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  • I am very happy to have completed a full week. I made the Everyday Paleo fruit cobbler yesterday, minus the honey, and it was delicious, even without cream. I don't usually make desserts when I am eating non-paleo foods, so I don't see it as harking back to unhealthy habits- making a wholesome, sugar free dessert a couple of times a week is a good thing for me I think.

    I know I am probably eating too many nuts, and also dark chocolate (because it is starchy and also not guaranteed 100% gluten free), but I am happy for now.

    I am noticing feeling discontented and realising it is because my body wants to MOVE. I still feel tired and a little joint soreness, but this is wonderful. I've done either my biomechanics exercises or some kundalini every evening this week. Need to get outdoors today.
    Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

    Eat food. Mostly real. Enjoy life.

    Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

    "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
    Harold Whitman

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    • Great news. And no, I wouldn't sweat the nuts right now, either - forward is forward, and always better than what you left behind!
      5'4" 39yo mother to five sweeties & married to their AMAZING DaddyGrok
      Current Weight: 175lb__________________________________Goal: 135lb
      Deadlift: 240lb________________________________________Back Squat: 165lb
      Bench: 130lb__________________________________________Pre ss: 85lb
      ***Winning a 20-year war against binge eating disorder***

      Comment


      • Been off the whole 30 for a few days as I got a blood test for inflammatory factors (joint pain worsening so decided to have another go at getting diagnosed), so decided to eat starches beforehand in hope of getting something to show up in my bloods (I do not have fibromyalgia thankyou GP!).

        Have a cough, wheezing and rattly windpipe today. Could be a bug but I used to have the exact same symptoms from gluten. I cough up gunk (sorry) and then can hear a funny rumbling noise and feel vibration in my chest as if gunk is bubbling about in there, yuck. Well, I recently discovered that Lindt 90% cocoa chocolate is cc with barley malt, depsite only saying "may contain traces of soy or nuts" on the labelling! Evil Lindt! I have been eating that stuff nearly every day since I went primal in Aug 2010. I've increased it recently as I decided to give it up as it contains starch, and I had a few bars I bought as it was on offer at the supermarket, so have been using them up. So I now wonder if that is why I have had increasing joint pain and general malaise. Have cut it out as of today, so we'll see.
        Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

        Eat food. Mostly real. Enjoy life.

        Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

        "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
        Harold Whitman

        Comment


        • I've been away for a while, been ill with a realyl nasty chest infection (still am and am getting owrried after 2 courses of antibiotics I am still coughing up lumps of gunk and have a fever, I really don't want to go back to struggling to breathe like I was a couple of weeks ago!) and had a daliance with the "Normal Eating" program before realising who was I trying to kid, it's not about psychology (mice who have had their ability to taste sugar removed still choose sugar water over normal water, and you can't blame that on their childhood or thought patterns!). I got my chronic illness diagnosed at last a couple of weeks ago, I have hypermobility syndrome, not AS. I can eat starch again, yay!! I'll be getting physio and hope it helps with the joint pain and fatigue.

          Taking out the Lindt has definately helped, my digestion is much better.

          I'm reading this book at the moment Dr. Mike Dow - Diet Rehab. It has an interesting perspecitive on food addiction and neurochemical issues and is helping formalise some of the ideas I have currently. One thing that interests me is that he talks about serotonin and dpoamine problems, serotonin is clearly my worst though dopamine is an isue too. Dopamine is raised by, amongst other things, red meat, fat, extreme sports and so on. Serotonin is raised by other things, including carbs. It really makes sense of how some people (espcially men who are more likely to be short of dopamine than serotonin) do so well on a lifestyle of lots of red meat, fat, primal workouts and coffee. Whereas for someone like me who is really low in serotonin, that doesn't work as it leaves my serotonin even more depleted.

          5-HTP isn't really helping me. Both times I introduced it, I felt great for a couple of weeks and then it worse off. My theory is that my body adjusts and reverts back to what it considers to be the correct level of serotonin for my current state. The plan uses foods and lifestyle changes to boost levels of key neurochemicals (also including endorphins).

          My plan now is to get back into regular proper meals with protein, fats, veggies and safer starches, and work on lifestule changes, and not worry for now about craving other stuff. He even claims you will be able to still eat some sugary foods etc without a problem, though I will believe that when I see it!

          I am resigning my job tomorrow, it is just too much for me with family commitments, health and so on. Hopefully I will get rid of this bronchitis sometime soon and then I can start trying to get back into a positive cycle instead of the negative one I've been stuck in since a traumatic experience in Feb 2010. Here's hoping!
          Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

          Eat food. Mostly real. Enjoy life.

          Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

          "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
          Harold Whitman

          Comment


          • Good to hear from you. I've been thinking of you. Thanks for the update, and lots of positive thoughts headed your way!
            5'4" 39yo mother to five sweeties & married to their AMAZING DaddyGrok
            Current Weight: 175lb__________________________________Goal: 135lb
            Deadlift: 240lb________________________________________Back Squat: 165lb
            Bench: 130lb__________________________________________Pre ss: 85lb
            ***Winning a 20-year war against binge eating disorder***

            Comment


            • Thanks . I saw the doc again yesterday and he said my chest sounds clear now and he thinks the fever I had at the weekend may have been another virus rather than the chest infection coming back. I'm doing lots of garlic, thyme tea, elderberry syrup etc and crossing my fingers. Got today and tomorrow off and then back to work until the end of my notice period in 4 weeks.

              Hopefully I can finish reading the book in that time, and pick up some useful tips on raising serotonin with diet and activities. Adding starch back in is definately helping, although I have a bit of a quandary with starch choices as the "safe starches" include quite alot of "whites" which aren't ideal for me. Though a modest amount of tapioca flour with 4 eggs and plenty of butter is not like eating white bread on it's own.

              I can't wait to get out of the non stop rushing, pressure and focing myself to keep going. No energy to do anything active for myself and the relentless pressure has made it impossible for me to eat well, I am too busy getting through the day any way I can. Money will be tight but my husband had some unexpected work come in last week so that'll help.

              Another 2.5 weeks and I can get up on the moors with my new puppy, yippee!
              Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

              Eat food. Mostly real. Enjoy life.

              Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

              "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
              Harold Whitman

              Comment


              • oooh the moors...I just had a Heathcliff moment. Hi Horsewoman. Nice to read your posts again.
                Primal since 9/24/2010
                "Our greatest foes, and whom we must chiefly combat, are within." Miguel de Cervantes

                Created by MyFitnessPal.com - Free Weight Loss Tools
                MFP username: MDAPebbles67

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                • LOL well that's about 14 miles from where I live . Ours are better though lol
                  Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

                  Eat food. Mostly real. Enjoy life.

                  Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

                  "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
                  Harold Whitman

                  Comment


                  • Well I've been contemplating my next step and have decided that I am basically done with paleo. There were two reasons I decided to try it- still having joint pain after eliminating gluten and so wondering if I was reacting to other grains/ dairy etc, and secondly in hope it would help with cravings/ carb addiction. I now know the joint pain (and the fatigue) is down to HMS and as for the cravings etc, that has all got a lot worse (which has then snowballed into more fatigue, weight gain which worsens joint pain and so on).

                    I have no intention of eating SAD, but I didn't get fat and sick from eating buckwheat. And the "safer starches" aren't ideal for me as they are whiter ones which are a problem for my blood sugar. I am still open to the possibility that I have other intolerances but I'd rather work that out by trial and error than make blanket rules, my diet is limited enough already. So I am going back to a gluten free, highish protein, moderate good fats, moderate carb with some grains WAP/ real food kind of diet. That's what I was doing 2 years ago and that was the best I have felt in years. I hoped going paleo would take my health up another notch but instead it worsened it. I have no regrets, it was a good thing to try and I have learned a lot, including shedding any residual fear of animal fats that I might have had when I came here in Aug 2010.

                    Time to move on then, and lastly to say many thanks and much love, and all the best with your journey x
                    Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

                    Eat food. Mostly real. Enjoy life.

                    Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

                    "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
                    Harold Whitman

                    Comment


                    • I hope you find exactly what you're looking for in health! It's so wise to listen to your body. I don't think buckwheat is going to kill anyone, either, lol, and I have always expected that when I restore my health, I'll have properly prepared, traditional varieties of grains (with plenty of butter) here and there. I hope it's in the cards for me!
                      5'4" 39yo mother to five sweeties & married to their AMAZING DaddyGrok
                      Current Weight: 175lb__________________________________Goal: 135lb
                      Deadlift: 240lb________________________________________Back Squat: 165lb
                      Bench: 130lb__________________________________________Pre ss: 85lb
                      ***Winning a 20-year war against binge eating disorder***

                      Comment


                      • Horsewoman is definately done with primal LOL

                        One last update from me...

