sunburned and I certainly got enough exercise on the weekend! But I'm feeling a bit guilty for not having a daily routine of walking or biking. I know when the weather gets better that will change. I HATE being cold! I think the weather is effecting my mood too - I need to see the blue ski and feel the sun on my face for more than a day. Its just a grumpy day for me I guess.
                  1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
                  2. Eat to heal
                  3. Move to live
                  4. Embrace today
                  5. Live with intention
                  6. Respect my body
                  7. Cultivate joy
                  8. Find my passion
                  9. Meditate on peace in my soul

                  Comment


                  • #24
                    Hi Tomi, I just discovered your journal . I've had FM since about 8 years (never got really diagnosed, but my rheumatologist 'suspected' it, she just didn't like "to put a label on people" ) and have been on several types of meds over the years (redomex, cymbalta, anti-inflammatory, anti-spasm, you name it) . Until a few months ago I was on 1800 mg/day gabapentin as pain med (and still always in pain, every minute of every day)....I am now med-free since 1 week!!! I can hardly believe it's true
                    My Journal: Candy in Primal Wonderland
                    My Blog: Candy in Wonderland
                    Goal for 2012: keep weight steady (+/- 74 kg): check
                    Goal for 2013: lose 10 kg and keep new weight (+/- 65 kg)

                    Comment


                    • #25
                      Tomi, I hear ya about needing the sun! I am in need too. We had some cloudy days recently and some definitely colder days than what we had become accustomed to. I think that's finally starting to turn around here, though. I hope it does for you too.

                      Don't feel bad about not having an exercise routine. There are people here who don't exercise a bit. There are people who are sporatic at best... then there are people who use it as an excuse to leave work (like me). Do it when you feel like it, when you can and when it feels good. Those are Mark's rules.

                      Biking occasionally is perfectly fine. I wish I had a bike. That would be way more fun than the stationary thing at the gym...
                      Primal since March 5, 2012
                      SW: 221 | CW: 204 | LPW: 166 | UGW: 140 (80 lbs loss)



                      Comment


                      • #26
                        Originally posted by Candy in Wonderland View Post
                        Hi Tomi, I just discovered your journal . I've had FM since about 8 years (never got really diagnosed, but my rheumatologist 'suspected' it, she just didn't like "to put a label on people" ) and have been on several types of meds over the years (redomex, cymbalta, anti-inflammatory, anti-spasm, you name it) . Until a few months ago I was on 1800 mg/day gabapentin as pain med (and still always in pain, every minute of every day)....I am now med-free since 1 week!!! I can hardly believe it's true
                        Candy I am so excited for you! Isn't it amazing to NOT feel pain? I still have a fair amount of fatigue, but the more active I get the less I have. Two years ago I was applying for disability because the fatigue had gotten so bad I couldn't even work part time. I got denied, as I expected I would. But I'm glad, because it made me keep searching for answers. I'm now finding that even at 51 I can still have an active, enjoyable life! I tried a few meds over the years, but nothing really helped me either. Nothing until I found primal/paleo eating. I felt drastically better in only 3 days of being off all the "wrong" foods. I sure I wish I could convince my sister to do this. She's 63, has fibro, type 2 diabetes and weighs about 400 pounds. She says she can't do this cuz its the wrong diet for a diabetic. I want to say thats BS, but it wouldn't help. So, I keep my mouth shut.

                        I'm trying to spread the word. I need to get involved with some of the fibromyalgia "support groups" online. But honestly, all those women do is belly ache about how awful they feel! I tried to get involved in several different sites, but I got so depressed reading all that "woe is me" crap! Yes, its aweful, but dwelling on it doesn't help either. I'm still going to go on and put in my 2 cents worth, maybe someone will find the information helpful and decided to try it.

