I am starting this with some trepidation because I am such a failure at dieting and self improvement, body wise, and to make matters worse I have End Stage Renal Disease. I have a GFR 15 (African American) my latest lab results and my creatinine and bun are very high. So I probably should not even be doing this. When I first met with my current Nephrologist she took one look at me and said you will be on dialysis in 1-6 months. That was December 2007 and I am still not on dialysis, but that is conventional wisdom in action. However, my kidneys are not getting any better and I need to do something and be accountable for what I do to my body. Another reason I am doing this is because I believe my overconsumption of fructose and carbs damaged my renal vasculature and increased my hyperinsulinemia to epic proportions and if I had been on a low carb primal diet years ago I would have better renal function.
When I became aware of the drastic decline in my renal function I did a lot of research about diet and was advised to drastically cut my protein consumption. This seemed reasonable and intuitive however I didnít think it was right, and read that protein restriction was at best controversial for pre dialysis patients but high protein is an absolute requirement for dialysis patients.
At that time I didn't believe my kidneys were at the point of no return and desperately tried to find someone just one little tiny person who reversed ESRD. I did find one and there was a study in which the researchers believed that 1-2% of people with ESRD do have renal recovery after starting dialysis but it goes undetected. That gave me some hope but of course there were no theories to explain this phenomenon and my doctor said those people who had recovered actually had acute renal failure and I have chronic renal failure which is way different. The jury is still out on all of that but I figured in the meantime I should take care of my body more than my kidneys because I have to be overall healthy to have a transplant and the drugs they put you on after a transplant usually induces diabetes, at least temporarily.
I am not looking to go into ketosis but I would like to keep my carb consumption under 200 per day. I know that is high but any lower probably would not work out for me. I weigh 284 pounds and have to weight 231 pounds to even be put on the transplant list. So far I have dropped about 10 pounds since May ( I know, pitiful) but in spite of my weakness and fatigue I manage to work full time and go to the gym about 2-3 days per week and walk around Greenlake (2.7 miles) every Sunday for the past 4 weeks so far. If you see an overweight black woman walking like a zombie around Greenlake on a Sunday late afternoon it is probably me, stop and say Hi. I am planning to get a Grok tee-shirt.
Anyway I want to keep my carbs under 200, make my exercise routine more primal, eat better food, like grass fed beef and chicken, do very light yoga and very light meditation, get plenty of sleep, keep working, walk as much as I can every day and hope my kidneys keep holding out until I can get a stem cell kidney or some other miraculous cure gets discovered, or until I get a transplant.
I have also decided to start drinking protein drinks at dinner time. Dinner is the worst time for me. I live alone and when I get home I am usually extremely exhausted. I donít feel like doing a lot of cooking, but it is the time I am the most vulnerable to my urges (for carbs and sweets and fast food). I asked my nephrologist a few months if it would be ok to have protein drinks for dinner and she said no way you cannot handle the fluid overload. A couple of months later my potassium was extremely high and she surmised that I was not getting enough fluids. I told her I thought I wasnít supposed to be consuming a lot of fluids. Then I realized she forgot I was not on dialysis. I urinate all the time and do not have a problem with fluid overload so I could have been having protein drinks for dinner all this time instead of the crepes and other monstrosities I indulged in. Anyway I will start doing protein shakes with coconut oil for dinner and may sometimes for breakfast because sometimes I have problems with the taste of eggs and breakfast meat. I will make sure I eat a salad or some other healthy vegetable for lunch; I like blackberries for breakfast and finish off dinner with the protein. I cannot eat a lot of vegetables and fruit because they have a lot of potassium and I have a problem with a high potassium level. I would welcome any advice from the knowledgeable people in this forum since I cannot find any other renals who are also low carb but I am