                        I've continued eating as I was when I stopped considering myself to be paleo. My body just loves wholegrains LOL. I decided to make a few more tweaks, have been looking into IBS triggers (IBS is part of my condition as weak collagen also affects gut functioning). The main changes I made were cutting my fat intake and increasing soluble fibre by upping root veg mainly (increases soluble fibre without increasing insoluble fibre). I try to have some root veg every day, and decided to experiment with regulating my fat intake via the system used by a UK dioet club, LOL yes really!

                        The reason I chose this is because their plan consists of all lean meats, whole crabs and fruit and veg can be eaten freely as long as you eat 1/3 fruit and veg. Because I know I need good solid protein, I do 1/3 protein, 1/3 carb, 1/3 veg at meals. There is an allowance for milk (I use full fat, and use part of it for kefir) and cheese. And then some points for small amounts of other stuff (mainly high quality milk chocolate and low fat ice cream in my case).

                        I have also been working on the emotional side of overeating. Many times I have come across the idea of when cravings come, stopping and feeling the feelings etc, but was not able to do that. Well by coincidence I picked up a book on depression in the library, as I was feeling very down about my diagnosis (and the uselessness of my physio), and struggling to cope with the stress of my sister becoming more seriously ill with her NF2, and it had a section on grief and dealing with those kinds of things. Inspired by the book *"Heal depression and reclaim your life") I started spending some time every day just asking myself how I feel and focussing on the sensations rather than thoughts about them. Also when I start to feel uncomfortable feelings, instead of pushing them down and battling to keep going, I pause and feel them. Cravings almost completely gone! I don't think this is because I was just "emotionally eating", I think it is the combination of the right diet and this technique. A couple of times I have had a big blow up with my husband and felt strong cravings but been able to head them off. I have found that instead of all the positive thinking, cheer yourself up stuff I have been trying to do, if I am feeling down, some sad music and a wallow does wonders, after a while the feelings, having been heard and processed, lift, and life goes on.

                        Well I can say I am feeling the best I have in several years. I am embarrassed to say that, especially amongst family and friends who I have talked about Radiant Recovery, paleo etc with for years. Now here I am eating what is actually a fairly conventional healthy diet. The only difference is I probably eat a bit more protein than standard and also always use some of the diet allowance for healthy fats- 1tsp per meal if the meal is low fat. I still eat ferments, kefir etc and take vit D, Mg (brill for nighttime HMS muscle aches and cramps) etc.

                        I have had times before where I have said I have found the answer, but this time I really believe it. And it's embarrassingly simple! My digestion is a lot better too, and I can clearly see when I have eaten something that doesn't agree- like just too much at a meal, a bit fattier meal, or canned bean chilli twice in one day (lol). Higher fat didn't increase satiety for me anyway, I have been surprised to find that the same meal but with less fat fills me up and last me just the same. I think if I am running on carbs and having hunger due to blood sugar issues, fat is not helpful with that. Low carb fixes the blood sugar but the low energy and low mood was intolerable- ending with depression, days in bed, bingeing etc. Last year, my seocnd winter on paleo, I had my ligthbox out in early Sept and still felt horrible. This year- I have not even felt any need to get it out yet and it is almost Oct! Did I mention that I love wholegrains?!

                        As mentioned, my physio is useless, but thanks to google and various resources, I have worked out my own exercise program which is working well. I swim once a week, do one DDPYoga workout and one of weight training (better for me than bodyweight, being heavy and needing to take things gently). Not as good as a knowledgeable physio, but can't pay to go private so will just have to make the best of it.

                        I am reticent to say it after all these years, but I think I may have cracked it. I will always have HMS and be manageing the condition and symptoms, but now I feel I am on top of things and able to work towards having the best life I can. I've even started to dream about being able to work part time in a year or two. Who knows!

                        Closing thoughts-
                        Low carb is not for everyone
                        High or even moderate fat is not for everyone
                        Following dogma even when you know really that it is not right for you... not a good idea
                        Feelings can't be good or bad, they are messengers, feel them, hear them, and they will pass. If you need a cry, have one!

                        So on that note, I'll sign off with best wishes and good luck to all. (And if anyone in the UK wants some paleo books I have a lot to sell!) LOL

                        My new blog on living with HMS:My Wibbly Wobbly Life

                        Useful site about IBS: http://www.helpforibs.com/

                        ETA: Totally forgot to mention that I have lost 12lbs since starting my current diet plan a few weeks ago! I see my weight as a symptom, and if I am losing weight without struggle, without hunger, energy loss or a drop in mood, then I think I am onto something. Did not happen on primal.