                        Thanks for saying hi and sharing your story. Stick around. If you're interested in a thread for us gals, I started one under Odds and Ends - its called She-groks only......... cuz it works different for us! Come join us! Great bunch of girls!
                        1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
                        2. Eat to heal
                        3. Move to live
                        4. Embrace today
                        5. Live with intention
                        6. Respect my body
                        7. Cultivate joy
                        8. Find my passion
                        9. Meditate on peace in my soul

                        Comment


                        • #27
                          Tomi, it is such an encouragement to me to read that this is helping with your fatigue. I suffer from chronic fatigue, to the point that I have been out of the workforce for years, and I desperately want to get better.
                          5'2", 55 years, Primal since April. Pre-Primal weight loss, from 216.6 to 157.8
                          Primal low: 140.2 (Dec. 3) Goal weight: 135?
                          Main Primal goal: beating back my CFS enough to function more normally and start writing again

                          More and more, our life has been governed by specialists, who know too little of what lies outside their province to be able to know enough about what takes place within it.
                          - Lewis Mumford

                          Comment


                          • #28
                            Originally posted by Judg View Post
                            Tomi, it is such an encouragement to me to read that this is helping with your fatigue. I suffer from chronic fatigue, to the point that I have been out of the workforce for years, and I desperately want to get better.
                            Judg -- then you have enormous incentive to stay as pure primal as you can! Have you started? I would love to help you if you need anything. You will be amazed at how much better you will feel once you get all the toxins out of your body. I can feel it when I eat wheat - last week I ate a peice of naan (indian bread) and within 2 hours my legs were throbbing! If I stay clean - I don't hurt and I have so much energy!!! You can do this! Its the easiest thing I have even done and the best thing I could ever do for my body and my future!

                            LETS DO THIS!!!!
                            1. Love ME no matter what noises are screaming at me, or who is trying to tear me down.
                            2. Eat to heal
                            3. Move to live
                            4. Embrace today
                            5. Live with intention
                            6. Respect my body
                            7. Cultivate joy
                            8. Find my passion
                            9. Meditate on peace in my soul

                            Comment


                            • #29
                              Originally posted by tomi View Post
                              Judg -- then you have enormous incentive to stay as pure primal as you can! Have you started? I would love to help you if you need anything. You will be amazed at how much better you will feel once you get all the toxins out of your body. I can feel it when I eat wheat - last week I ate a peice of naan (indian bread) and within 2 hours my legs were throbbing! If I stay clean - I don't hurt and I have so much energy!!! You can do this! Its the easiest thing I have even done and the best thing I could ever do for my body and my future!

                              LETS DO THIS!!!!
                              I officially started as of today. I was down visiting in the States for 10 days and during that time I cut back hard on grains (just a wee bit of bread and cereal). It did seem to keep my energy levels more constant. Mind you, I've been cutting back on carbs for a couple of years as a part of my weight loss strategy. It just never occurred to me that grains could possibly be unhealthy until I read that whole grains and dairy inhibited iron absorption. (I had just been diagnosed with catastrophically low iron levels.) Whole grains and dairy were very important parts of my eating habits. It kind of shook my world.

                              How long did it take you to start feeling better? I don't know how much incentive I would have to maintain a primal lifestyle, eating-wise at least, if it didn't help with the fatigue. I've been losing weight very successfully on my own, but I was really hoping it would help lift the fatigue more than it has. Even with improving iron levels and losing 60 pounds, I am still too tired to get my act together. I can't hold myself to a task for very long, keep my thoughts together, or my motivation up. All my determination has gone into losing weight and I don't have any left for anything else. At least the new wardrobe has been a nice perk. LOL!

                              Having energy sounds so wonderful... As it stands, if I go out grocery shopping one day, I have to stay home and rest the next day. What most people cram into the cracks of their day takes all my energy for two days. So for me, at this point, it's all about energy.
                              5'2", 55 years, Primal since April. Pre-Primal weight loss, from 216.6 to 157.8
                              Primal low: 140.2 (Dec. 3) Goal weight: 135?
                              Main Primal goal: beating back my CFS enough to function more normally and start writing again

                              More and more, our life has been governed by specialists, who know too little of what lies outside their province to be able to know enough about what takes place within it.
                              - Lewis Mumford

                              Comment


                              • #30
                                I used to be tired ALL the time too, and now my DH almost doesn't recognize me . I hope you will feel the difference soon too, Judg!
                                @Tomi, I hear you on the fibro-boards. I have a friend with fibro, chronic fatigue and a lot of other problems, but when I tell her she goes 'yeah right' and rolls her eyes and goes on feeling awful, taking more and more meds every day and dragging herself through every day, from doctors appointment to doctors appointment....
                                My Journal: Candy in Primal Wonderland
                                My Blog: Candy in Wonderland
                                Goal for 2012: keep weight steady (+/- 74 kg): check
                                Goal for 2013: lose 10 kg and keep new weight (+/- 65 kg)

                                Comment

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