                        In my siggy it says "Eat food. Mostly real. Enjoy life.". Yes please!
                        Last edited by Horsewoman; 09-29-2012, 12:49 AM.
                        Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

                        Eat food. Mostly real. Enjoy life.

                        Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

                        "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
                        Harold Whitman

                        Comment


                        • YAY Horsewoman!!! SO GLAD to hear you have found something that is working for you!!!!!!! Love and joy to you!!! Come back with updates if you want in the future--I'm still so interested in what you have to share! I will check your blog as well!
                          My Before/After Pics
                          Are you new here? Be sure to check these links FIRST, before reading anything on the forum! Succeed & PB 101

                          "I am a work in progress." -Ani DiFranco

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                          • Originally posted by FairyRae View Post
                            YAY Horsewoman!!! SO GLAD to hear you have found something that is working for you!!!!!!! Love and joy to you!!! Come back with updates if you want in the future--I'm still so interested in what you have to share! I will check your blog as well!

                            Thankyou . How's it going for you? I am still amazed. I feel so much happier and more energetic, and weighed again yesterday, have lost a total of 15lbs, 13lbs in the last 26 days! It is just falling off me, without hunger. I'm not bloated, my digestion is better, I'm sleeping well and I look glowing with health. Yesterday someone told me she couldn't believe I have 4 children and am 38 . Have eevn started thinking about future career plans! I guess I don't have a totally messed up metabolism after all LOL, all I needed was the right diet for me. Just never occurred to me that low fat would be a good idea! Leptin resistance? LOL

                            After 12 years of intensively working on my diet and health, it feels like so much freedom to know I pretty much have it cracked. I am sure I will make tweaks in the future as I go along, but now I have this, and my diagnosis, I basically know what I am working with and canjust get on with it. Some brain space for getting on with life, no more hours and hours of research into food intolerances, metabolic problems, inflammatory issues etc etc etc!
                            Last edited by Horsewoman; 10-03-2012, 02:17 AM.
                            Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

                            Eat food. Mostly real. Enjoy life.

                            Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

                            "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
                            Harold Whitman

                            Comment


                            • Just popped back to check up on some old friends .

                              Things continue to go well. I've been doing a bit of RRARFing (as in 180degreehealth) since New Year in hope of increasing metabolism and energy levels, so far so good. Continuing to work on meditation and acceptance, feeling my feelings and not pushing them away and so on- have been reading lots of Buddhist books and Charles Eisenstein's "Transformational Weightloss". I think I needed other factors in place before working on the emotional stuff could really work for me in terms of my eating. In this order: 1. Food intolerances esp gluten, 2. Physical food issues eg blood sugar, right proportions of macros etc, 3. Emotional work.

                              HMS continues to be a battle, no useful help from medics at all so am still on my own.

                              I have to admit, I very much regret that I ever did low carb. I have still not been able to get my energy level back to what it was before I started paleo. I look around and see so many people doing low carb paleo and struggling with the same issues, getting more and more obsessed and restrictive about food, getting endocrine workups, going on thyroid meds and so on. Sure, some do okay on it, but for the majority of ordinary people, I really think not.
                              Last edited by Horsewoman; 04-15-2013, 06:24 AM.
                              Gluten intolerance and hypermobility syndrome http://www.cfids.org/pdf/joint-hypermobility-guide.pdf

                              Eat food. Mostly real. Enjoy life.

                              Health, energy, wellbeing, vitality, joy, LIFE! Health At Every Size

                              "Do not ask what the world needs; ask yourself what makes you come alive. And then go and do that, because what the world needs is people who have come alive."
                              Harold Whitman

                              Comment


                              • Question for horsewoman

                                Originally posted by Horsewoman View Post
                                Glutamine and MSM is here, and colostrum, managed to take some in water kefir, without throwing up lol. Got some food grade cocoa butter and red palm oil and ordered some ghee (want it really pure at least to begin with). Also put in an order to Devon Rose- a whole load of sausages and venison burgers, game mix, various offal we can't get in the shops (calves liver, pig kidney and lamb sweetbreads) and 600g each of pastured, organic lard and beef dripping, yay!

                                Waiting for L-carnitine and CoQ10, still looking for a supplier of gelatine in more than 70g packets.
                                Why do you have an article on hypermobility as your tag? My daughter has just been diagnosed. When I clicked on it, I see the article was written by her doctor. Looking for good information on it. She has pain in her joints.
                                Thanks.

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